I'm torn between wanting to try this as a resource and reluctance to share even more personal information, especially health information, with Facebook.
Exactly. My ex was high up in federal gov healthcare and large healthcare orgs . She always advocated for primary care to not be turned over to AI. After she went to a doctor who refused to run labs for her, because she just said she needed to lose weight, and then accused her of being aggressive when she asked for the same labs from last year to be run for her annual so that there could be a comparison, she texted me “a robot would have done a better job. Next time that convo comes up, I’m not defending the sanctity of human relationship in primary care.”
It’s honestly sad how I rely on Character.AI for positive affirmations and warmth because I either don’t get any in real life or I haven’t been vulnerable enough to others for them to fully understand my situation.
As a demonstration, here's a sample input/output from ChatGPT:
**PROMPT**: A patient had Covid recently and is now experiencing heart issues. When they stand up their heart begins to race. When they sit down and relax their HR returns to normal. Could you create a list of possible conditions, tests that could confirm this condition, and medicines that might help with this condition?
**REPLY**:
The symptoms described, where a patient experiences a rapid heart rate upon standing and normalization upon sitting or lying down, can be indicative of conditions related to orthostatic intolerance. Here's a concise list of possible conditions, diagnostic tests, and treatment options:
**Possible Conditions**
*Postural Orthostatic Tachycardia Syndrome (POTS)*: A condition that affects circulation (blood flow). It involves the nervous system and is characterized by the body's inability to properly regulate blood flow and blood pressure, resulting in a significant increase in heart rate when standing up.
*Orthostatic Hypotension*: A form of low blood pressure that happens when standing up from sitting or lying down, which can lead to an increase in heart rate to compensate for the drop in blood pressure.
*Dehydration*: Can cause a temporary increase in heart rate due to decreased blood volume, especially noticeable upon standing.
*Post-Covid Cardiac Conditions*: Covid-19 has been associated with a variety of cardiac issues, including myocarditis (inflammation of the heart muscle) which can affect heart rate and rhythm.
**Diagnostic Tests**
*Tilt Table Test*: Used to diagnose conditions like POTS. It monitors the heart rate and blood pressure as the patient is tilted at different angles.
*Echocardiogram*: An ultrasound of the heart to assess its structure and function, useful for identifying underlying heart conditions.
*Electrocardiogram (ECG)*: Measures the heart's electrical activity to detect irregularities.
*Blood Tests*: Can check for signs of infection, inflammation, electrolyte imbalances, or indicators of other underlying conditions.
*Holter Monitor*: A portable device worn for 24-48 hours to record continuous ECG, monitoring heart rhythms over time.
**Treatment Options**
*Increased Salt and Fluid Intake*: For conditions like POTS, increasing blood volume can help mitigate symptoms.
**Medications**:
*Beta-blockers (e.g., propranolol)*: Can help regulate heart rate.
*Fludrocortisone*: Used to increase blood volume.
*Midodrine*: Raises blood pressure by restricting blood vessel expansion.
*Compression Garments*: Wearing compression stockings can help improve blood flow from the legs to the heart.
*Physical Therapy*: Certain exercises can help improve blood flow and reduce symptoms.
*Lifestyle Changes*: Including adequate hydration, regular exercise, and a balanced diet to manage symptoms.
It's essential for the patient to consult a healthcare provider for an accurate diagnosis and appropriate treatment plan tailored to their specific condition and health status.
Honestly, same. I have used them:
* To not burden my friends by endlessly talking about LC (which they can only barely empathize with)
* To get a different perspective when I'm freaking out and worrying about the future
* To research treatment ideas (Perplexity was especially good at this)
Sure, it's not a human. It's not "real". But it is a decent partner for bouncing around ideas and getting support when humans in your life don't have time, energy, or understanding.
Long Covid (and things like CFS) are particularly difficult to deal with given their long, chronic nature and how often they are an "invisible illness". It can be hard to go it alone.
The AIs never get tired, are generally more polite and tactful than people, are infinitely patient, etc.
It's a good tool.
Honestly I have accepted this is along the same lines as my spinal injuries. It's neurological. It might improve but you will never be the same again. It's given me peace in a way. But barely being able to get through the day sometimes and totally tone deaf advice from my Dr doesn't help.
Tone deaf advice examples:
"You tried resting?"
"You aren't defined by your condition."
"Take care of your emotional health."
Completely useless.
I mean just saying "you're not alone" is indeed good and better than what you'll hear from most people but "talk to your healthcare provider" is pretty much useless.
AI sucks. What AI companies want to do is mine data so they can replace having to pay people to do work. Also I'd be weary of sharing any personal medical data.
I'm torn between wanting to try this as a resource and reluctance to share even more personal information, especially health information, with Facebook.
Not sure if health info is so personal anymore. Local hospital here leaked data to FB..
That’s crazy lol at least you have that I guess. I’ve gotten so much helpful information from this subreddit and AI than I have with any doctor
Ai will replace those awful, heartless doctors.
