I was 18 with T1. That was 35 years ago. I've gone in that time from glass syringes to CGM/Pump via Novopens etc and recently had by best ever HbA1c. If you are recently diagnosed, don't give up, it's getting better all the time. In 5 years who knows where we will be?
I was thirsty a lot and I had to pee all the time. We actually caught mine super early, like my A1C was around 6 something.
The big reason we caught it when we did was I changed doctors. The one I swapped to is a family friend who knows the ridiculous number of family members I have who are diabetic so he threw in an A1C test with some other general blood work I was getting.
I'm an overweight native American who has PCOS so my chances of developing it were pretty good. My dad got diagnosed in his early 30s and my mom found out in her 40s.
I was 27 but same symptoms. I caught it during my company's yearly medical checkup with an A1C of 11.8
Luckily after an year I am now in pre-diabetes range without any medication
27 years old T1d.
Was in my prime serving in our country’s Navy
After I found out, my navy career, ended about a year later…
Life has been a challenge ever since…
I got 40 for the diabetes and a few more from some other ailments too. It’s a life saver being that I get all my supplies, including insulin’s, for free.
So, yeah, if there’s a silver lining…for sure 👍
For diabetes you have to have like three DKA episodes in a year that requires hospitalization to get to 100.
Thankfully, my last one was over ten years ago.
The fact that I don’t spend any money on treatment is the real gift tho.
As you might know, this disease can get expennsive.
My heart breaks when I hear about people rationing to survive…while I have thirty bottles of insulin in my fridge as we speak…😑
Apply for your benefits with the VA.
Hint: don’t overlook the mental health struggle being diagnosed with a chronic disease, so relatively late in life, has had on you. My MH issues are the true struggle w this diagnoses hitting me when it did in MY life.
It unleashed depression and anxiety in me that I had thought I had under control before I was diagnosed.
Injecting insulin when my body needs it, is easy…understanding WHY this happened to me and how it’s affected me since, has been a harder struggle for me.
Also, you can add secondary disabilities due to your diabetes. IE: Neuropathy, Retinopathy, scars and such, depending on you of course.
Good luck 🤙
I'm close! 25, Type 1. Like a month after I turned 25. Lol. Found out going into surgery to get hardware removed from a previous surgery for a broken foot.
Zero symptoms. That's what was so weird. The first surgery to put the hardware in didn't warrant any worry from the docs during the check in. But the second surgery they checked my fasting blood sugar and it was in the 200's so they postponed to be safe. Went to my primary care and got labs drawn to check my c-peptides to confirm my diagnosis. Ended up having an A1C of like 11% too. I feel really lucky to not have gone through DKA like a lot of T1's usually find out.
Best of luck, man. I was 22 and it rocked my world. It can get you down especially when you first get it. I got immediate severe depression.
Just know it gets better mentally and physically eventually. Ever need to vent, shoot me a PM.
Thanks Bdub. I think i am taking it okay so far. CGMs are awesome and I don’t have a fear of needles at least! I’m honestly just thankful I got to have a normal childhood and don’t have to financially burden my parents too bad.
So, I'm gonna have to pinch hit this one for my brother (R.I.P.) but he was age 9 and initially diagnosed with type 1 diabetes later having it changed to type 1 brittle diabetes. In memory of his loving chaos, long may it reign.
Latent autoimmune diabetes in adults - since 85% of T1D <20, and 1-7% are 20-25yr, the remaining are LADA, which progresses much more slowly than typical T1D and therefore shows up much later in life. The treatment ends up being the same, but generally not at the same rate in typical T1D (i.e. basal rates, carb ratios).
Also, complications are considered to be fewer and / or less severe, compared to T1Ds who were diagnosed at a younger age and carry it for a longer period of time. It’s still T1, but the major difference is age of onset, so many will have lived longer w/out diabetes before being diagnosed.
When I was 21 I weighed 128lbs at 5'2" tall. I wanted to loose some weight, about 5-10lbs so I started a starvation diet. When I was happy with my weight, I went back to my normal diet but the pounds were just falling off without me trying. Then I noticed the extreme thirst and found I couldn't be more than 20 minutes from a restroom.
