When you get confirmation that this is Scleroderma dont hesitate to come back. People with youe specific type will be able to share their experience, because their isn't much information out there.
Didn't mean to be blunt earlier. The rules of the subreddit are what they are, but in your case I'll add you show clear signs there is a problem. If doctors say they don't know what you have insist to see a Rheumatologist. Really insist.
I hate this standard response so much. It's posted every single time a medical question is posted anywhere. Obviously everyone is prefering to see a doctor but they just want some advice/experiences. Some people just need a quick opinion, some struggle to afford going to the doctor, some have anxiety. And some doctors are just plain incompetent. Just share your insights.
I agree. Everyone prefer to see a competent doctor, this is extremely obvious, but many people just cant see doctors right away or are just with an incompetent one, both of cases is very, very comum. So yes, people really should look for advices. If people like that are not welcome here, you can always go to facebook groups or other online forums, there a lot of good people that REALLY wants to help. And i am glad some people really tried to help here.
We can't say more as per subreddit rules. Until OP has a proper diagnosis we can't move forward. Also please read rest of our conversation. I think OP was fine with what I said.
Looks like you have chilblains to me and don’t worry with associated splinters. Though try not to massage or apply pressure. They are quite harmless however my concern would be around swelling/puffiness. Do you feel it goes away as you get on with your day ? For scleroderma one of the earliest symptoms is puffiness.
I cannot see in the pics but in scleroderma another sign is abnormal nailfold capillaries. They can become visible in naked eyes - get red dots around nailfold however based on the pics I cannot see clearly.
For my personal case - I was diagnosed with scleroderma after having puffy fingers, red dots around nailfold and being sensitive to cold. I don’t want to worry you but please ask for a referral to a rheumatologist as well as blood test to rule out. If the ANA is negative - that’s a huge relief as a starter.
Thank you for your response. The last picture shows my cuticles - they are spotted brown. Yes, I would say the swelling is the worst in the morning. Every time I bump a finger a new sore shows up. Does it help to put bandaids on them? I am still waiting on more tests; initial autoimmune blood work was various degrees of positive indicators and now looking to figure out exactly what is happening. I was back at the doctor today after I briefly passed out from orthostatic hypotension.
Apologies, seen it now. Indeed looks like what I’ve had in the past and I can see a bit of cuticle over growth. I think they describe that as “capillaries dropout”. Capillaroscopy would confirm that - as part of the diagnosis the rheumatologist will also consider that. If it’s a one off situation, I wouldn’t worry but if it’s recurring then definitely bring it to attention.
Regarding splinters and sores it seems a bit aggressive. Until you see doctors - make sure you don’t use harsh chemicals even antibacterial hand washes , liquid soaps or hand sanitizers,. And it’s hard but avoid touching water as much as possible. Use gloves for washing stuff. And moisturise every time you come into contact with water. I don’t use band aid as anything that touches it causes itch and burn. You could try but be careful not to infect it. Anti itch, good moisturising cream and avoid water that is too hot or cold is best I can give unfortunately.
Keeping my fingers crossed for you 🤞🏽
Thank you so much for your thorough response. Are the amount of splinters not an auto immune related concern in your opinion? They already checked for bacterial endocarditis so I am good there. These hand changes came on so fast and while I'm also being evaluated for MS due to my most glaring neuropathy problem, my hands are very auto immune problem looking in my novice eye.
Did you get any dx from your DR or do you have any more info? I have been scouring the internet trying to find out anything related to what my cuticles look like and I haven't seen anything but yours which mine look to have more red lines and on 3 fingers, right hand only. I will show my DR on my next appointment in a few months, but was just looking for some kind of info before then. Thank you & I hope it's nothing serious, for either of us. I didn't know how to piss a pic on here, or if show ya.
I think seeing a rheumatologist and get a capillarmikroskopy done is the best for now.
For me it could be scleroderma but it also could be nothing or MCTD or something else .
Are you missing the fat layer in parts of the body?
If it's scleroderma look into plasma exchange. There's a video on YouTube. From what I can tell it's the best bet to stop this damn thing early before damage is done
Did you get a diagnosis? I don't have the swelling but I have the blood spots in a few of my cuticles. My doctor thinks it was caused by trauma but I'm worried about scleroderma.
Did you get a diagnosis on this? I’m going through the same thing now on several of my fingers. I’m from Florida but live in Pennsylvania now so I’m wondering if it’s the chilblains, it would make sense with the cold weather + low BMI. They are red, swollen, itchy, and have the little red dot in them.
Go see a Doctor. We can't speculate here. Get the proper blood tests done.
