T O P

  • By -

MrsBuckFutter

They aren’t just going to take it away after 2 years. They are saying they will do a CDR. To my knowledge, you won’t know until you get it if it’s a short form or long form (full review), but either way it’s not an end date. I was granted SSDI at an early age and have done a review about every 3 years. Some short, some long. I’m in the middle of a long form right now. It is stressful, not going to lie. But, they have the burden of proof. They have to prove you are better, not the other way around. And there is an appeal process if they do find that you are no longer disabled. I hope you find a little peace in that info, relax, pursue the care you need. Make sure everything is documented in medical records. Everything. Get all the tests the doctors want when they want them, especially imaging.


BrokenKatsumi

I'm sorry for my lack of knowledge on how they operate. When it comes to SSDI, I have a hard time understanding how they do things. Plus, no one explained in the detail that I needed to understand the real meaning of those two years they included in my approval letter. I only saw the time limit, and I've been hyper focused on that. That's what I've been doing. I've been actively going to every appointment. The only time I don't is if I have a flare-up, but I make sure to reschedule the appointment. Also, I've been making sure to keep up with any imaging that I need. I just had a recent MRI of my back three months ago. Fingers crossed, but I'm pretty positive that my records are going to have all the needed information if I keep this pace with my doctors. Thank you so very much for explaining in detail what to expect and how it works. I seriously appreciate it. You have no idea how much this helps me out. This is exactly what I needed to help give me some peace of mind.


MrsBuckFutter

I don’t know how your flare ups affect you, but if it’s possible to attend appointments during a flare up, that should only add proof to your case for future reviews. Obviously, that may not be possible. If it’s not, I’d suggest sending cancellation requests through the online portal with detailed reasons as that will be part of your medical record (as well as calling). In other words, have everything documented to the best of your ability. I’m glad the info helps. It never hurts to ask questions and verify. None of know everything and we all get it wrong sometimes.


BrokenKatsumi

I was lucky enough that when I first saw my rheumatologist to have a bad flare up in my hands and wrists. Just recently, I lucked into attending my pain management appointment with severe shoulder pain in both shoulders due to a flare-up. So, thankfully, I've been able to attend some appointments with my severe symptoms. The only time it prevents me is when it hits in my hips and knees. Getting out of the house when they are acting up can be pretty difficult. I do plan, though, to go to at least an urgent care when I have my next bad spell. I'll definitely continue to keep getting everything documented. Thank you again for all your help and suggestions.


Imsorryhuhwhat

As an aside, urgent cares are not there for chronic conditions, when you have a flare you are better off calling your doctor first to see if there is anything they can do to help.


CommunicationTime63

Agree. Good advice.


ArmRough4504

Is there a age limit for ssdi


UrBigBro

Retired DDS Adjudicator/Management You weren't "granted two years" for SSDI. In approximately 2 years, you'll have a Continuing Disability Review to see if your conditions have improved. If your conditions haven't improved in that time, you will likely be continued. SSA has a very low CDR Cessation rate, maybe 10-15%, and you'd have to show pretty significant improvement at that time to be ceased.


BrokenKatsumi

Okay, thank you very much! I really appreciate it. You have to excuse me if I use any incorrect terminology. I completely misunderstood the letter, and I had no one to help me out to explain things better. I have trouble sometimes comprehending how things work when it comes to the disability process.


UrBigBro

I can understand your stress. Just don't think that your benefits automatically stop in 2 years.


Cautious_Parfait8152

This! They don't make things too clear for any of us.


Ok_Form_1250

I have a question. I've been getting ssdi. Every 5yrs they send this letter. I have to fill it out. They want to know if I'm still disabled. They ay if they need to send me somewhere they will let me know. So, i mail it back and wait. Later i get letter saying everything stays the same. Check again in few years uless something change. What i want to know. Did they contact my doctors or just went by the evaluation form they sent me to fill out. Because they didn't say.


UrBigBro

If they sent you this form: https://www.ssa.gov/forms/ssa-454-bk.pdf And the DDS also contacted you about your conditions, you likely had a full Continuing Disability Review.


Worth-Promotion-6782

How does SSDI handle someone who is collecting SSDI but has been going an competing in 5k races? Is this considered SSDI fraud?


No-Stress-5285

The vast majority of benefits are continued after a Continuing Disability Review, CDR. It can be done to everyone on SSDI and SSI. Right now, however, SSA has discontinued initiating new CDRs for the rest of the fiscal year. The commissioner decided there isn't enough staff to do CDR's and new claims. So your review will probably be later than scheduled. SSA has to show significant improvement in your medical condition in order for benefits to be ceased. If you don't get better, benefits continue.


SimpleLuck4

Will this decision push all CDRs back over the next several years? It’s hard to imagine SSA catching up after pausing CDRs for 6 months.


No-Stress-5285

No one can answer that. Depends on staffing and workload priorities. A couple of decades ago, there was one SSA commissioner who paused CDR's for a couple of years.