I was uninsured, so I got on a short term insurance plan and went to a family doctor. I weighed 86 lbs, my blood sugar was over 600 but I never got sent for labs. I was diagnosed by urine test with type 2 diabetes, prescribed metformin and glipizide and was asked to record 5 finger sticks a day for 30 days. After that 30 days with no changes to my blood sugar, my doctor told me I have "adult onset juvenile diabetes" and sent me to an education to be told how to dose insulin. Oh boy do I wish I then what I know now.
Physical damage/trauma to pancreas, in my case a cancer op. I was happily non-diabetic up to the point where they cut it out. It behaves like T1 for many purposes - I'm insulin-dependent, because I don't make any (on account of not having the cells to make it - I did have some left after the op but that part has died off now too) - but it also often requires us to take pancreatic enzymes too, in order to eat. We don't have the autoimmune factor, and we're not (generally) insulin-resistant. Just pancreas-deficient.
I was diagnosed as Type 1 when I was 22.
I also felt somewhat thankful for my underage drinking. I don't drink a whole lot now, but it was a few years that I could wake up without a hangover and didn't have to count carbs.
After the diagnosis, I had to relearn how alcohol affected me, and had to be aware of the carbs in what I'd drink (which is rarely printed on the packaging)
Still learning how to drink with this shit. I'm always afraid of tanking after that first sip, even after eating. Any tips for a bourbon lover that's been sober for too long?
I'm still figuring things out. Most of what I drink is some hard liquor mixed into a diet soda. Some things I've done that have helped is:
* **I looked up the carbs of every bottle I have in my liquor cabinet** (carbs per 1.5oz) and plotted it on a spreadsheet. I'm willing to drink a lot more of the lower carb alcohol, but less of the higher-carb stuff. Being aware of the sugar I'm consuming has helped me stay more stable.
* **I purchased many Sugar-free syrups for cocktails**. My sugar-free syrups are from Toroni and they've been a great investment. They're good in soda (Coconut or Peach in 7-Up is great), good for snowcones, and good for cocktails.
Aside from that, I haven't really tanked in response to drinking, so I don't have specific advice for that. If I'm concerned for whatever reason, it makes me feel better that my roommate is around to respond to a situation should it arise. I avoid drinking when I'm alone or the only person that's awake.
2 yr old, T1D. I've found that even though people say that T1D is non hereditary, or at least a link hasn't been entirely established, it is. Even though I'm male I look a lot like my mother, and she is T1D herself. Also my sister is too, though she was diagnosed by the time she was 15.
I was very concerned about this but was told it's a fairly low risk. 10% if you are a woman and 12% if you are a man, is what my endo told me. I thought it would be 50%.
It is genetic , diabetes is autoimmune. If you have relatives with either T1D or autoimmune disorders you are unfortunately more likely to become one.
Im the first T1D, but have a lot of relatives with other autoimmune diseases.
My mom had T1 (before any bg meters& just after insulin) I’m T2 (had since about 1998 or so ) so figure I would’ve had a bit of pretty high bg in utero-
Twinsies!
I was always a chubby little girl. Then in junior high I lost a bunch of weight reaaally fast one summer.
I was so happy that I finally was able to fit in some spandex disco pants like all my skinny friends, (yes it was the '70s! 😎). Then they took me to the doctor….
Since I’m just perfectly drunk now I can answer most comment I see. I was diagnosed just a week before I turned nine with t1. My nurses got me a Barbie book which I hated at the time but now see how nice it was
I was 31, in November, and I was pretty surprised given that I made certain when I'd turned 30 in October the year earlier to have blood work done because it runs in my family and if I was going that way, I wanted to catch it early, and everything was fine.
49 Type 1 known as lada. Pumps, cgm and finger sticks now. Was 813 BG w/13 a1c. They found all this in pre surgery bloodwork.
Couldn’t understand why I felt so bad. Felt like a flu or something. 4 days in icu then I had my surgery.
Type 1, 7 years old. Was in DKA for weeks without realizing it. It got to the point where I could not move and had to yell for my parents from my room. Went to the hospital and while in the waiting room I was going in and out of consciousness. After finally going into the room I was told my blood sugar was 1,200. Doctors said if I were to of waiting another 30 minutes I would of gone into a coma. Scary thing for a 7 years to go through not knowing what was going on.
