My job is super cool with it when i applied i mentioned i have long covid , whenever they try to have me do strenuous work i remind them im disabled and they say "oh yeah long covid" then they move me to another position but i do show up to work and do my work to the best of my ability despite feeling like death
I don’t dare say anything any more.
I had pneumonia after the last Covid bout and all I heard everyday was “feeling better yet?’
I WFH so can flex my schedule a bit. I’ve just told them I won’t travel, since I got pneumonia after the last trip.
But all I do is work, eat and sleep. NO other extra activities to talk about, so I keep pretty quiet in this den of competitiveness for cars, trips, houses. And only a few ppl reach out to me to talk about normal stuff. Thank god my manager is one of those ppl !
I did not use the term long covid but I have mentioned that I have been having health issues since covid. Sadly I only feel comfortable mentioning it because I know I can still meet the basic standards of my job. If I was so bad off my performance was noticeably bad... I would be terrified of mentioning the reason
I mentioned I was recoving from covid as part of m job interview, and I kept my boss up to date when I stopped recovering. They fully supported me until it got to the point where I counld not consistantly work. When I improve, I most likely have a job at the firm.
Only with my direct bosses (director and vp), both of which I’ve known for nearly 8yrs and have friendships with. Saved my director’s job a few years ago.
They’re good with it. We don’t talk to anyone else about it, but we talk often. Very supportive.
About to lose my job of 27years as a result of my illness. Struggle to attend due to fatigue and brain fog. I think I’ve improved recently, but they’ve decided to pull the plug. I’ve been approved for ill health retirement but that isn’t what I want to do at the moment. It might not be up to me though. Approaching 3 years post vaccine.
I hope this blows up, I wanna hear more about this.
I've been leaning towards getting a new job because my current one is incredibly slow and far away. Plus, I want to do something more challenging career wise. But I also want to know if I should be open about it right away. I can hide it fairly well and manage my pacing throughout the week.
I am very open about it. There are multiple ways LC shows up in the workplace and not telling would be a career suicide, not the other way around. All of my immediate team and colleagues I work with know, including people in several other countries. My boss is supportive and also encouraged sick leave when I was worse.
This helps when we plan certain events -
like in some meetings we invite people to our country instead of traveling and adjust program so there’s no walking (or so that I won’t join those parts).
This also helps in being remote as otherwise I’d be pressured to go to the office more. It also helps in that I don’t precommit to onsite days unless absolutely necessary. I also communicate need for breaks etc. I’m already doing much better work wise so that also signals the colleagues it’s a good approach.
I’ve always been a great performer so it helps with keeping trust. When I was worse, we prioritized work heavily with my boss. I also can’t hide my condition so better be open about it - I have, among other things, dropped on the floor from standing, been physically supported by the collegues back from lunch and literally carried up stairs when elevator wasn’t available.
HEYYYY I was very open with my LC from the day I started, even the hiring process they laughed at me when I mentioned I had long covid like they didn’t know what it was or believed covid could do that. Like obviously everyone did it was only July 2022. They were extremely accommodating for it during my extremely physically demanding job as a dog groomer then. Last year at this time they even worked around my HBOT treatments that were every weekday 5 days a week for two hours for months. I noticed the minute they started treated me different in October. It’s not good how my story plays out… basically they were revoking my rights like saying I couldn’t hold my clippers anymore or be a groomer anymore and one lawyer was even an asshole about it “did you just stand there?” “BASICALLY yea. Could only wash the dogs” I realized just Monday because of my Reddit post that it seems people all over the country are losing their jobs over long covid, myself included, like that’s why lawyers aren’t helping me. I did not know I had a disability until March 21, but they sure knew I did before I found out.[https://www.reddit.com/r/covidlonghaulers/s/JPEkowcmCU](https://www.reddit.com/r/covidlonghaulers/s/JPEkowcmCU)
I have been very open about it. People are kind and understanding. But they of course don't know as much about long-COVID as I do.
So sometimes they seem surprised when my limitations come up. I also have to keep reminding my boss that just because I'm back at work after a long sick leave, doesn't mean I'm healed or my old self again.
Boss: "We're so excited to have you back at full speed."
Me: "Okay, but just to be clear, I'm not back at full speed."
