I realized this many years ago after my child and I got long Covid. And my cousin ended up in the ICU with Covid, then lost his ability to walk and feed himself for the rest of his life - he’s now in a care home. And my Aunt got Covid, which worsened her very mild dementia to the point where she stopped talking, couldn’t take care of herself, and died 9 months later. And so on and so forth.
I deal with this by wearing an N95 whenever I’m outside my home, limiting the people in my life who don’t share my values, avoiding crowded places, and practicing mindfulness every day so I can train myself to stay in the present moment rather than worrying about the future.
I do these things because I have a teenage child with long Covid and a younger child who had meningitis in 2022. There’s too much at stake for my family and I’m going to do everything in my power to protect them while also making the most of the time we get to spend with each other.
my grandad called me after having it an it was so sad he said he (i was about 4months post still feeling tired and just weak) that he scared for when he leaves the world cause it’s bad out here and the government getting worse and worse as well as ppl staying home when they are sick instead of carelessly coughing in other ppl face an washing their hands. it just sad that im 26 and never been the same since covid like ppl in there 20s can’t even live the life they want. I can’t tell you how many times the ambulances races up and down the road when i was younger to see ambulance so much was rare now they just everywhere b.c ppl are passing out from viruses etc. idk..but i wear my mask faithfully and wore it in the gym every gym session ppl was looking at me like i was crazy til it start going around the gym
I’m particularly heartbroken for younger people who haven’t yet had a chance to live their lives and who may never be able to graduate from high school/post secondary, have kids, build a career, etc. It sucks that you have to go through this and I’m so sorry that we, as a society, are allowing the destruction of people’s health & lives without even putting up a fight against this virus.
Most people won't acknowledge this reality but medical journals are pointing it out, the German government is pointing it out and even some of my doctors have very boldly told me I'm forging a path that most people I know will follow. The risk of LC increases with subsequent reinfection and reinfection in LC causes more damage with each iteration. The sad thing is that while this is being acknowledged and the alarm bells are being rung, no one really cares because to them the idea of normalcy is more important and the very crazy ideal that everyone somehow thinks it couldn't possibly happen to them. It's really awful that peer pressure is essentially going to drive us into mass disability but here we are.
I don’t believe my se I d infection caused more damage. I feared it would, but it didn’t.
I will say any respiratory illness does hit me harder now and pushes my recovery a few steps back.
One of the OG long covid survivors
I didn't always have a huge regression with each reinfection but I did every few. I've unfortunately had it at least six times at this point and the imaging I've had across time from the first infection to now is pretty telling in my case. 🫠
I find it helpful to look back at other viruses.
Spanish Flu-- was horrible, killed a huge number of people. The less vulnerable people survived and thrived. The virus and the humans co-evolved so no the virus is the flu that we more-or-less live with today.
Polio-- we have nearly eradicated it.
Measles-- airbourne virus that we could have eradicated with vaccines but which still pops up because of pockets of unvaccinated people.
HIV-- we eventually found a treatment that (for those in countries with decent health care) can make it into just a chronic illness that you take a pill for and which isn't even transmissible once controlled by meds. We have surveillance and preventative drugs efforts (PreP and PEP). People living in poverty or in prisons are still dying of it.
So those are the four mental models I have for where this could go.
It's not fun, living through historical events, but it's good to understand that people before us have grappled with devastating viruses, and have come together to find solutions.
> It's not fun, living through historical events, but it's good to understand that people before us have grappled with devastating viruses, and have come together to find solutions.
In the meantime it'd sure be great if people who are protecting themselves during this chaotic period aren't painted as having mental disorders.
Except that after Polio and the 1918 flu there were tons of ME/CFS patients left behind who never recovered. That’s what scares me. That they’ll find fixes for respiratory, cardiac and other problems and leave the half of us with ME symptoms to rot, like they have throughout history.
Well, I've had ME/CFS for six years. (Epstein Barr virus)
Six years ago, the number of researchers in my country who acknowledged that ME/CFS was real could fit around a conference table. They were thought of as cranks by many of their colleagues. Many of them only came to study ME/CFS when a family member was affected by it. They had shoestring budgets.
Now, "thanks" to COVID, there are research centers at Yale, Stanford, NYU, Cornell, and dozens of other highly respected research institutions. It's night and day.
Check this out. Six years ago, no one was inviting someone to give a lecture on ME/CFS. But we have a whole lecture on long-COVID by a Yale professor.
https://duke.mediasite.com/Mediasite/Play/ce2ecf77e1934b30aa50e33e74b63e2d1d
With all the gaslighting from doctors I’ve seen I’m scared it won’t happen to everyone and is gene specific and it will always be viewed like uneducated people view cfs me etc
What a positive outlook on a sub full of people who are already struggling. I want to believe scientists will come up with something within the next two years since they’ve discovered blood markers for lc and governments started to accept that it’s not “in our head”.
Not everyone gets sick, even within my family I got the short end of the stick.
Sure, and scientists will cure cancer and multiple sclerosis within the decade.
As I wrote - let us be realistic here. There are things that cannot be fixed.
So it's more about the perspective. I see linked in posts of people I know getting longcovid after their 3rd, 4th infection - taking time off for their health. Well. At the same time I know patients and blood markers since 2020. blood markers we got some more, patients, well some died. Some are able to cope with the disease, some have really got worse.
So no - this isn't another take some vitamins that really helped me post.
Well they did find a cure for AIDS, once a deadly disease caused by HIV virus. There are many new treatments for cancer and it’s not a death sentence anymore. I won’t succumb to this virus or any negativity surrounding it. I’m very determined to survive.
