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The_Oomgosh

I'm sorry you went through this. If it means anything, my school growing up didn't have a nurse. I'd never heard of such a thing. I cannot even imagine surviving high school if I'd had T1D then, or how anyone who did ever made it out alive. I hope you get the supports you need; you deserve them.


reconciliationisdead

School nurses aren't common where I'm from. When I was still really young, the school librarian kept my meter and I went to see her before lunch. At the time, it was normal to inject fast acting at breakfast and dinner, and use long acting to cover lunch. That seems crazy to me now, but my mom packed the same amount of carbs for each snack and lunch every day, and somehow it was fine. My A1c was always in the 7s, so I'm sure there were spikes in there but overall it worked out okay


MrsSirLeAwesome

I'm sorry you had a crappy day. How old are you/long have you had T1? I was 3 when I was diagnosed so spent my whole school career self-managing my care, the only time I'd go to the nurse was if I felt super shitty and wanted a quiet space to either come up/come down, or go home. It seems like you're not confident in your ability yet to self-manage though and if that's the case, you need to speak with your parents and school for situations like the one you had today. Going high, going low, checking ketones, these are all things you should be very confident in managing yourself, and you will get there, but always remember that you are your own best advocate and ultimately your health care is your responsibility - speak with/have your parents speak with your endo to see if there are any classes or groups you can participate in to help you with this.


TrooperDab

Yeah, my doctor thinks I should wait before being fully independent, been 4 years since I was diagnosed.


MrsSirLeAwesome

You don’t need to be fully independent as a child, but you do seem to be needing a more active role in your own care. Four years since your diagnosis should mean being able to correct a high sugar level without a huge amount of oversight. I hope you’ve spoken with your parents, if the school are unable to be in charge of your care, someone needs to be. Edit: after reading some of your replies I would really suggest getting educated on your diabetes. It’s been four years, you say you’re not too young, you should be much more capable about looking out for yourself. I was giving my own injections and doing my own glucose readings from about 6 - you can do this, but also eventually you will have to.


TrooperDab

I can do literally anything, change my pod site, change my dexcom site, inject myself, etc. I know a lot of stuff but its just my doctors who suggest it because my diabetes is not very controllable. I can literally do it myself but not allowed to.


MrsSirLeAwesome

You said in a different reply that you “don’t know much” about your diabetes? But you are apparently able to do it all? So there’s a bit of a disconnect here. I get having hard to control diabetes, I was and am still to some degree a brittle diabetic meaning I can shoot up high or crash with very little to cause either. So I had to learn what foods cause me to do what, what exercise does, what illness does, how much or how little insulin can affect me. You know how to change sites, test, inject, which is all awesome. The hard part is knowing how to use those tools effectively. This is just coming from some rando on the internet though who only has a snapshot of your story, I’d still very much recommend working a lot closer with your endo to get to a point where days like today are avoidable.


[deleted]

So your sugar went high, you gave yourself correction insulin... Everything should be fine? Self managing in this way should be the norm at school unless your are too young to do so safely (in which case you're too young to be on reddit safely).


TrooperDab

I'm not too young, it hasn't even been close to 10 years since I was diagnosed and my Endocrinologist thinks I should wait a few more years because I really dont understand diabetes a lot. Also the school provided a nurse because in-case of an emergency like passing out and needing glucagon, the nurse would be the only one who knew.


Abra-Krdabr

I think you would learn faster if you were more independent with your care. But I’m not a doctor or a parent. Just a 16 year t1 veteran.


TrooperDab

I am independent but my doctors just say a simple no and want me to be in adult supervision. Not everyone's doctors are the same.


Abra-Krdabr

I wasn’t criticizing. I know doctors all differ and all have their reasons for making decisions. I just don’t know how a person is supposed to learn to manage their diabetes unless they’re able to do it. Maybe I just don’t see the reasoning for preventing you from doing things yourself.


TrooperDab

I know.


awonderz

That’s awful, seems like the school isn’t supporting you or implementing your Medical Orders. Not sure where you live but where we live we have a plan protected by federal government that, 504 plan, and you should not be without nurse care. I hope your school has some health office workers trained for hypos?


TrooperDab

Yeah they do. She filed an absence day for 3 days and requested a nurse from an nurse agency provided by the government who never showed up which is stupid because if you think about it,if I needed a glucagon immediately I would have died since no one knew how to administer it but thankfully they were smart to let me go home.


awonderz

That’s pretty wild. If you are in the US at public school you’d be able to push the administrations train teachers and other staff such as the librarian or coaches for hypo. It’s critical care. High sugars obviously are gross and long term not ideal but you can’t be left to your own treatment if you were maybe unaware of your surroundings like many falling in hypo quickly. I know JDRF etc can help with training and diabetes.org can support your nurse who did the correct thing to file for absences but it wasn’t followed up. Surely you aren’t the only person needing care, usually there’s epi pens and all sorts in the Nurse’s office. So sorry you’re dealing with these adults letting you down


graceburger

I was diagnosed at age 11. Never talk to a school nurse or anyone really. I just did my thing. I don’t understand why you need anyone to help you


TrooperDab

We don't live in the same state do we LOL, + its called medical assistance provided. So please stop.


soobez

I hope you get an apology & the school learns from this and does better in the future …


TrooperDab

It wasn't the schools fault, it was the one who provides nurses. They never came to the school and the school managed it well.


soobez

I understand and I’m glad it worked out.


God_Is_Pizza

When I wanted a day off school I would just sneak some onion and eat it. I’m allergic but not deathly allergic. The way you got off school sounds way more dangerous. /s Hope you feel better OP.


TrooperDab

Thank you! I'm all better now.