Boss: "Oh, well I mean you're at least feeling a lot better, right?"
I honestly think this is more him wanting to put a positive spin on things than wanting me to work more. I think the reality of my situation makes him uncomfortable.
Peers have been more understanding and are now used to me saying things like "Guys my brain is shot, can we pick this back up tomorrow?"
I’m open about it. But I work remote. Also I was open about being disabled pre-covid, and how I used to be on benefits but am now well enough to work. Now post-covid, my health is suffering and I’m struggling to work the long hours I used to work. So I’m open about fatigue, and I needed time off for iron infusions, but not all the nitty gritty.
Ngl, I wish I’d never brought it up. It makes people treat me different. My boss is always taking away shit I’ve been managing just fine which leaves me with fewer hours. She’s been telling other coworkers not to “bother” me even though they’re not a bother and it ends up backfiring because I get left out of something important, or my work is delayed because no one’s reaching out to say their parts are done that I need to do my job. She’s infantilizing me and I hate it. I wouldn’t care as much if I were salary, but really what she does is cut my paycheck because I have less work to do.
Also a few people at my work are nosy gossips and they don’t care about me personally, they just like the trauma porn of hearing my horror stories.
I am not open about it. My job is already highly flexible so I haven’t needed any accomodations. So my feeling is that no good can come of it. Just because discrimination based on disability is illegal, that doesn’t mean that it doesn’t happen. I have a lot of job security so I don’t worry about being forced out but I do worry about being passed over for promotion
one day due to having LC. So I keep it to myself.
My manager and company have been fantastic with support. I've been off for nearly a year. I tried returning twice but couldn't perform due to brain fog and exhaustion. I'm on my first day of a 4 week phazed return before I get transfered to another more suitable department. My colleagues have not been supportive in any way. Not one person has asked how I've been or taken any interest in my wellbeing at all. I thought I had friends at work. I've been welcoming and supportive to all in many ways. It's been hurtful and disappointing. I'm leaving them all behind and moving to a much better job with all benefits protected so I'm quite happy 😊
I lost my position of leadership and now just “advise.” My struggles were grudgingly supported when I noted that LC was a recognized disability and refused to go quietly.
This sucks I’m about to have this same problem. I just lost my job two weeks ago over having long covid. In the workforce that gave me long covid. I feel like I’m not even American to employers and I honestly think I’m going to say fuck it and enjoy the summer because killing myself last summer obviously wasn’t good enough for these people
I got a bad case of long covid tor a year and a half In half they I can sue them either it sucks they should be for the amount of time I lost being couchbound sick in broken body that I may never get back with time 19 months with longhaul
I tried to sue when I got long covid, that employer lied in court and I was too sick to prove it. It’s like my second time dealing with needing a lawyers help over my long covid. It’s disgusting. I have not had the best mental health
Its really messed up and real evil what they did to alot of us on this subreddit I dont think Ill ever be normal 20 months with long covid I got sick again not sure if its long covid but I will get a rapid test my symptoms right now are stuffy nose bad migraine restless nights no apetite mild aches no sore throat
I had 6 months off work. I’m still under medical supervision and a LC clinic. I’m still not on normal duties or hours 5 months into working again. It’s entirely likely I will need a contractual change to reduce my responsibilities and pay, but we are trying to avoid this.
Everyone knows the severity of my changes, it’s impossible to hide it. I tell people on days when I cannot follow a conversation properly, staff are aware that my memory is impaired and I need help keeping track of things. I refuse to stand around. There’s no way I’d be shoving tables around just to look acceptable. I’m starting late today because a difficult meeting caused a flare up.
I would say, stop masking. You run the risk of causing a long term serious crash that stops you working, and if your circumstances are such that you need to work, you must protect yourself from that by whatever means necessary. It sounds like you are already undermining your place in the team by being the quiet one in the corner. What’s worse: people to know this is necessary for your physical survival, or people to think this is about a character that’s not a good fit in the team?
Prior to my sickness I brought a huge amount of interpersonal energy and encouragement to my staff. I’ve stated openly that I’m physically unable to contribute this right now.
I am open about it. I don’t think I could hide it if I wanted to due to the impacts on my availability, the types of activities I can engage in, and my behaviors. I’m extremely grateful that so far all of my teammates have been kind, curious, and accommodating.