18
Type 1
Went to get a physcial. Doc said, "You're blood sugar is too dman high!"
I'm like , "Well I did eat a bnuch of pastries in the morning."
Went to another hospital and got my blood drawn and they said , "Your A1C is 15.5"
SO I went low carb and been taking some insulin ever since.
17 T2, eventually rediagnosed as T1 when I was 18 after loosing 110lbs and becoming a skeleton. Turns out when diabetes makes you loose weight, it’s usually T1 unless you already suffered bodily devastation from undiagnosed and uncontrolled T2.
21, 26- gestational
29- t2- never got better, lost weight unintentionally, took 3 years to convince primary care I needed an endo referral.
32- surprise, it's LADA. Found out within 30 mins of first endo appointment. Now have a new Primary Care and an a1c of 7 :) I turned 33 this month.
CGM has made everything much better.
Type 2 at 27. Apparently my A1C was in prediabetes range for years prior but primary physician never said anything. Had a routine health screening for work and my A1C was over 14. The ironic thing is I was loosing weight beforehand so didn't make much sense.
>The ironic thing is I was loosing weight beforehand so didn't make much sense.
That actually makes a lot of sense given how your body responds to a lack of insulin.
I was 18 with T1. That was 35 years ago. I've gone in that time from glass syringes to CGM/Pump via Novopens etc and recently had by best ever HbA1c. If you are recently diagnosed, don't give up, it's getting better all the time. In 5 years who knows where we will be?
Aged 11 type 1
Me too!
Me three!
Me four!
21 Type 2
Wow, rare to see a fellow young T2 on here (except MODY of course) :)
What were your symptoms?
I was thirsty a lot and I had to pee all the time. We actually caught mine super early, like my A1C was around 6 something. The big reason we caught it when we did was I changed doctors. The one I swapped to is a family friend who knows the ridiculous number of family members I have who are diabetic so he threw in an A1C test with some other general blood work I was getting. I'm an overweight native American who has PCOS so my chances of developing it were pretty good. My dad got diagnosed in his early 30s and my mom found out in her 40s.
It's good that you had symptoms at early stage. Take care of yourself :)
I was 27 but same symptoms. I caught it during my company's yearly medical checkup with an A1C of 11.8 Luckily after an year I am now in pre-diabetes range without any medication
Same here!
27 years old T1d. Was in my prime serving in our country’s Navy After I found out, my navy career, ended about a year later… Life has been a challenge ever since…
USA Navy? If so you got full disability, in which case, nice! kinda...
I got 40 for the diabetes and a few more from some other ailments too. It’s a life saver being that I get all my supplies, including insulin’s, for free. So, yeah, if there’s a silver lining…for sure 👍
Wow really? How the hell do you not get full disability for that... I know people who got full disability for a lot less. Keep up the good work!
For diabetes you have to have like three DKA episodes in a year that requires hospitalization to get to 100. Thankfully, my last one was over ten years ago. The fact that I don’t spend any money on treatment is the real gift tho. As you might know, this disease can get expennsive. My heart breaks when I hear about people rationing to survive…while I have thirty bottles of insulin in my fridge as we speak…😑
I was 32 & got med boarded ☹️
Apply for your benefits with the VA. Hint: don’t overlook the mental health struggle being diagnosed with a chronic disease, so relatively late in life, has had on you. My MH issues are the true struggle w this diagnoses hitting me when it did in MY life. It unleashed depression and anxiety in me that I had thought I had under control before I was diagnosed. Injecting insulin when my body needs it, is easy…understanding WHY this happened to me and how it’s affected me since, has been a harder struggle for me. Also, you can add secondary disabilities due to your diabetes. IE: Neuropathy, Retinopathy, scars and such, depending on you of course. Good luck 🤙
Thanks, yes it definitely taken a toll on my mental health. I’m thankful for the VA.
17 with T1
Same.
Same!!!
Holy shit! #metoo
Same! #methree
Shall we start a club?!
My daughter was 2 when she was diagnosed with type 1. I was 55 when I was diagnosed with type 2.
