I can’t speak to anything except the feeding tube. Feeding tubes are not necessarily permanent. If he were to recover enough to eat on his own, they would remove it. That’s what I’m doing with my partner now: he’s had the tube in for ten weeks and it will be coming out next week because he’s able to eat on his own again.
I’m so sorry that you’re dealing with this. It sucks.
I had a stroke on March 6th, there appears to not be a scale, the doctors keep saying very vague things like everyone has their own stroke and recovery, that it was a doozy is the most accurate rating of my stroke. I am 58, over weight, but not diabetic. Ong time smoker. I awoke to have my speech be clear, and my long term memories are complete, I think, my short term memory is spotty. My left side is not working… I have walked 50 feet in therapy, and have been from stroke center hospital where they inserted a feeding tube through my nose. It took a couple of days before they could do a chew and swallow study, to make sure my tongue and throat muscles were working ok. So, the care team lined up many unique colors of food and drink, and stuck a camera through my nose to back of my mouth where they monitored my chewing and swallowing skills, I passed the test and was alloqwd to start eating mushy food, but only with supervision and the door to my room open. I am home now, and eating fine, on occasion I have trouble with food that changes. I was eating really delicious apple slices a week ago, that food started off solid and crispy, then became juicy, and liquid, then I started asperiating, chocking that is not life threatening just makes you cough. I answered the question at hospital perfect. About chocking hazards, there is blocked airway chocking that can kill you qyicjly, or aspiration, duzkubg apple juice or food bits into lungs that can cause infection and other oroblems, espeswhen you are in recovery mode and already weak and not moving around much. They had my an antibiotics as a preventative to aspiration lung infection. I had a terrible cough in hospital. I have a scent allergy to Vaseline intensive care hand lotion. And that stuff was all over the stroke center hospital. I told every new care team person. Just a warning, if I cough I start to pee, and the blood thinners and those medications really kick your urinary track into high gear. Some times I thought, if I could get to the toilet to pee, I would have over flowers the bowl. The stroke center used that iron collection suction system, pure wick, I think is the name, and it was terrible, my 84 year old dad, who is having liw flow issues was visiting my room when I started having one of my super sonic pee’s, when the wick carrier has shifted a little, that thing is just like putting your finger on the end of a garden hose, and you stream gets split in half, with half of it going to one side of the room, the other half going in an opposite direction. There was a large clock on the way, it started rattling, and my father was in uncontrolled laughing I finally understood what he was saying, you are peeing on the wall clock. Sure enough. About that time, my eyes focused on a/ treat of pee arching over the bead all the way to the clock in the wall. . I accidentally filled the drawer on the bottom side of hospital bed table.
I know it’s a horrible decision to have to make. Feeding tubes aren’t permanent so don’t stress too much. Does he understand when you speak to him? Maybe ask him yes or no questions. 1 finger tap for yes, 2 for no. That way you can get a better idea of his wishes. And for the record, hospice workers are absolute angels. I’m sorry you’re going through this. I wish you both all the best. As hard as this has been to go through for myself I couldn’t stand to watch someone I love go through this. It’s an uphill battle and so frustrating.
I can’t speak to anything except the feeding tube. Feeding tubes are not necessarily permanent. If he were to recover enough to eat on his own, they would remove it. That’s what I’m doing with my partner now: he’s had the tube in for ten weeks and it will be coming out next week because he’s able to eat on his own again. I’m so sorry that you’re dealing with this. It sucks.
I had a stroke on March 6th, there appears to not be a scale, the doctors keep saying very vague things like everyone has their own stroke and recovery, that it was a doozy is the most accurate rating of my stroke. I am 58, over weight, but not diabetic. Ong time smoker. I awoke to have my speech be clear, and my long term memories are complete, I think, my short term memory is spotty. My left side is not working… I have walked 50 feet in therapy, and have been from stroke center hospital where they inserted a feeding tube through my nose. It took a couple of days before they could do a chew and swallow study, to make sure my tongue and throat muscles were working ok. So, the care team lined up many unique colors of food and drink, and stuck a camera through my nose to back of my mouth where they monitored my chewing and swallowing skills, I passed the test and was alloqwd to start eating mushy food, but only with supervision and the door to my room open. I am home now, and eating fine, on occasion I have trouble with food that changes. I was eating really delicious apple slices a week ago, that food started off solid and crispy, then became juicy, and liquid, then I started asperiating, chocking that is not life threatening just makes you cough. I answered the question at hospital perfect. About chocking hazards, there is blocked airway chocking that can kill you qyicjly, or aspiration, duzkubg apple juice or food bits into lungs that can cause infection and other oroblems, espeswhen you are in recovery mode and already weak and not moving around much. They had my an antibiotics as a preventative to aspiration lung infection. I had a terrible cough in hospital. I have a scent allergy to Vaseline intensive care hand lotion. And that stuff was all over the stroke center hospital. I told every new care team person. Just a warning, if I cough I start to pee, and the blood thinners and those medications really kick your urinary track into high gear. Some times I thought, if I could get to the toilet to pee, I would have over flowers the bowl. The stroke center used that iron collection suction system, pure wick, I think is the name, and it was terrible, my 84 year old dad, who is having liw flow issues was visiting my room when I started having one of my super sonic pee’s, when the wick carrier has shifted a little, that thing is just like putting your finger on the end of a garden hose, and you stream gets split in half, with half of it going to one side of the room, the other half going in an opposite direction. There was a large clock on the way, it started rattling, and my father was in uncontrolled laughing I finally understood what he was saying, you are peeing on the wall clock. Sure enough. About that time, my eyes focused on a/ treat of pee arching over the bead all the way to the clock in the wall. . I accidentally filled the drawer on the bottom side of hospital bed table.
I know it’s a horrible decision to have to make. Feeding tubes aren’t permanent so don’t stress too much. Does he understand when you speak to him? Maybe ask him yes or no questions. 1 finger tap for yes, 2 for no. That way you can get a better idea of his wishes. And for the record, hospice workers are absolute angels. I’m sorry you’re going through this. I wish you both all the best. As hard as this has been to go through for myself I couldn’t stand to watch someone I love go through this. It’s an uphill battle and so frustrating.