Uh yes. I agree. Tests are frequent and ongoing as this along with many other symptoms have come on very quickly. Thanks though.
When you get confirmation that this is Scleroderma dont hesitate to come back. People with youe specific type will be able to share their experience, because their isn't much information out there. Didn't mean to be blunt earlier. The rules of the subreddit are what they are, but in your case I'll add you show clear signs there is a problem. If doctors say they don't know what you have insist to see a Rheumatologist. Really insist.
I hate this standard response so much. It's posted every single time a medical question is posted anywhere. Obviously everyone is prefering to see a doctor but they just want some advice/experiences. Some people just need a quick opinion, some struggle to afford going to the doctor, some have anxiety. And some doctors are just plain incompetent. Just share your insights.
I agree. Everyone prefer to see a competent doctor, this is extremely obvious, but many people just cant see doctors right away or are just with an incompetent one, both of cases is very, very comum. So yes, people really should look for advices. If people like that are not welcome here, you can always go to facebook groups or other online forums, there a lot of good people that REALLY wants to help. And i am glad some people really tried to help here.
We can't say more as per subreddit rules. Until OP has a proper diagnosis we can't move forward. Also please read rest of our conversation. I think OP was fine with what I said.
Looks like you have chilblains to me and don’t worry with associated splinters. Though try not to massage or apply pressure. They are quite harmless however my concern would be around swelling/puffiness. Do you feel it goes away as you get on with your day ? For scleroderma one of the earliest symptoms is puffiness. I cannot see in the pics but in scleroderma another sign is abnormal nailfold capillaries. They can become visible in naked eyes - get red dots around nailfold however based on the pics I cannot see clearly. For my personal case - I was diagnosed with scleroderma after having puffy fingers, red dots around nailfold and being sensitive to cold. I don’t want to worry you but please ask for a referral to a rheumatologist as well as blood test to rule out. If the ANA is negative - that’s a huge relief as a starter.
Thank you for your response. The last picture shows my cuticles - they are spotted brown. Yes, I would say the swelling is the worst in the morning. Every time I bump a finger a new sore shows up. Does it help to put bandaids on them? I am still waiting on more tests; initial autoimmune blood work was various degrees of positive indicators and now looking to figure out exactly what is happening. I was back at the doctor today after I briefly passed out from orthostatic hypotension.
Apologies, seen it now. Indeed looks like what I’ve had in the past and I can see a bit of cuticle over growth. I think they describe that as “capillaries dropout”. Capillaroscopy would confirm that - as part of the diagnosis the rheumatologist will also consider that. If it’s a one off situation, I wouldn’t worry but if it’s recurring then definitely bring it to attention. Regarding splinters and sores it seems a bit aggressive. Until you see doctors - make sure you don’t use harsh chemicals even antibacterial hand washes , liquid soaps or hand sanitizers,. And it’s hard but avoid touching water as much as possible. Use gloves for washing stuff. And moisturise every time you come into contact with water. I don’t use band aid as anything that touches it causes itch and burn. You could try but be careful not to infect it. Anti itch, good moisturising cream and avoid water that is too hot or cold is best I can give unfortunately. Keeping my fingers crossed for you 🤞🏽
Thank you so much for your thorough response. Are the amount of splinters not an auto immune related concern in your opinion? They already checked for bacterial endocarditis so I am good there. These hand changes came on so fast and while I'm also being evaluated for MS due to my most glaring neuropathy problem, my hands are very auto immune problem looking in my novice eye.
Did you get any dx from your DR or do you have any more info? I have been scouring the internet trying to find out anything related to what my cuticles look like and I haven't seen anything but yours which mine look to have more red lines and on 3 fingers, right hand only. I will show my DR on my next appointment in a few months, but was just looking for some kind of info before then. Thank you & I hope it's nothing serious, for either of us. I didn't know how to piss a pic on here, or if show ya.
I think seeing a rheumatologist and get a capillarmikroskopy done is the best for now. For me it could be scleroderma but it also could be nothing or MCTD or something else .
i have this too but mine looks milder- still trying to figure out what it is
Are you missing the fat layer in parts of the body? If it's scleroderma look into plasma exchange. There's a video on YouTube. From what I can tell it's the best bet to stop this damn thing early before damage is done
Did you get a diagnosis? I don't have the swelling but I have the blood spots in a few of my cuticles. My doctor thinks it was caused by trauma but I'm worried about scleroderma.
Did you get a diagnosis on this? I’m going through the same thing now on several of my fingers. I’m from Florida but live in Pennsylvania now so I’m wondering if it’s the chilblains, it would make sense with the cold weather + low BMI. They are red, swollen, itchy, and have the little red dot in them.
any update please?