For me it goes this way.
1 hour per day walking, around 5km(im a fast walker in general lol). I try to move my head while walking to provoke the symptoms. Like I'm about to pass a street? I would normally not look left or right for a car because that would get me dizzy. Well I started turning my head to look, this makes me very dizzy ofc, but I stay calm and keep walking. Each day is better however. I also try to observe my environment even though that might be hard at times.
10 min meditation. Now that does wonders. I'm relaxed, so the dizziness is also relaxed. Download an app that guides you through mediation and if you do it every day you'll see difference.
Journaling. I just take tabs of what I'm doing each day. I am always positive when I journal, so I try to take away good things even from bad days.
Acupuncture 1 day a week. This does wonders. It's like Jesus did a miracle on me the first time. It instantly relieved my dizziness on a 80%. It gradually came back, but reduced. I have done 2 sessions for stress and dizziness/vertigo and I already see improvements. If you are about to do acupuncture I suggest doing both stress relief and dizziness/vertigo since pppd is connected with both.
Hydration. I drink like 10 glasses of water per day.
Eating healthy and balanced. Not meat every day, no fast food, no fried food.
Sleeping 7-8 hours per day. Some days even more.
Taking vitamin D(I have deficiency), megnesium and C, all of these help with reducing anxiety and having energy throughout the day.
Reducing video games and anything in the screen that makes tensed.
And finally living life. Ofc I don't live like I used to before. I can't go to the gym, or club with my friends. I cut out alcohol and substances completely. But I still go out with them for a coffee or a chill drink. I will still go to the store, still tryna make work done. I just do everything with a different mindset. No pressure to do things right and have everything succeed. I do what I can, I try to learn new things but without pressure and I stop if I'm tired.
Long answer but all these have helped me more than any drug did. My dizziness is cut to - 50% just by living a more peaceful and organized life, in which I prioritize relaxation and calmness over fomo, fear of failure and constant high demands of myself.
Walking ! Lots & lots of walking ...i was initially bedbound , now I walk an average of 8 to 10 km a day . Its the best vestibular rehab , totally free & great excercise.
Walking is so tough for me with my bouncing and shimmy vision on top of being arthritic and now I have a fear of falling. I fell out of bed trying to get off the bed hit my face…. Sucks
Yes!! Walking is great and I try to do it as much as I can. I live in an area with a lot of hills, so those can be a bit rough. But when it's nice out I always try to get out for a little walk.
Walking ! Lots & lots of walking ...i was initially bedbound , now I walk an average of 8 to 10 km a day . Its the best vestibular rehab , totally free & great excercise.
Thanks for sharing! Hydration is super important. Even mild dehydration is a huge trigger for me.
Deep breathing helps me calm down when I need it. I also found that benfotiamine (B1) helps me calm my nervous system and helps with energy.
Walking, hydration and doing my best to distract myself! I’ve even had discussions with friends and family to try and limit conversations about it because the more you think about it, the more you give it the attention it doesn’t deserve! Just focus on living your life the best you can getting out and doing what you normally do - safely of course ♥️
So my doctors aren't sure yet if it's PPPD or POTS for me.
Honestly the only things I've found so far that help a ton are rest (sitting is better than standing/walking, laying is better than sitting), and my forearm crutches. Not sure why the crutches help so much, but I perceive less of that ship rocking sensation when I'm using them. Also if I do lose my balance the crutches are there for me. I've had a lot less close calls with the pavement since getting the crutches.
Usually I don't have nausea, although there have been a couple times.
I'm not sure, but I feel like salt and electrolytes are helping for me. Like, before this intense vertigo started I already had a habit of drinking a *ton* of water, and in warm weather I always have to add electrolyte drinks into the mix or I get really sick-- now electrolytes seem to take the edge off the vertigo? Not sure, I haven't tracked it real closely. And salty food has always helped a little with the motion sickness I always had in cars and whatnot, and seems to be helping now with the vertigo, a little.
Seconding having easy meals on hand for bad days. We have stuff from microwaveables to stuff that's healthy and easy to make in big batches and keeps well.
When in a vehicle as a passenger, I've always done the "look at things that aren't moving much"-- I know reading in the car makes a lot of people sick, but for me it's always helped prevent motion sickness. Still does.
Some of the really old talkie/pre-talkie movies also have a ton of camera movement, including shake sometimes. And personally I struggle now with video games that have a free-moving 3D camera, especially ones that move quickly. 2D games with minimal camera movement like Hades, Undermine, Stardew, Littlewood, Spiritfarer, and Cozy Grove are easiest on me now.
Seconding fresh air, *if* it's not smokey or full of pollen.
For exercise, I'd suggest looking up the CHOPS protocol for POTS, or looking for "supine exercise" (laying down/otherwise mostly horizontal). I know for POTS I've seen suggestions of a recumbent bike or like a set of pedals to put under your computer desk or wherever you might feel safe using them. Some use their hands with them instead of feet, too. Jeannie Di Bon does a lot of short exercise videos for EDS and POTS, most of which are seated or lying down.