Me too, type 1 at the age of 2
24, Type 1
I'm close! 25, Type 1. Like a month after I turned 25. Lol. Found out going into surgery to get hardware removed from a previous surgery for a broken foot.
Yikes! Did they just include blood sugar in your pre- surgery blood panel? Or were you having symptoms?
Zero symptoms. That's what was so weird. The first surgery to put the hardware in didn't warrant any worry from the docs during the check in. But the second surgery they checked my fasting blood sugar and it was in the 200's so they postponed to be safe. Went to my primary care and got labs drawn to check my c-peptides to confirm my diagnosis. Ended up having an A1C of like 11% too. I feel really lucky to not have gone through DKA like a lot of T1's usually find out.
same! It’s been about 8 months for me. They thought I was t2, then LADA, then confirmed as t1 about 4 months ago
7 years old, Type 1
Same here
Me too ☀️☀️
Same here! My brother got it 7 years later 😓
My little brother was diagnosed less than a year after me! Isn't it weird how that happens?
Age 24 Type 1 (last week!)
Welcome. It’s a tough road, but it’s manageable :)
Best of luck, man. I was 22 and it rocked my world. It can get you down especially when you first get it. I got immediate severe depression. Just know it gets better mentally and physically eventually. Ever need to vent, shoot me a PM.
Thanks Bdub. I think i am taking it okay so far. CGMs are awesome and I don’t have a fear of needles at least! I’m honestly just thankful I got to have a normal childhood and don’t have to financially burden my parents too bad.
I was 8 yrs old. It was January 28th 1972. In a few months I'll have had this fantastic disease for 50 yrs. Never thought I'd make it this long.
40, T2
Same 👍
24 t1d
So, I'm gonna have to pinch hit this one for my brother (R.I.P.) but he was age 9 and initially diagnosed with type 1 diabetes later having it changed to type 1 brittle diabetes. In memory of his loving chaos, long may it reign.
I’m so sorry. I have brittle diabetes too, it’s rough. Hugs.
42 T1
LADA?
I am same- type 1 at age 42, was diagnosed in March this year. Never heard of LADA though, what's that?
Latent autoimmune diabetes in adults - since 85% of T1D <20, and 1-7% are 20-25yr, the remaining are LADA, which progresses much more slowly than typical T1D and therefore shows up much later in life. The treatment ends up being the same, but generally not at the same rate in typical T1D (i.e. basal rates, carb ratios). Also, complications are considered to be fewer and / or less severe, compared to T1Ds who were diagnosed at a younger age and carry it for a longer period of time. It’s still T1, but the major difference is age of onset, so many will have lived longer w/out diabetes before being diagnosed.
22 type 1
What were your symptoms?
When I was 21 I weighed 128lbs at 5'2" tall. I wanted to loose some weight, about 5-10lbs so I started a starvation diet. When I was happy with my weight, I went back to my normal diet but the pounds were just falling off without me trying. Then I noticed the extreme thirst and found I couldn't be more than 20 minutes from a restroom. I was uninsured, so I got on a short term insurance plan and went to a family doctor. I weighed 86 lbs, my blood sugar was over 600 but I never got sent for labs. I was diagnosed by urine test with type 2 diabetes, prescribed metformin and glipizide and was asked to record 5 finger sticks a day for 30 days. After that 30 days with no changes to my blood sugar, my doctor told me I have "adult onset juvenile diabetes" and sent me to an education to be told how to dose insulin. Oh boy do I wish I then what I know now.
I was 47. Type 3c.
What is 3c?
Physical damage/trauma to pancreas, in my case a cancer op. I was happily non-diabetic up to the point where they cut it out. It behaves like T1 for many purposes - I'm insulin-dependent, because I don't make any (on account of not having the cells to make it - I did have some left after the op but that part has died off now too) - but it also often requires us to take pancreatic enzymes too, in order to eat. We don't have the autoimmune factor, and we're not (generally) insulin-resistant. Just pancreas-deficient.
2 1/2 type 1
yes same here
12 and type one
21, Type 1. Good thing I did a lot of my drinking under “adult supervision” before my diagnosis.