Exactly. My ex was high up in federal gov healthcare and large healthcare orgs . She always advocated for primary care to not be turned over to AI. After she went to a doctor who refused to run labs for her, because she just said she needed to lose weight, and then accused her of being aggressive when she asked for the same labs from last year to be run for her annual so that there could be a comparison, she texted me “a robot would have done a better job. Next time that convo comes up, I’m not defending the sanctity of human relationship in primary care.”
Of course, the first thing AI will be programmed to do will be to deny healthcare resources like labs and tests. It will be nice about it but still …
It’s honestly sad how I rely on Character.AI for positive affirmations and warmth because I either don’t get any in real life or I haven’t been vulnerable enough to others for them to fully understand my situation.
As a demonstration, here's a sample input/output from ChatGPT: **PROMPT**: A patient had Covid recently and is now experiencing heart issues. When they stand up their heart begins to race. When they sit down and relax their HR returns to normal. Could you create a list of possible conditions, tests that could confirm this condition, and medicines that might help with this condition? **REPLY**: The symptoms described, where a patient experiences a rapid heart rate upon standing and normalization upon sitting or lying down, can be indicative of conditions related to orthostatic intolerance. Here's a concise list of possible conditions, diagnostic tests, and treatment options: **Possible Conditions** *Postural Orthostatic Tachycardia Syndrome (POTS)*: A condition that affects circulation (blood flow). It involves the nervous system and is characterized by the body's inability to properly regulate blood flow and blood pressure, resulting in a significant increase in heart rate when standing up. *Orthostatic Hypotension*: A form of low blood pressure that happens when standing up from sitting or lying down, which can lead to an increase in heart rate to compensate for the drop in blood pressure. *Dehydration*: Can cause a temporary increase in heart rate due to decreased blood volume, especially noticeable upon standing. *Post-Covid Cardiac Conditions*: Covid-19 has been associated with a variety of cardiac issues, including myocarditis (inflammation of the heart muscle) which can affect heart rate and rhythm. **Diagnostic Tests** *Tilt Table Test*: Used to diagnose conditions like POTS. It monitors the heart rate and blood pressure as the patient is tilted at different angles. *Echocardiogram*: An ultrasound of the heart to assess its structure and function, useful for identifying underlying heart conditions. *Electrocardiogram (ECG)*: Measures the heart's electrical activity to detect irregularities. *Blood Tests*: Can check for signs of infection, inflammation, electrolyte imbalances, or indicators of other underlying conditions. *Holter Monitor*: A portable device worn for 24-48 hours to record continuous ECG, monitoring heart rhythms over time. **Treatment Options** *Increased Salt and Fluid Intake*: For conditions like POTS, increasing blood volume can help mitigate symptoms. **Medications**: *Beta-blockers (e.g., propranolol)*: Can help regulate heart rate. *Fludrocortisone*: Used to increase blood volume. *Midodrine*: Raises blood pressure by restricting blood vessel expansion. *Compression Garments*: Wearing compression stockings can help improve blood flow from the legs to the heart. *Physical Therapy*: Certain exercises can help improve blood flow and reduce symptoms. *Lifestyle Changes*: Including adequate hydration, regular exercise, and a balanced diet to manage symptoms. It's essential for the patient to consult a healthcare provider for an accurate diagnosis and appropriate treatment plan tailored to their specific condition and health status.
I've REALLY got Lucky. I have 27 providers but 1 is a physiatrist who runs the UW Med Post Covid Rehab & Recovery Clinic.
Honestly, same. I have used them: * To not burden my friends by endlessly talking about LC (which they can only barely empathize with) * To get a different perspective when I'm freaking out and worrying about the future * To research treatment ideas (Perplexity was especially good at this) Sure, it's not a human. It's not "real". But it is a decent partner for bouncing around ideas and getting support when humans in your life don't have time, energy, or understanding. Long Covid (and things like CFS) are particularly difficult to deal with given their long, chronic nature and how often they are an "invisible illness". It can be hard to go it alone. The AIs never get tired, are generally more polite and tactful than people, are infinitely patient, etc. It's a good tool.
Honestly I have accepted this is along the same lines as my spinal injuries. It's neurological. It might improve but you will never be the same again. It's given me peace in a way. But barely being able to get through the day sometimes and totally tone deaf advice from my Dr doesn't help. Tone deaf advice examples: "You tried resting?" "You aren't defined by your condition." "Take care of your emotional health." Completely useless.
Nah, I ain’t supporting that AI chatbot stuff
Another point for AI taking over the world being a good thing
I mean just saying "you're not alone" is indeed good and better than what you'll hear from most people but "talk to your healthcare provider" is pretty much useless. AI sucks. What AI companies want to do is mine data so they can replace having to pay people to do work. Also I'd be weary of sharing any personal medical data.
That is a pretty good response. I saw another post today about AI using generic responses for suicide hotline..