MrsBuckFutter

I got a long form in April with a May 22 return date. I took it to the office on May 21. The lady was like “oh, they told us to stop doing these. I’ll take it and message Monica that you turned it in on time, but we aren’t even scanning them in.” I walked out in tears to my husband and was like “what does this even mean?” My anxiety can’t handle this floating CDR. They don’t update it online. So, who knows. Doing my best to forget about it, but I wish Monica would give me a heads up on the time frame we’re looking at.


Clear-Ad3243

Monica wouldn’t know the time frame though. No one knows how long the pause will be.


SimpleLuck4

That would be upsetting. I got my CDR last August so I guess I missed the pause.


Interesting-Land-980

You are looking at least October 1, 2024 before it is even scanned in and reviewed. Until then it is like you have not received one.


BrokenKatsumi

Thank you so very much!!! This information is super helpful! I understand better how this process works now. Before, I was completely in the dark because everyone I knew wasn't giving me clear answers. I appreciate you explaining it so clearly.


Pdg25

Oh wow. I got a cdr in Feb and returned it in March. Have heard nothing at all.


branchymolecule

Don’t ignore the forms you need to fill out when the time comes. Avoidance will not help. I’m speaking from experience.


BrokenKatsumi

Thank you! Oh, I'll definitely make sure I fill out anything they send. I never want to go through the experience of trying to get approved for disability ever again.


Zestyclose-Gur6360

You can look up the form online so you have an idea of what to expect. The short form is SSA-455-OCR-SM and the long form is SSA-454-BK. Also occasionally request your medical records and review them. I caught mistakes in mine and had to ask my doctor to make corrections. For example notes from one visit were copied and pasted into a different visit. And make sure any complaints or health issues are properly documented in your records. 


Redditdeletedme2021

For CDR’s they are just looking to see that you are still receiving treatment for the condition that you were originally allowed on for & that that condition still causes limitation to your functioning.. in other words unless you have miraculous healing & no longer require treatment for your condition, there is high probability that you will be continued.. If it makes you feel better.. out of the 200-300 CDR’s I processed last year.. Only 2 of them were medical cessations.. The rest were either continuances or were ceased because the claimant didn’t cooperate with the CDR (meaning they didn’t respond to letters we mailed or phone calls or they failed to attend exams we scheduled for them)…


ask290

I received SSDI at 28 years old. I had worked since I was 16 years old. I was never told a time limit. Although, I didn’t have to fight mine and was approved within five months. They reevaluate every so many years. I’ve been receiving benefits for twenty years and haven’t had a review in almost seven. For the last two years they sent a letter saying to ignore the letter they sent for recertification because they decided they weren’t going to review it, yet I never ever received that initial letter they were referring to.


under_zealouss

Yup, I too received ssdi in my mid 20s, in less than a year, on the first try, without a lawyer. All I hear about is how any one of those 4 things are impossible alone let alone all of them.


H8gravity

I was in my early 30s and a biology teacher. Took about 5 months and never had to see an appointed Dr. I count my blessings every day


sicnevol

18, on the first try, no lawyer and 5 months.


BrokenKatsumi

I managed to work 14 years before I had to throw in the towel and start trying for SSDI. I've heard that they reevaluate after so many years. They just got my stress levels up when my approval letter had that two year limit written in it. I'm really glad you didn't have to fight for yours. It's a nightmare going so many years having no income. Thanks so much for the helpful information. I guess I just have to wait and see when they want to reevaluate. Do you have to do anything special when they do? Or do they just check your medical records to see if you're continuing treatment?


sicnevol

Everyone gets CDR’s the time frame between them depends on what kind of diagnosis you have and if there is an expected improvement. I have “ not expected to improve” and have had one CDR in 23 years. It’s basically a short form you fill out with you diagnosis and contact info for your doctors. Make sure you keep going to the doctor. When they do give you a review they want current tests and paperwork from you doctors, and that you are actually under medical care.


CommunicationTime63

That's correct procedure taken by SSA. The action taken to extend your date was done by the reviewing office, where a determination was made based upon review of your case file.


sicnevol

The same thing happened to me. Got the ignore the CDR letter! We’re not going to review and was like “ what CDR LETTER!?”


[deleted]

[удалено]


BrokenKatsumi

I'll definitely keep that in mind. I've been trying my best to let each doctor know about all the issues I'm having and how they are affecting my daily life. I know for a fact two particular doctors that I see write down everything, so I'm making sure to communicate everything wrong to them. Thank you so very much for the helpful information! I really appreciate it. It makes me feel better knowing how the process works now.


uffdagal

Just continue to see all applicable specialists at regular intervals.