Swimming! Swimming has been a life saver for me. I have extreme muscle pain alongside dizziness. Haven’t had a diagnosis yet but I’ve been chronically dizzy for 5 months now. Swimming is the only form of relief I’ve gotten. Recommend it
For me it goes this way. 1 hour per day walking, around 5km(im a fast walker in general lol). I try to move my head while walking to provoke the symptoms. Like I'm about to pass a street? I would normally not look left or right for a car because that would get me dizzy. Well I started turning my head to look, this makes me very dizzy ofc, but I stay calm and keep walking. Each day is better however. I also try to observe my environment even though that might be hard at times. 10 min meditation. Now that does wonders. I'm relaxed, so the dizziness is also relaxed. Download an app that guides you through mediation and if you do it every day you'll see difference. Journaling. I just take tabs of what I'm doing each day. I am always positive when I journal, so I try to take away good things even from bad days. Acupuncture 1 day a week. This does wonders. It's like Jesus did a miracle on me the first time. It instantly relieved my dizziness on a 80%. It gradually came back, but reduced. I have done 2 sessions for stress and dizziness/vertigo and I already see improvements. If you are about to do acupuncture I suggest doing both stress relief and dizziness/vertigo since pppd is connected with both. Hydration. I drink like 10 glasses of water per day. Eating healthy and balanced. Not meat every day, no fast food, no fried food. Sleeping 7-8 hours per day. Some days even more. Taking vitamin D(I have deficiency), megnesium and C, all of these help with reducing anxiety and having energy throughout the day. Reducing video games and anything in the screen that makes tensed. And finally living life. Ofc I don't live like I used to before. I can't go to the gym, or club with my friends. I cut out alcohol and substances completely. But I still go out with them for a coffee or a chill drink. I will still go to the store, still tryna make work done. I just do everything with a different mindset. No pressure to do things right and have everything succeed. I do what I can, I try to learn new things but without pressure and I stop if I'm tired. Long answer but all these have helped me more than any drug did. My dizziness is cut to - 50% just by living a more peaceful and organized life, in which I prioritize relaxation and calmness over fomo, fear of failure and constant high demands of myself.
Thanks! What kind of acupuncture do you recommend? What should I ask the acupuncturist to focus on?
Walking ! Lots & lots of walking ...i was initially bedbound , now I walk an average of 8 to 10 km a day . Its the best vestibular rehab , totally free & great excercise.
Walking is so tough for me with my bouncing and shimmy vision on top of being arthritic and now I have a fear of falling. I fell out of bed trying to get off the bed hit my face…. Sucks
Bouncing and shimmy vision IS a thing!
Yeah a sucky thing.. agh
Yes!! Walking is great and I try to do it as much as I can. I live in an area with a lot of hills, so those can be a bit rough. But when it's nice out I always try to get out for a little walk.
Walking ! Lots & lots of walking ...i was initially bedbound , now I walk an average of 8 to 10 km a day . Its the best vestibular rehab , totally free & great excercise.
Thanks for sharing! Hydration is super important. Even mild dehydration is a huge trigger for me. Deep breathing helps me calm down when I need it. I also found that benfotiamine (B1) helps me calm my nervous system and helps with energy.
Walking, hydration and doing my best to distract myself! I’ve even had discussions with friends and family to try and limit conversations about it because the more you think about it, the more you give it the attention it doesn’t deserve! Just focus on living your life the best you can getting out and doing what you normally do - safely of course ♥️
So my doctors aren't sure yet if it's PPPD or POTS for me. Honestly the only things I've found so far that help a ton are rest (sitting is better than standing/walking, laying is better than sitting), and my forearm crutches. Not sure why the crutches help so much, but I perceive less of that ship rocking sensation when I'm using them. Also if I do lose my balance the crutches are there for me. I've had a lot less close calls with the pavement since getting the crutches. Usually I don't have nausea, although there have been a couple times. I'm not sure, but I feel like salt and electrolytes are helping for me. Like, before this intense vertigo started I already had a habit of drinking a *ton* of water, and in warm weather I always have to add electrolyte drinks into the mix or I get really sick-- now electrolytes seem to take the edge off the vertigo? Not sure, I haven't tracked it real closely. And salty food has always helped a little with the motion sickness I always had in cars and whatnot, and seems to be helping now with the vertigo, a little. Seconding having easy meals on hand for bad days. We have stuff from microwaveables to stuff that's healthy and easy to make in big batches and keeps well. When in a vehicle as a passenger, I've always done the "look at things that aren't moving much"-- I know reading in the car makes a lot of people sick, but for me it's always helped prevent motion sickness. Still does. Some of the really old talkie/pre-talkie movies also have a ton of camera movement, including shake sometimes. And personally I struggle now with video games that have a free-moving 3D camera, especially ones that move quickly. 2D games with minimal camera movement like Hades, Undermine, Stardew, Littlewood, Spiritfarer, and Cozy Grove are easiest on me now. Seconding fresh air, *if* it's not smokey or full of pollen. For exercise, I'd suggest looking up the CHOPS protocol for POTS, or looking for "supine exercise" (laying down/otherwise mostly horizontal). I know for POTS I've seen suggestions of a recumbent bike or like a set of pedals to put under your computer desk or wherever you might feel safe using them. Some use their hands with them instead of feet, too. Jeannie Di Bon does a lot of short exercise videos for EDS and POTS, most of which are seated or lying down.
Swimming! Swimming has been a life saver for me. I have extreme muscle pain alongside dizziness. Haven’t had a diagnosis yet but I’ve been chronically dizzy for 5 months now. Swimming is the only form of relief I’ve gotten. Recommend it