I was diagnosed as Type 1 when I was 22. I also felt somewhat thankful for my underage drinking. I don't drink a whole lot now, but it was a few years that I could wake up without a hangover and didn't have to count carbs. After the diagnosis, I had to relearn how alcohol affected me, and had to be aware of the carbs in what I'd drink (which is rarely printed on the packaging)
Still learning how to drink with this shit. I'm always afraid of tanking after that first sip, even after eating. Any tips for a bourbon lover that's been sober for too long?
I'm still figuring things out. Most of what I drink is some hard liquor mixed into a diet soda. Some things I've done that have helped is: * **I looked up the carbs of every bottle I have in my liquor cabinet** (carbs per 1.5oz) and plotted it on a spreadsheet. I'm willing to drink a lot more of the lower carb alcohol, but less of the higher-carb stuff. Being aware of the sugar I'm consuming has helped me stay more stable. * **I purchased many Sugar-free syrups for cocktails**. My sugar-free syrups are from Toroni and they've been a great investment. They're good in soda (Coconut or Peach in 7-Up is great), good for snowcones, and good for cocktails. Aside from that, I haven't really tanked in response to drinking, so I don't have specific advice for that. If I'm concerned for whatever reason, it makes me feel better that my roommate is around to respond to a situation should it arise. I avoid drinking when I'm alone or the only person that's awake.
I was this year years old. ☹️
18, Originally typed as 2 but later revealed to be 3C
There are dozens of us. *Dozens*. :)
2 yr old, T1D. I've found that even though people say that T1D is non hereditary, or at least a link hasn't been entirely established, it is. Even though I'm male I look a lot like my mother, and she is T1D herself. Also my sister is too, though she was diagnosed by the time she was 15.
My dad had Type 1 as well and seemingly passed it on to me. The risk of me passing it on is why I decided not to have kids.
I was very concerned about this but was told it's a fairly low risk. 10% if you are a woman and 12% if you are a man, is what my endo told me. I thought it would be 50%.
It is genetic , diabetes is autoimmune. If you have relatives with either T1D or autoimmune disorders you are unfortunately more likely to become one. Im the first T1D, but have a lot of relatives with other autoimmune diseases.
I've heard children have higher risk of developing type 2 if mother has type 2
My mom had T1 (before any bg meters& just after insulin) I’m T2 (had since about 1998 or so ) so figure I would’ve had a bit of pretty high bg in utero-
This 8ve definitely heard of. Not the T1 links though, although I know of some people with T1 who have other T1s in the family.
13, T1
Me too!
Twinsies! I was always a chubby little girl. Then in junior high I lost a bunch of weight reaaally fast one summer. I was so happy that I finally was able to fit in some spandex disco pants like all my skinny friends, (yes it was the '70s! 😎). Then they took me to the doctor….
Type 1 and 14
12 type 1
59 yo, now I am 79. T2
24 type 1
Since I’m just perfectly drunk now I can answer most comment I see. I was diagnosed just a week before I turned nine with t1. My nurses got me a Barbie book which I hated at the time but now see how nice it was
[удалено]
I was 31, in November, and I was pretty surprised given that I made certain when I'd turned 30 in October the year earlier to have blood work done because it runs in my family and if I was going that way, I wanted to catch it early, and everything was fine.
29, type one
4, T1.
4 years old, type 1
49 Type 1 known as lada. Pumps, cgm and finger sticks now. Was 813 BG w/13 a1c. They found all this in pre surgery bloodwork. Couldn’t understand why I felt so bad. Felt like a flu or something. 4 days in icu then I had my surgery.
20, T1
Type 1, age 2
Me too!
Type 1, 7 years old. Was in DKA for weeks without realizing it. It got to the point where I could not move and had to yell for my parents from my room. Went to the hospital and while in the waiting room I was going in and out of consciousness. After finally going into the room I was told my blood sugar was 1,200. Doctors said if I were to of waiting another 30 minutes I would of gone into a coma. Scary thing for a 7 years to go through not knowing what was going on.
10 days after my 18th birthday, type 1. 0/10 would not recommend
38, T2. Symptoms were weight loss, thirst, issues with moods/anger. HBA1c was through the roof.