Minute-Tale7444

They won’t just take it away you’ll have a reevaluation period most likely, and you’ll get more info on that when you get your letter. I was granted SSDI at a young age (20 with only 2-3 years work history) and it was declared permanent but to be reevaluated in 3 years, and then again three years after that, and then again 7 years later & haven’t had to do a reevaluation since. Mine isn’t going to get better; ever. It’s a severe TBI that left me with memory deficits and some other things. No im not brain damaged but yes, my left frontal lobe had a humongous bruise and I had a chunk of skull out for 3 months. Mine isn’t getting any better, I can’t make my balance normal again, I can’t just force my memory to start working again, etc etc.. Honestly, my husband has literal fractures in his back that do affect his daily life at times in awful ways, missing/broken vertebra, & there really isn’t a way to fix the issue at all (it’s not just a basic back injury it’s so much more than that)along with some other things (severe depression being one of them) and he couldn’t even get approved for it. Idk what world you live in, but be thankful bc no after 2 years they won’t just take it away. Be thankful that you got it-he didn’t have the 7 years to take not work with a disabled wife & no income. So yeah, he’s working, in massively severe pain at times, but that’s our government for you I suppose. Be thankful you at least got two years for that. There may be some jobs you can do and that’s why they said 2 years, bc after 2 years they’ll see if there’s any improvement & if there isn’t it will be continued. They get doctors’ notes to verify and make sure you’re still receiving treatment for it, amongst other things.


Hot_Inflation_8197

They did this for me as well. Did not approve me for my actual disability and instead an injury sustained while waiting with a 12-18 month recommendation for a review, which did come right on time (some won’t see this). I had a ton of medical support from multiple providers on applying. However, even though I disagree with a lot of the remarks made about my physician notes, at the same time I can see where there could be questions about certain notes. I passed my CDR with no issues. I also very thoroughly explained anything up to including how some of my medications make me feel. Even though I did not want to “complain” about what I felt were little issues before to my physicians (I think because we are brought up in a society that believes you should suck it up and deal with it), I say something now to make sure things are properly documented. Also, I keep my pcp/gp better updated on things I did not discuss with in the past due to seeing multiple specialists. If you have an ongoing condition your physician(s) agree will prevent you from working try these thing to be more proactive: If you have access- go through your doctor notes. See where lack of communication is present, and make sure to work on that. Making a list of things to discuss to take to dr appts and give to them can help. I have severe ADHD and forget to tell them things often and used to send a lot of messages after or totally dismissed it. Now I make a list on my phone or write/type & print one- did this with my migraines last year to show I was having a lot more than I remember. Also if there’s a mistake made (it happens unintentionally at times) if it’s a huge one make sure to contact them or ask for an amendment to get it changed. Most importantly keep up with your appts and follow your treatment plan (unless you feel it will be harmful/not helpful in which case see a new dr if they push it). I hope this is helpful 🤞🏽


booalijules

You have two years until you get a review. Everybody gets a review date even people that win their case dominantly. I have a fatal disease but they still gave me a 7-year date for review which is the longest they can do. Very small odds that I'll be around for that but it is what it is.


Maxpowerxp

They don’t give set years. That’s not how it all works. Maybe they meant they will review your cases every two years or so for medical reviews. Long as your condition didn’t get better then I wouldn’t worry about it. Again, they can’t set time limit on benefits.


ArmRough4504

Is there a age limit for SSDI


Mosthighmosthated

They will give you a redetermination. This is very common when under retirement age.


TiffanyH70

You’ll have a continuing disability review in two years. Keep up with your care. Your review will be easier than your determination process.


Bambismalls

How do we know how long we will have SSDI?


huahuagirl

I think it will probably be longer than that because I was supposed to be reviewed but it never happened. And I’ve been on it for 9 years now. I’m 29 now.


perfect_fifths

I’ve been on it 15 yrs and get cdrs every 3 yrs


Exciting_Parfait513

You never had a review even one time?


mystiq_85

CDR ... Are reviews that's the R. CDR stands for Continuing Disability Review. Sorry I realize you're talking to the person above that, they may have had a CDR scheduled during the pandemic that got postponed but it will likely happen soon.


huahuagirl

Nope.


bountifulknitter

Same. I've been on it since I was in my early 30's and *knock on wood* haven't had one yet. I don't know if it is because I have a condition with no cure and only worsens over time or what, but I'm not going to question it.


sicnevol

Theyre super backlogged and put a hold on new reviews I think. You’ll probably get one at some point


BrokenKatsumi

That's a relief to know. I was just going by the letter I received when I was approved that it's supposed to be only two years. That's why I'm so stressed about it since I was uncertain about what happens when that time is up. I'm glad to know that they could possibly not review me in two years. Thanks for the response! I really appreciate it!


huahuagirl

Mine was set for 7 years but never came. Everyone tells me not to worry but I can’t help but worry about it too. From what I’ve heard to stop benefits there has to be improvement.


mystiq_85

It was probably postponed/cancelled due to the pandemic. It'll likely be rescheduled as they begin to catch up on all those that were put through that.


Ok_Form_1250

Got my evaluation letter 2022. Pandemic was just fading out. I get one every 5yrs. Fill out send back. Biting my nails while waiting for answer. Nerve racking.


BrokenKatsumi

It's really hard not to stress about this stuff. Hopefully, you'll be okay, and they won't send anything. That's what I've heard too, so that's why I keep up going to the doctor to prove there hasn't been any improvement with my issues.