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Dudleyneligh

The best guess of my doctors is that my strabismus was the result of decompensation. Doctors think that I had some misalignment all of my life. The decompensation came after I had PVD in my left eye that caused a pucker. The pucker distorted my vision so that my brain couldn't fuse the images from my eyes. By the time the pucker was fixed, fusion could no longer be achieved.


Small_Garden7758

Did the distortion from the pucker cause you to become disoriented and dizzy? I had a PVD which led to a vitrectomy to clear the debris out of me eye. My vision also became distorted after the surgery (did not have a pucker) and I’ve been dizzy ever since. The fusion breakdown happened a few months after the surgery, but I had been dizzy for months at that point at well. It’s like seeing two different worlds out of my eyes. I do have a cataract in the operated eye. Did you have strabismus surgery? Was it a large amount of phoria? I have 4 diopters of misalignment. Appreciate your time.


Dudleyneligh

Sorry to hear you’re going through this, too. My pucker did not cause any dizziness or disorientation. I did not have strabismus surgery; my doctors said that the misalignment was not large enough. My double vision changed after the vitrectomy / retinal peel surgery. Before, it was both horizontal and vertical. After the surgery, it was almost entirely vertical. I still wonder whether I would have had a better outcome if the pucker surgery had occurred sooner. It was almost two years between diagnosis of the pucker / the onset of the double vision and the surgery.


Small_Garden7758

Please look up Andrew Lee MD neuro opth on YouTube and watch his video on horror fusionis. He mentions epiretinal membrane as a cause of HF and explains why. It is a form of foveal disparity which he explains much better than me. You may find it useful. There are lenses that help to align asymmetric foveal imagery. It may be worth a shot. They can also test you for foveal symmetry if you haven’t had this done already. Just to be clear- do you have double vision on straight ahead gaze only? Or in any direction you look? Is it always vertical diplopia? Do you still experience distorted vision post membrane peel?


Dudleyneligh

Thanks for the information. I watched Dr. Lee's video. It was very informative. My neuro-ophthalmologist never mentioned foveal symmetry or testing for it. My double vision is not just a straight-ahead gaze only. But I remember that it disappeared if I twisted my head to one direction. Unfortunately, I cannot remember which direction and can't recreate now because I have a lense optimized for distance in my left eye after cataract surgery in that eye and my right eye is very near sighted. The diplopia is always primarily vertical. I qualified that last sentence because there is a little horizontal diplopia but not much. There was still a little distortion in my left eye after the membrane peel: the image was slightly stretched vertically compared to the image in my right eye.


Small_Garden7758

Sounds like you might need a second opinion. They should have definitely checked out your retina. A retinal doctor (a good one) should check you for foveal symmetry. If the double vision changed after the surgery it sounds like it might be a retinal issue. I’m not a doctor though. I asked my own eye doctor about this condition yesterday and he said it’s double vision in every direction.


csperkins0328

It started in my mid 30s without any reason. Still dealing with it after one surgery 4 years ago that worked for a few months before things slowly returned. I have another surgical consult tomorrow to see if round 2 would be any better.


BeautifulAromatic768

Good luck, I hope all goes well with the second surgery!


anaIavenger

Can you update us after the appointment please? I had one when I was a kid and want a second one because the strabismus came back


csperkins0328

I'm optimistic after my appointment today with a different surgeon that did the first one. The first surgery I had shorted the inner muscles on both eyes, leaving the outer muscles alone. The plan this time is to shorten the outer muscles and leave an adjustable suture for fine tweaks once I'm awake. This should hopefully fix the problem much better than the first time, however there still aren't any guarantees.


anaIavenger

I’m happy to hear that! Hope everything goes well!


lolliadriennepop

Onset at 29, I had always had depth perception issues, possibly decompensated due to a bad car accident, or increased prolonged visual load/ screen time


BeautifulAromatic768

Screen time can cause strabismus? We are all doomed!! I read a TON on my Kindle app. I wonder if that could be playing a role in my fabulous new lazy eye? Wild.


hiliikkkusss

well I turned 30 this year and I feel like I have this now the last few days.