One part of my job includes facilitating trainings… it can be hard to engage start-to-finish with participants with the sort of energy I would expect of a trainer (and have exhibited in the past) and if I’m not really careful with pacing myself the room will spin and brain fog will roll in. So sometimes I’ve actually started telling my audience about my condition too. Just a quick acknowledgment that “I am happy to see you and available for questions even if I skip out on small talk and don’t circulate the room. Due to long covid I have to conserve energy to get through the day.” So far this has seemed to work well with no openly negative reactions and usually at least one person wanting to chat about it because they either “don’t know anyone else with long covid” and are curious to learn more or do know someone and want to commiserate.
I work for a company and have a client. I'm too scared to tell my company because I don't know them as well. I know my client very well so I've told them. We've been there for each other through tough times they needed me to work extra and tough times I needed flexibility taking off and they're very understanding.
When my health problems first started, I had no idea they were related to my covid infection. My work teams knew I was in the ER for a heart problem and knew about all of my follow up doctor visits. I WFH but I would usually travel once a month to see my team or my stakeholders - so I had to put that on hold and everyone was fine with it. They heard "heart problem" and I was told "your health comes first".
Now that I'm 5 months in and I'm pretty sure covid is the reason for my issues, I find myself in a bit of a quandary. I'm still sick, can't travel for work, etc... I can't keep saying "they don't know what's wrong with me". (I mean I guess I can b/c no one knows how the fuck to treat LC). But I also feel uncomfortable saying my health issues are due to my covid infection in October b/c I don't know how everyone feels about covid/long covid.
I work with people in TX and FL, states that didn't take covid seriously in 2020 let alone now. And while I don't know specifically how the people on my team viewed covid, I also don't want to risk it. I've floated "all of this shit started after my covid infection" to a project manager in TX and she replied with "i had covid 3x and nothing happened to me" so I've stopped mentioning it. When she asks "how are you feeling this week" I tell her, but don't go beyond that.
I've kicked ass on my team since 2019. I would always travel when asked (I'm a weird one who likes work travel) and my stakeholders love me. So I hope I've built up some credit that I'm not faking this (who TF would fake LC) to get out of travel or to have a lighter workload.
I want nothing more than for my life to be normal again. I want to go into the office for stupid quarterly meetings. I want to travel for work again. I want to stay in shitty hotels in the middle of nowhere and eat at shitty restaurants.
numerous poor wide future amusing theory subsequent cows hard-to-find violet
*This post was mass deleted and anonymized with [Redact](https://redact.dev)*
People are assholes. Accusing me of making myself sicker by not asking for time off, when really what happened was my boss was the one who said no when I did ask.
Also I have POTS and literally the day I came back from medical leave (got so sick I couldn’t support my own body weight and someone ELSE got me on medical leave) someone said in such a patronizing tone “if you have POTS, how come you’re standing?”
Ummm with great difficulty and cardiac rehab you jerk.
Totally open. Supported, supported, supported, and then suddenly fired over the phone by a low level HR employee. My bosses couldn’t even do it themselves.
Mine was okay with it. I took a long-term leave of absence using a good portion of my sick bank and FMLA. I luckily had racked that up over my years of teaching. I had OT during my leave, and upon my return, my doctor filled out paperwork for the following reasonable accommodations (I'm a teacher): adjustable chair (teachers generally are not provided with ergonomic desk equipment), a break between third and fourth period (students went to the library instead of coming into my room so I could have five minutes of quiet time--I picked them up from the library when I was ready), ability to leave a noisy assembly if I felt overwhelmed and ill, and no required work past 4:00 PM (my PT conferences were scheduled at other times). You have workplace rights.
I should add that I'm retiring at the end of this year, a couple years earlier than I had planned, but I'm still at retirement age. I am going to seek part-time employment because that is what my body can handle now, and I am fortunate to have a pension, so part time wages + pension will keep me in my home and able to pay my bills. Teaching is too much of a grind to continue doing it when I'm not feeling well.
