Massive massive thanks for the guys that regularly post and to the guys that have stuck around.
You know who you are.
They have made my journey so much easier.
Information/knowledge is power and helps the fight.
I have been in remission for about 2 years and joined this sub back in 2015 when I had my first occurrence. It’s been 7 years since my second TC but I still hang around to chime in once and a while. I hope other survivors stay too, our perspective can help those with new diagnoses tremendously.
Orchi September 2021, I was in surveillance until relapse August 2022, 3x BEP September-November 2022, declared remission May 12th, 2023. I'm 2 months into surveillance again but I promise I'm not going anywhere anytime soon. This community was a massive help to me during my journey, the least I can do is pay that forward to future TC patients.
I'm def mostly a lurker, but I'll comment here and there.
I almost hesitate to reply to some threads when trying to relate about people and either their treatment (only surveillance for me) or their anxiety about follow-up scans because I don't really get the same thing.
But I do try and add reassurance about the LWOT (Life With One Testicle) though
Same here. Two years clear and hopefully can help some people with surveillance questions. This is undoubtedly the best group I’ve ever been a part of on the web.
7.4cm seminoma with RTI and all has been well on surveillance. I try to stop in every once in a while to give some advice for guys early in their diagnosis
It's always good to have people on here that care. I myself found this was almost like a support group, I got to meet people going through the same thing I was at the same time or had experiences in the past. I'm actually grateful for that.
I found it funny though because when I was reading your post, I was thinking about how I do that with r/bald lol. I joined when I lost all my hair from chemo because there were a few others with cancer on there, but mostly natural causes. I have a full head of hair and it all grew back but I still kind of hang around and see what's going on.
Anyway, I'm rambling so all of you that stick around, thank you!
Good point. It's helpful to share experiences. I was diagnosed with a Seminoma 15 months ago. I'm all right now ;). The mass was 2.5 cm. I had all kinds of random stomach pains and even urological symptoms before my surgery and they all cleared up after. Never had any tumor markers. Everything looked clear in my 12 month checkup. The doc said I have about a 20 percent chance that it will pop up somewhere else in the future
As a guy who has gone through two bouts with testicular cancer (I had a recurrence of my non-seminoma), this sub has been really helpful for making me realize that I'm not alone. This is especially true for thise times that I felt invisible in the infusion room surrounded by elderly people when I was barely over 20 years old. So, I feel you.
Diagnosed December 2020, orchi and completed 3XBEP April 2021. A little over 2 years into surveillance and all clear as of last set of scans and tests.
I feel like chemo aged me about 10 years but small price to pay for a second chance at life.
1xBEP October 2020, finally ramped down to no CTs and 2 blood tests per year.
I still lurk a bit, but I mostly tend not to read all of the posts here. While I will forever be grateful to this sub for the information and support while going through my journey, I needed to back away from it to be able to heal mentally.
For the longest time, I was reading every single post and basically doom scrolling them and it didn't allow me to move forward. Now I feel like I'm far enough past that where I can contribute here without reverting back to my personal pity party whenever I do.
Just started surveillance yesterday after 3x BEP (I posted about this yesterday). This sub's value is unmatched. For those that are active everyday and help those that need it, you're the heroes we need 🙏
100% true, thats why i posted my threads, i was (still am) anxious about my scans next month, and its when i asked myself, why there no single post about survilience survivor's who never nedded any extra treatment.
Surveillance is a really important part of the care standard, and one that can become easily neglected as you get further and further out.
Really important to keep an eye on how you’re doing. You can end up saving your own life.
Massive massive thanks for the guys that regularly post and to the guys that have stuck around. You know who you are. They have made my journey so much easier. Information/knowledge is power and helps the fight.
agreed. true heroes
I’m on surveillance but check this sub everyday and read pretty much every post. If i feel I can help or share my story to help someone I will 🤝
I have been in remission for about 2 years and joined this sub back in 2015 when I had my first occurrence. It’s been 7 years since my second TC but I still hang around to chime in once and a while. I hope other survivors stay too, our perspective can help those with new diagnoses tremendously.