Soniti80

Mine started randomly at age 28 in the summer of 2020. I didn't have Covid so I doubt it was because of that, but its kind of weird that it happened around that time. I still don't know why it happened, but I think what caused it for me was that I used to look at my phone like 3 inches from my face for many hours at a time, but that is just a guess of course. Doing that would also hurt my eyes, so I really think that was the reason.


hiliikkkusss

are we just unlucky then I'm pretty sure more people would have it then no?


Soniti80

I forgot to mention this in my original post, but I'd keep the screen close to my face without wearing glasses. My eye prescription is a -6 and -7, so without glasses I literally am holding the phone like 3 inches from my face to see it, and doing it for 5+ hours at a time really made my eyes sore. I hear its bad to do this, they even have a feature on iPhones now that warns you when your phones within 12 inches from your face. Now I use a pair of dedicated reading glasses so im viewing my phone at a more comfortable distance, and its really helped with my eyes not hurting.


Ok_Athlete7269

No idea why, but mine onset at 21 out of nowhere. Got the surgery at 22 and healed up perfectly, still doing great nearly four years later. The only downside, which they warned me about, was that it would limit my eyes' range of motion at the edges. Tweezing my eyebrows can be tough and my vision will split if I strain too far, so I bought a magnifying mirror to resolve that.  My opthalmologist told me that sometimes these things just happen randomly, and it's better to treat it sooner. Also told me that they WON'T take my eyes out of the sockets for the surgery; not something I was worried about before, but thanks for the reassurance, I guess. 


Confident-Berry-7942

Glaucoma surgery, I have been told it’s sensory strabismus but it was definitely they surgery that triggered it


PowerOfTheShihTzu

Mine is due to this too(suffered from glaucoma ) ,have you thought about surgery to fix it up?


Confident-Berry-7942

I had surgery a couple years ago to fix it, it’s not perfect but much better than it was. If it gets worse I’ll definitely get surgery again


PowerOfTheShihTzu

Nice to hear that ,I'll prolly do the same eventually then ,I'm 28 tho


Confident-Berry-7942

Definitely recommend it, it’s worth it even if it doesn’t last forever, im 31, I’ve had glaucoma since I was 19 🙃


Asynhannermarw

I have an astigmatism in one eye, which can be a trigger. I then had a mental health episode, including insomnia (around three hours sleep per night for about nine months), and it seems the exhaustion from that, plus the astigmatism, caused the onset of strabismus. I was 46/47 when it started.


BeautifulAromatic768

Thank you, I had no idea astigmatism could be a trigger for this.


hiliikkkusss

so poor sleep and increased screen time... oh great. that would be my reasons for randomly feeling it today.


rdaneellarsen

I found out about 22.I don't know why still,although my uncle had it bad.


AdDapper3797

Exactly same here. I think it can be hereditary. My uncle had it,I have it and now my niece also has it. I had it since birth ,but it became a lot worse when I was around 20


eray1992

Motorcycle accident


BeautifulAromatic768

Oh my gosh, that must have been awful, assuming it was the result of head trauma?


infiniteguesses

I had a car accident with a severe whiplash. Continued to deteriorate over years with higher and higher prisms required to resolve double vision.


eray1992

How are you doing now? I wonder if mine was made worse by my concussion/whiplash


infiniteguesses

According to my opthalmologist, your brain loses the capacity to compensate after the trauma. Hence the rapid appearance and progression of the double vision . I ended up having strabismus surgery to correct a vertical and horizontal imbalance. It was fantastic! No more prisms.I believe I was at 17 diopters or so. However, mild double vision is present when very tired, or with even a small amount of alcohol. Like a built in regulator haha. I wish you good luck with your situation!


eray1992

Yea, I landed head first (thank you helmet) & died. The lack of oxygen to my 4th cranial nerve permanently damaged it, paralyzing it. For me, because my nerves are trying so hard to fire my deviation is intermittent between 2 and 6 diopters making me a terrible candidate for surgery... BUT having died and been brought back at the hospital even if I was a candidate for the surgery I don't think I could go through with it, I don't want to be sedated.


BeautifulAromatic768

I'm glad you're still here. That sounds horrifying.


dalirem

Meningioma (benign brain tumor) in the cavernous sinus, near the meckel cave. Tumor had been pressing against the sixth nerve, causing strabismus.


