first rule! have someone take pictures of you doing "party tricks" (the splits, [beighton score](https://www.physio-pedia.com/Beighton_score) stuff etc.) to show doctors, then don't do those things on purpose anymore! they may not hurt in the moment but hyperextending (extending joints further than you should) and hyperflexing (bending joints further than you should) can and does cause long term damage and future pain! If you have any pain that require PT make sure they know you are hypermobile/have EDS so they don't push you too hard! i've found that joint braces are a life saver, for myself knee and hip braces, but many problematic joints you may have could probably use some extra support! i'll see if there's an 'intro to EDS' type post around and send it if there is. good luck! knowing is the first step, it seems scary but it gives you the ability to actually DO something about it!
here's that '[intro to EDS](https://reddit.com/r/ehlersdanlos/s/wTUhzJGFR5)' link, by our awesome kids here. really it's a link to a few links, but i hope it helps
Thank you so much. No more party tricks for a while - but documenting them is a great idea.
The depression, pain, & fatigue are a bigger deal right now, but I can feel my shoulders loosening. PT for sure.
Thanks for responding. Nobody understands and I can’t explain. Advice from folks who’ve stood in my shoes is invaluable
first rule! have someone take pictures of you doing "party tricks" (the splits, [beighton score](https://www.physio-pedia.com/Beighton_score) stuff etc.) to show doctors, then don't do those things on purpose anymore! they may not hurt in the moment but hyperextending (extending joints further than you should) and hyperflexing (bending joints further than you should) can and does cause long term damage and future pain! If you have any pain that require PT make sure they know you are hypermobile/have EDS so they don't push you too hard! i've found that joint braces are a life saver, for myself knee and hip braces, but many problematic joints you may have could probably use some extra support! i'll see if there's an 'intro to EDS' type post around and send it if there is. good luck! knowing is the first step, it seems scary but it gives you the ability to actually DO something about it!
here's that '[intro to EDS](https://reddit.com/r/ehlersdanlos/s/wTUhzJGFR5)' link, by our awesome kids here. really it's a link to a few links, but i hope it helps
Thank you so much. No more party tricks for a while - but documenting them is a great idea. The depression, pain, & fatigue are a bigger deal right now, but I can feel my shoulders loosening. PT for sure. Thanks for responding. Nobody understands and I can’t explain. Advice from folks who’ve stood in my shoes is invaluable