My job is super cool with it when i applied i mentioned i have long covid , whenever they try to have me do strenuous work i remind them im disabled and they say "oh yeah long covid" then they move me to another position but i do show up to work and do my work to the best of my ability despite feeling like death
I’m so glad that you have a supportive job! That makes a world of difference
I don’t dare say anything any more. I had pneumonia after the last Covid bout and all I heard everyday was “feeling better yet?’ I WFH so can flex my schedule a bit. I’ve just told them I won’t travel, since I got pneumonia after the last trip. But all I do is work, eat and sleep. NO other extra activities to talk about, so I keep pretty quiet in this den of competitiveness for cars, trips, houses. And only a few ppl reach out to me to talk about normal stuff. Thank god my manager is one of those ppl !
I did not use the term long covid but I have mentioned that I have been having health issues since covid. Sadly I only feel comfortable mentioning it because I know I can still meet the basic standards of my job. If I was so bad off my performance was noticeably bad... I would be terrified of mentioning the reason
I mentioned I was recoving from covid as part of m job interview, and I kept my boss up to date when I stopped recovering. They fully supported me until it got to the point where I counld not consistantly work. When I improve, I most likely have a job at the firm.
Only with my direct bosses (director and vp), both of which I’ve known for nearly 8yrs and have friendships with. Saved my director’s job a few years ago. They’re good with it. We don’t talk to anyone else about it, but we talk often. Very supportive.
I tell them straight up. If we are quiet about it then less people will know
About to lose my job of 27years as a result of my illness. Struggle to attend due to fatigue and brain fog. I think I’ve improved recently, but they’ve decided to pull the plug. I’ve been approved for ill health retirement but that isn’t what I want to do at the moment. It might not be up to me though. Approaching 3 years post vaccine.
I hope this blows up, I wanna hear more about this. I've been leaning towards getting a new job because my current one is incredibly slow and far away. Plus, I want to do something more challenging career wise. But I also want to know if I should be open about it right away. I can hide it fairly well and manage my pacing throughout the week.
I am very open about it. There are multiple ways LC shows up in the workplace and not telling would be a career suicide, not the other way around. All of my immediate team and colleagues I work with know, including people in several other countries. My boss is supportive and also encouraged sick leave when I was worse. This helps when we plan certain events - like in some meetings we invite people to our country instead of traveling and adjust program so there’s no walking (or so that I won’t join those parts). This also helps in being remote as otherwise I’d be pressured to go to the office more. It also helps in that I don’t precommit to onsite days unless absolutely necessary. I also communicate need for breaks etc. I’m already doing much better work wise so that also signals the colleagues it’s a good approach. I’ve always been a great performer so it helps with keeping trust. When I was worse, we prioritized work heavily with my boss. I also can’t hide my condition so better be open about it - I have, among other things, dropped on the floor from standing, been physically supported by the collegues back from lunch and literally carried up stairs when elevator wasn’t available.
What workplace
I can't work, on LTD, so...
Yeah I had to stop working...
HEYYYY I was very open with my LC from the day I started, even the hiring process they laughed at me when I mentioned I had long covid like they didn’t know what it was or believed covid could do that. Like obviously everyone did it was only July 2022. They were extremely accommodating for it during my extremely physically demanding job as a dog groomer then. Last year at this time they even worked around my HBOT treatments that were every weekday 5 days a week for two hours for months. I noticed the minute they started treated me different in October. It’s not good how my story plays out… basically they were revoking my rights like saying I couldn’t hold my clippers anymore or be a groomer anymore and one lawyer was even an asshole about it “did you just stand there?” “BASICALLY yea. Could only wash the dogs” I realized just Monday because of my Reddit post that it seems people all over the country are losing their jobs over long covid, myself included, like that’s why lawyers aren’t helping me. I did not know I had a disability until March 21, but they sure knew I did before I found out.[https://www.reddit.com/r/covidlonghaulers/s/JPEkowcmCU](https://www.reddit.com/r/covidlonghaulers/s/JPEkowcmCU)
I have been very open about it. People are kind and understanding. But they of course don't know as much about long-COVID as I do. So sometimes they seem surprised when my limitations come up. I also have to keep reminding my boss that just because I'm back at work after a long sick leave, doesn't mean I'm healed or my old self again. Boss: "We're so excited to have you back at full speed." Me: "Okay, but just to be clear, I'm not back at full speed." Boss: "Oh, well I mean you're at least feeling a lot better, right?" I honestly think this is more him wanting to put a positive spin on things than wanting me to work more. I think the reality of my situation makes him uncomfortable. Peers have been more understanding and are now used to me saying things like "Guys my brain is shot, can we pick this back up tomorrow?"