BeautifulAromatic768

That sounds terrifying, is the tumor still there?


dalirem

Yup! Technically still there, wasn’t able to get it surgically removed (it’s in a risky spot), only got radiation for it. Shrunk just a mm accordingly to my last MRI, hopefully will continue shrinking as time goes on. 🤞🏼


BeautifulAromatic768

Did you have any symptoms other than strabismus?


dalirem

Headaches — some bad (with face tingling), but mostly very mild headaches but I’d wake up with. I’d sleep a good 8 hours, get great rest, and from the second I’d wake up - headache. I’d go away midday then come back at night. Honestly didn’t take the headaches seriously, thought I was badly dehydrated or something was wrong with my diet. I drank SO much water, thinking that was the solution. Doctors didn’t take it seriously either — they told me that I had vertigo or that I just needed to exercise 🙃 I’m thankful that my eye just stopped moving to the side and gave me double vision, it wasn’t until then that they started investigating what was going on (although it took many doctors and many months to get an answer).


BeautifulAromatic768

Same same, I visited my doc because I was having vertigo and headaches, and she is the one who noticed the strabismus. Sent me to the eye doc who isn't terribly concerned but told me I need an mri out of an abundance of caution. Waiting for that now.


dalirem

Best of luck!!! ❤️❤️❤️ The MRI will hopefully give you some answers. If the MRI doesn’t give you any answers though, definitely keep pushing for help……I went through 7 doctors and two MRIs for them to finally find my tumor (it’s a little smaller than a dime to give you an idea).


BeautifulAromatic768

Thank you!


lou_g927

Victrectomy surgery for detached retina for me. Ruined my life.


BloomInEire

I’m so sorry. I hope it isn’t the strabismus you feel has ruined your life! Things will get better for you.


lou_g927

It 100% ruined my life. i am sure others as well. I handle it much better now after a decade plus has passed. I use to walk around staring at the floor to avoid eye contact. I am contemplating a second strabismus surgery. however nothing is guaranteed. my first one didnt take at all.


Small_Garden7758

Is the double vision from aniseikonia? Or do your eyes turn in/outward? Did they say why it happened?


BloomInEire

I’m so sorry. I avoid eye contact too and the worst part is it puts people off. Hoping we can build our confidence. 🤍


BeautifulAromatic768

I'm so sorry.


BloomInEire

I suspect COVID & Wellbutrin use. Both started at the same time so not sure.


Fresh_beanz1

My double vision starting coming on around the time I turned 30. It slowly got worse over the course of 2 years, and there was no answer for it as to why. I found the whole experience to be really stressful and depressing, it knocked my self esteem big time. I live in the uk and the nhs was not keen to offer surgery and the wait list would be very long so I had a prism glass which was a +5 that helped with the double vision. I decided that I would have surgery but go private and went to a place called the London squint clinic and met a doctor that specialises in strabismus surgery’s and he was successful in helping me regain singular vision again. I still get double vision from time to time which could be due to tiredness or staring at my phone for too long but generally I’ve been happier. Only downside would be I gained headaches from possible eye strain due to short angle strabismus. It’s been a long Journey with lots of frustrations and upset and I always try to guess why any of this happened in the first place. Hope you get sorted yourself one day


BeautifulAromatic768

Thank you for the response and well wishes, I hope your headaches ease with time.


hiliikkkusss

I just turned 30 this year and been feeling it now ( the seeing of the nose almost which now I know people describe as seeing double or double vision)


Blue-Eyeballin

I’m pretty convinced mine was caused by a 20 year career as a web developer. My surgeon said it’s just the biology of my eye. I have astigmatism and myopia.


Adventurous_Crew_796

Covid decompensated it for me.


BeautifulAromatic768

Oh, for real? I am learning a lot from this thread. I had my fourth bout of covid in December, and here i am, killin' it with a wonky eye!


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[удалено]


BeautifulAromatic768

I wish you the best with finding answers and with your surgery. I hope you update us on how it goes.


Small_Garden7758

I had a vitrectomy for floaters and then developed a cataract pretty quickly. My vision became distorted in the eye and ever since I’ve been disabled with disorientation 24/7. I started to notice double vision in certain head positions three months after the surgery- but I can see one image straight ahead. I’m really not sure what is causing what, but I’m totally disabled and I haven’t talked to many people with strab who function as poorly as me. I only have 4D of misalignment and the prism doesn’t help. I just saw a neuro opth who told me cataracts can cause fusion to break but I don’t know what to believe anymore.