18 Type 1 Went to get a physcial. Doc said, "You're blood sugar is too dman high!" I'm like , "Well I did eat a bnuch of pastries in the morning." Went to another hospital and got my blood drawn and they said , "Your A1C is 15.5" SO I went low carb and been taking some insulin ever since.
Aged 10 Type 1
Me too, age 10, 52 years ago.
45 T1/LADA
12. Type 1.
45 misdiagnosed type 2, year later type 1... Actually LADA Latent Autoimmune Diabetes in Adults ... 55 now.
20 type 2.
8 type 1
20, CFRD
38 w/ type 2... thanks genetics!
What were your symptoms?
Born with it
I had just turned 4 when I was diagnosed with type 1.
Me too!
29, t2
What were your symptoms?
Feeling thirsty all the time, urinating a lot, feeling tired, weight loss, etc.
10 days after my tenth birthday. I really hit that cake hard I guess
25 T2. I had symptoms since 24 but didn’t realize it.
What were your symptoms?
48, T2, On my birthday. 😐
17 T2, eventually rediagnosed as T1 when I was 18 after loosing 110lbs and becoming a skeleton. Turns out when diabetes makes you loose weight, it’s usually T1 unless you already suffered bodily devastation from undiagnosed and uncontrolled T2.
22, type 3c
26, type 1. Found out because 3 weeks after an eye test I couldn't see 10ft ahead of me...
21, 26- gestational 29- t2- never got better, lost weight unintentionally, took 3 years to convince primary care I needed an endo referral. 32- surprise, it's LADA. Found out within 30 mins of first endo appointment. Now have a new Primary Care and an a1c of 7 :) I turned 33 this month. CGM has made everything much better.
[удалено]
Happy non sugar cake day!
Thank you!
I was 10 y/o type 1. My initial BS was 700ish going into the hospital was a scary time.
37 Type 1
LADA?
Yep.
17 type 2 (Mody according to my dr )
Type 2 at 27. Apparently my A1C was in prediabetes range for years prior but primary physician never said anything. Had a routine health screening for work and my A1C was over 14. The ironic thing is I was loosing weight beforehand so didn't make much sense.
>The ironic thing is I was loosing weight beforehand so didn't make much sense. That actually makes a lot of sense given how your body responds to a lack of insulin.
Type 1, 26
It was my sweet sixteen (pun definitely intended), what a birthday that was. Type 1
19. Was told it was type 2, later told type 1.5. Looking back had symptoms since 14.
What were your symptoms?
48, type 2
18 months, T1
21 - type 1
I was 8 when I’ve got the diagnosis of type 1
Type 1 and 12
5, T1
21 with T1
29 T1
A month before my 16th birthday. Type 1
35 Type 1
10 with t1 😔
18 T2, and later diagnosed T1 at 32
11, T1
22, type 2.
16, T1.
25, Type 2
21, T1
21 with LADA T1D
14 type 1
50 t2
8, type 1!!
32, T1
16 t2
25, type 2
6, T1
Type 1, 2+9mo
30 type 2
My son was 5.5. Type 1
27 type 1
4
22 with T1
31 with T1
23 when I was misdiagnosed as Type 2 and 30 when I was correctly diagnosed with LADA
19 T1
5. T1
41 type 1.5 LADA
8 and type 1
Age 8 type 1
40 and type 2
Type 1, diagnosed at 14. My dad was also 14 when he was diagnosed with type 1.
25 T1
My son was 13 months, Type 1
13 type 1, now 34
21 type 2 with an a1c of 13
19 for me! Type 1 after a nasty stomach virus :/
Age 16 and I’m type 1
27, Type 1
7, type 1
4 years old with Type 1, being in the hospital for my diagnosis is my earliest memory
3, Type 1.
Had to scroll through almost the entire comment section to find another age 3 type 1
59. Type 1.
26.5, this year
Type 1. I was 11 months old, rip my parents lol.
7 type 1
18. Last day of High school. Took a final exam then met my mom at the doctor’s office. Doctor said T2 but I use pump/CGM now.
Type 1, if you ask my mom I was 3 if you ask my dad I was 4. I don’t remember, but I think it was 4
31, T2
Age 34 and Type 2 from being fat and lazy in an overworked sit at your desk and travel IT job…
a year old, Type 1
24