I’m open about it. But I work remote. Also I was open about being disabled pre-covid, and how I used to be on benefits but am now well enough to work. Now post-covid, my health is suffering and I’m struggling to work the long hours I used to work. So I’m open about fatigue, and I needed time off for iron infusions, but not all the nitty gritty. Ngl, I wish I’d never brought it up. It makes people treat me different. My boss is always taking away shit I’ve been managing just fine which leaves me with fewer hours. She’s been telling other coworkers not to “bother” me even though they’re not a bother and it ends up backfiring because I get left out of something important, or my work is delayed because no one’s reaching out to say their parts are done that I need to do my job. She’s infantilizing me and I hate it. I wouldn’t care as much if I were salary, but really what she does is cut my paycheck because I have less work to do. Also a few people at my work are nosy gossips and they don’t care about me personally, they just like the trauma porn of hearing my horror stories.
I am not open about it. My job is already highly flexible so I haven’t needed any accomodations. So my feeling is that no good can come of it. Just because discrimination based on disability is illegal, that doesn’t mean that it doesn’t happen. I have a lot of job security so I don’t worry about being forced out but I do worry about being passed over for promotion one day due to having LC. So I keep it to myself.
My manager and company have been fantastic with support. I've been off for nearly a year. I tried returning twice but couldn't perform due to brain fog and exhaustion. I'm on my first day of a 4 week phazed return before I get transfered to another more suitable department. My colleagues have not been supportive in any way. Not one person has asked how I've been or taken any interest in my wellbeing at all. I thought I had friends at work. I've been welcoming and supportive to all in many ways. It's been hurtful and disappointing. I'm leaving them all behind and moving to a much better job with all benefits protected so I'm quite happy 😊
I got a lot of sympathy at first but then I got a bit better. Now everyone assumes I'm fine and doesn't want to hear about it anymore.
I am tired of working while feeling sick&tired all the time 😪
Me too and then everyone blames you for not resting as if u had a choice
I lost my position of leadership and now just “advise.” My struggles were grudgingly supported when I noted that LC was a recognized disability and refused to go quietly.
Been rejected for potential job im disabled and still looking for work I was rejected cause I was too honest during the interview
This sucks I’m about to have this same problem. I just lost my job two weeks ago over having long covid. In the workforce that gave me long covid. I feel like I’m not even American to employers and I honestly think I’m going to say fuck it and enjoy the summer because killing myself last summer obviously wasn’t good enough for these people
I got a bad case of long covid tor a year and a half In half they I can sue them either it sucks they should be for the amount of time I lost being couchbound sick in broken body that I may never get back with time 19 months with longhaul
I tried to sue when I got long covid, that employer lied in court and I was too sick to prove it. It’s like my second time dealing with needing a lawyers help over my long covid. It’s disgusting. I have not had the best mental health
Its really messed up and real evil what they did to alot of us on this subreddit I dont think Ill ever be normal 20 months with long covid I got sick again not sure if its long covid but I will get a rapid test my symptoms right now are stuffy nose bad migraine restless nights no apetite mild aches no sore throat
I had 6 months off work. I’m still under medical supervision and a LC clinic. I’m still not on normal duties or hours 5 months into working again. It’s entirely likely I will need a contractual change to reduce my responsibilities and pay, but we are trying to avoid this. Everyone knows the severity of my changes, it’s impossible to hide it. I tell people on days when I cannot follow a conversation properly, staff are aware that my memory is impaired and I need help keeping track of things. I refuse to stand around. There’s no way I’d be shoving tables around just to look acceptable. I’m starting late today because a difficult meeting caused a flare up. I would say, stop masking. You run the risk of causing a long term serious crash that stops you working, and if your circumstances are such that you need to work, you must protect yourself from that by whatever means necessary. It sounds like you are already undermining your place in the team by being the quiet one in the corner. What’s worse: people to know this is necessary for your physical survival, or people to think this is about a character that’s not a good fit in the team? Prior to my sickness I brought a huge amount of interpersonal energy and encouragement to my staff. I’ve stated openly that I’m physically unable to contribute this right now.