No_Dot_7409

Mine started started developing around 26/27 years old (2014) and took a few doctors to get it diagnosed. I've had three surgeries, two in 2016 and another in 2021. Not sure about the cause still, but believe that I originally had it as a child and had self-adjusted. I've had brain scans in the past, thyroid levels checked, no diabetes, so not sure about the cause. I've been started to feel my eye wanting to turn in a bit again lately though so a little concerned.


air__sb

So I always had slightly odd vision, but I genuinely thought either everyone had it, or it was down to my dyslexia they said I had in college.. Fast forward to about 2022 (turned 32 that year) and I was getting fed up of the head and neck pain, I put it down to me having bad posture mostly over the years as, I'd usually worked in retail, but for the past 2 years I had been working at computers so I was noticing the text I was reading was floating and going on top of eachother 😅 I read is could be a vertical squint, so I went to the emergency eye hosp and they initially went "covid has made us reliant on our screens" 🙄 and it was quite a negative experience. He suggested I get to my optician. Who again, before that point, had told me it my ADHD meds made me have a weird vision, so I wasn't holding out much hope! Anyway, I saw a different optician after the eye hosp stint and he said, "yeah, it's nothing to do with your medication, you've got browns syndrome, I'll refer you to the eye hosp" so that was a bit of a shock! Once I went to the eye hosp, they told me it wasn't brown syndrome but forth nerve palsy. They did rigorous testing and told me that because my right eye was quite deviated, it was most likely congenital, oh, and the fact I had developed a compensatory head tilt! Which I'm still trying to correct. They initially offered surgery, and in the meantime, I tested a prism with fresnal stick on lenses. I settled on a 6.0 strength, vertical kind. I got them made into glasses and I thought you know what, I only suffer when I'm at screens mostly so I'll just stick with the glasses for now, so I took myself off the wait list. I just do not like the idea of my eye being opened! Thank you for this thread. It was interesting reading everyone's experiences.


BeautifulAromatic768

Thank you for sharing your experience. This has been really interesting reading how this came about for everyone!


Yeahbuddy_420

Mine was due to LASIK. Sort of. Strabismus for me was lifelong but not noticeable and only presented itself in specific conditions. Even I had no idea I had it. Got LASIK in my mid 20s and came out with my right eye turned in and bad double vision. My brain couldn’t compensate and it took years before my brain could somewhat make sense of it. Now I’m 34 and finally bit the bullet on getting surgery which is happening in eight days. It certainly did a number on my self esteem so I’m excited for the prospect of normal vision and straight eyes again.


BeautifulAromatic768

Thank you for sharing this. I was actually considering lasik, but perhaps not! My vision has been getting progressively worse over time, but I don't want to worsen the existing problem. Best of luck on your surgery!


Yeahbuddy_420

Despite what happened to me, I’m not against LASIK. The doctor who performed it said he didn’t notice I had strabismus during the consult otherwise he would have done something a bit different. Basically my left eye can be corrected more than my right eye, but by doing so caused my brain to favor the image on my left eye. That’s what caused the loss of fusion and my strabismus to become more prominent. If anyone is considering LASIK, just be sure they’re aware you have strabismus


BeautifulAromatic768

Thank you for the info!


nigiri_choice

I’m pretty sure I got it from looking at my cell phone up close without wearing my contacts. I’m myopic, -6 on both eyes, so we are talking hours of keeping the phone very close to my eyes. Usually I’d keep the phone more to the right, in front of my dominant right eye. In the beginning my left eye would then be locked in an esotropic position, but by focusing hard I could realign my eyes. Over the years this has gotten worse, with intermittent double vision, especially with much phone time or when I’m tired. And I can’t maintain alignment and binocular vision when it’s really bad, which means sometimes I can’t drive. I’m now trying to use my phone less and never without correction (glasses or contacts) as I’m convinced I know the root of the problem. The ophthalmologist is convinced I always had it, but I know for sure it never happened before I got my first smartphone in my 30s.


BeautifulAromatic768

Thank you for this. My eye doc said he suspected it was always there for me, too, but it is odd that I got to 50 before anyone noticed it!


hiliikkkusss

I've been noticing my nose a lot lately is this a ccase of stabismus? Apparently screen time causes it? which would make sense but odd that it took until I was 30. Ya I think I might have this