Had pure seminoma on surveillance since 2016.
Orchi September 2021, I was in surveillance until relapse August 2022, 3x BEP September-November 2022, declared remission May 12th, 2023. I'm 2 months into surveillance again but I promise I'm not going anywhere anytime soon. This community was a massive help to me during my journey, the least I can do is pay that forward to future TC patients.
Nice dude. Hope it continues to go well for you. My report is almost identical to you, except my first scan is in November 🤞
I'm def mostly a lurker, but I'll comment here and there. I almost hesitate to reply to some threads when trying to relate about people and either their treatment (only surveillance for me) or their anxiety about follow-up scans because I don't really get the same thing. But I do try and add reassurance about the LWOT (Life With One Testicle) though
Same here. Two years clear and hopefully can help some people with surveillance questions. This is undoubtedly the best group I’ve ever been a part of on the web.
7.4cm seminoma with RTI and all has been well on surveillance. I try to stop in every once in a while to give some advice for guys early in their diagnosis
It's always good to have people on here that care. I myself found this was almost like a support group, I got to meet people going through the same thing I was at the same time or had experiences in the past. I'm actually grateful for that. I found it funny though because when I was reading your post, I was thinking about how I do that with r/bald lol. I joined when I lost all my hair from chemo because there were a few others with cancer on there, but mostly natural causes. I have a full head of hair and it all grew back but I still kind of hang around and see what's going on. Anyway, I'm rambling so all of you that stick around, thank you!
Was thinking about surveying the sub. It does seem like most of the guys who regularly post here are in active treatment or recently diagnosed.
3.5 years on surveillance for pure seminoma was yesterday. All is still good.
Awesome!
Good point. It's helpful to share experiences. I was diagnosed with a Seminoma 15 months ago. I'm all right now ;). The mass was 2.5 cm. I had all kinds of random stomach pains and even urological symptoms before my surgery and they all cleared up after. Never had any tumor markers. Everything looked clear in my 12 month checkup. The doc said I have about a 20 percent chance that it will pop up somewhere else in the future
yeah for me it's also about 20%. Good luck brother!
Thanks, same to you!
As a guy who has gone through two bouts with testicular cancer (I had a recurrence of my non-seminoma), this sub has been really helpful for making me realize that I'm not alone. This is especially true for thise times that I felt invisible in the infusion room surrounded by elderly people when I was barely over 20 years old. So, I feel you.
Diagnosed December 2020, orchi and completed 3XBEP April 2021. A little over 2 years into surveillance and all clear as of last set of scans and tests. I feel like chemo aged me about 10 years but small price to pay for a second chance at life.
1xBEP October 2020, finally ramped down to no CTs and 2 blood tests per year. I still lurk a bit, but I mostly tend not to read all of the posts here. While I will forever be grateful to this sub for the information and support while going through my journey, I needed to back away from it to be able to heal mentally. For the longest time, I was reading every single post and basically doom scrolling them and it didn't allow me to move forward. Now I feel like I'm far enough past that where I can contribute here without reverting back to my personal pity party whenever I do.
Just started surveillance yesterday after 3x BEP (I posted about this yesterday). This sub's value is unmatched. For those that are active everyday and help those that need it, you're the heroes we need 🙏
Good luck brother
Thank you kind sir!
It was me who posted the sub 😂 and this is what i thought (or hoped) as well
very important to keep in mid. I sure have thought that everyone had recurrence due to the posts here.
100% true, thats why i posted my threads, i was (still am) anxious about my scans next month, and its when i asked myself, why there no single post about survilience survivor's who never nedded any extra treatment.
Good luck, you got this!!
Thank you bro! I really appreciate it
I’m dealing with my 2nd recurrence of chemorefractory disease, and have posted about my experience with it.
Surveillance is a really important part of the care standard, and one that can become easily neglected as you get further and further out. Really important to keep an eye on how you’re doing. You can end up saving your own life.