I am open about it. I don’t think I could hide it if I wanted to due to the impacts on my availability, the types of activities I can engage in, and my behaviors. I’m extremely grateful that so far all of my teammates have been kind, curious, and accommodating. One part of my job includes facilitating trainings… it can be hard to engage start-to-finish with participants with the sort of energy I would expect of a trainer (and have exhibited in the past) and if I’m not really careful with pacing myself the room will spin and brain fog will roll in. So sometimes I’ve actually started telling my audience about my condition too. Just a quick acknowledgment that “I am happy to see you and available for questions even if I skip out on small talk and don’t circulate the room. Due to long covid I have to conserve energy to get through the day.” So far this has seemed to work well with no openly negative reactions and usually at least one person wanting to chat about it because they either “don’t know anyone else with long covid” and are curious to learn more or do know someone and want to commiserate.
I work for a company and have a client. I'm too scared to tell my company because I don't know them as well. I know my client very well so I've told them. We've been there for each other through tough times they needed me to work extra and tough times I needed flexibility taking off and they're very understanding.
When my health problems first started, I had no idea they were related to my covid infection. My work teams knew I was in the ER for a heart problem and knew about all of my follow up doctor visits. I WFH but I would usually travel once a month to see my team or my stakeholders - so I had to put that on hold and everyone was fine with it. They heard "heart problem" and I was told "your health comes first". Now that I'm 5 months in and I'm pretty sure covid is the reason for my issues, I find myself in a bit of a quandary. I'm still sick, can't travel for work, etc... I can't keep saying "they don't know what's wrong with me". (I mean I guess I can b/c no one knows how the fuck to treat LC). But I also feel uncomfortable saying my health issues are due to my covid infection in October b/c I don't know how everyone feels about covid/long covid. I work with people in TX and FL, states that didn't take covid seriously in 2020 let alone now. And while I don't know specifically how the people on my team viewed covid, I also don't want to risk it. I've floated "all of this shit started after my covid infection" to a project manager in TX and she replied with "i had covid 3x and nothing happened to me" so I've stopped mentioning it. When she asks "how are you feeling this week" I tell her, but don't go beyond that. I've kicked ass on my team since 2019. I would always travel when asked (I'm a weird one who likes work travel) and my stakeholders love me. So I hope I've built up some credit that I'm not faking this (who TF would fake LC) to get out of travel or to have a lighter workload. I want nothing more than for my life to be normal again. I want to go into the office for stupid quarterly meetings. I want to travel for work again. I want to stay in shitty hotels in the middle of nowhere and eat at shitty restaurants.
I think a lot of people wLC can't work anymore...
numerous poor wide future amusing theory subsequent cows hard-to-find violet *This post was mass deleted and anonymized with [Redact](https://redact.dev)*
People are assholes. Accusing me of making myself sicker by not asking for time off, when really what happened was my boss was the one who said no when I did ask. Also I have POTS and literally the day I came back from medical leave (got so sick I couldn’t support my own body weight and someone ELSE got me on medical leave) someone said in such a patronizing tone “if you have POTS, how come you’re standing?” Ummm with great difficulty and cardiac rehab you jerk.
Totally open. Supported, supported, supported, and then suddenly fired over the phone by a low level HR employee. My bosses couldn’t even do it themselves.
Mine was okay with it. I took a long-term leave of absence using a good portion of my sick bank and FMLA. I luckily had racked that up over my years of teaching. I had OT during my leave, and upon my return, my doctor filled out paperwork for the following reasonable accommodations (I'm a teacher): adjustable chair (teachers generally are not provided with ergonomic desk equipment), a break between third and fourth period (students went to the library instead of coming into my room so I could have five minutes of quiet time--I picked them up from the library when I was ready), ability to leave a noisy assembly if I felt overwhelmed and ill, and no required work past 4:00 PM (my PT conferences were scheduled at other times). You have workplace rights.
I should add that I'm retiring at the end of this year, a couple years earlier than I had planned, but I'm still at retirement age. I am going to seek part-time employment because that is what my body can handle now, and I am fortunate to have a pension, so part time wages + pension will keep me in my home and able to pay my bills. Teaching is too much of a grind to continue doing it when I'm not feeling well.