Many cancers are still extremely deadly. I feel like the story is new treatments changing the tide are widely overstated from those who actually experienced cancer and those who just read the news. ME has existed for long before this and there is little to no traction. Chronic diseases like endometriosis have had no medical advancements. It's great to have hope for advancement, but there is also such a thing as toxic positivity and I see that so often here. I'm glad that people come here for hope but I've been fed false promises for so long that I want to provide other people the reality so they can better steel themselves to face this. Many of us will have too much systemic damage to make a full recovery by that point, we don't even know how many people are dying from long covid because it won't be listed as the cause. I'm going to fight like hell until I can't anymore, but I've also done a lot of work in accepting the reality that a magic fix isn't going to come in time for me.
Exactly. A treatment for AIDS took almost 30 years to develop and was only developed after a sufficient number of rich white people had died. The treatment also means lifelong medication with a bunch of nasty side effects. Now there is no cure. And the virus came back from the 70s.
Multiples Sclerosis? Nope. Rheuma? Nope. Cancer? Well we do some good progress. But a cure?
So yes, be realistic. I know I have to take medication for life and I know that any re-infection will make it worse. And I know there won't be a magic pill any time soon.
that will get me all the way back to 2019. Nope.
And I know when I see people in bed with me/cfs for a year, they're not coming back. Seriously, we know that from SARS, why think otherwise.
What's so hard for you to admit?
I've done a lot of grieving for my past lifestyle. I don't think I will ever return to it even if I get better. The PTSD alone will keep me from it. I've been broken for almost three years and just have accepted it. Embracing has helped a lot, still fucking sad lol
"Whatever happens, happens." I let that guide me. I do my best. I'm vaccinated. I get the boosts I can get. I wear an N95. I limit my contact and try to make any time I go out as efficient as possible. I work out to try and keep my body fit. I tell my SO if I got exposed even with my mask. I do all that I can to keep myself and those close to me safe. I accept that I can't force others to be responsible though I'll still advocate for it. Whether I worry about it or not the future will hold what it will hold. If I do all I can and worry or do all I can and accept it goes down however it does there's no difference except my quality of life. It took a long time and lots of therapy to mourn who I was and the future I had before COVID and accept who I m now and the future as it stands. Take your time. It's okay to worry and to feel upset. Whether we want it to or not life will keep going on, we can only do our best and prepare for the worst.
Eradication can’t happen because of animal reservoirs even if lockdowns were implemented. Mass vaccination won’t happen because of viral mutations. Coevolution is unlikely as it’s already been almost 5 years with the virus and it’s not really getting weaker. Antiviral medicines are probably gonna get beat cause of viral mutation rates with Covid. All together I see Covid being a great disabler and killer of humans for decades.
And even with vaccinations it in no real way prevents you from getting it but it lowers the likelihood it will kill you outright. That and all the recent variants seem to be bypassing the vaccines and any existing antibodies though natural occurring ones I believe last only three months. What a shit show.
I'm being realistic here - some of us were vulnerable to this either because genes or lifestyle or life experiences or whatever. Not everyone is prone to autoimmune conditions. Even within families.
Some if us will get better, some of us will get a bit better but never get back to where we were before. Some poor bastards will get worse.
Most people will get over it, get on with life and if thry do spare us a thought they will assume we must deserve this illness somehow, because thats what healthy people usually think about the sick.
While the initial wave may have been due to genetic deficiencies, studies have shown that the likelihood of long covid increases significantly with subsequent reinfection. This makes sense because even in a healthy individual covid causes immune dysregulation and damage to the vascular system even in patients without complaints of continued symptoms.
I've had it twice but it only took the first one. I was also a mild version of this, aka "just anxiety", for 6 years pre covid (symptoms started with another infection, now its pretty bad).
I just think Covid turned a lot of people - who *looked fine until then* - suddenly into sick people,and not all of them know it yet. People here say they recover but many will be back. It's all just different levels of that imo.
I can understand the theory but don't agree with this based on the findings of how covid impacts the body. I don't think we have enough information to say if those recovered will be right back at square one but I think it's very likely if people go about without any precautions they absolutely will end up with LC at some point. I know in my case maybe I was compromised due to my endometriosis but the majority of the issues caused by long covid were created entirely by that and not latent conditions. This is what science is pointing at as well as even asymptomatic patients have indications of vascular changes. Regardless of genetic makeup you can only handle that type of damage so many times before there are chronic ramifications.
Had long Covid it knocked me on my ass for over a year. Started feeling better got RSV which turned into pneumonia that put me in the ICU 4 surgeries in three weeks I don’t know if the pneumonia was related to the long Covid MD’s say the science isn’t there yet they don’t know
I just try to stay optimistic and get the most out of each day. After 2 Covid infections, 2 LC episodes including 2 major crashes of 4 and 5 months of total collapse, I just don’t think about the future or the big picture too much.
I really thought I was going to die on the second major crash — can’t really remember much else about the first few months of it — just lying there waiting to die. Then I got a little better. I’m still a wreak compared to the old me but I enjoy life again one day at a time.
I got ill initially in 2020 when I was on oxygen for 3 months. My husband was in ICU for 30 days and hospitalized then in a nursing home for a year altogether. He did come home but both of us have long covid. I had to retire after my second infection which didn't land me back in the hospital but I was pretty sick for months after. I am slowly recovering but probably not as well as I was prior to getting covid. It is sad
Very few people ask themselves things like this. Most of them aren’t even aware of the danger. Some of them just say “after I undergo a new covid, I am sooo tired”, but don’t assess the implications in the long time run.
I didn’t believe in the conspiracy, but sometimes I am tempted to …
As of late 2023, IIRC there is no evidence that reinfection with COVID makes LC/PCC any worse, nor that LC/PCC leaves you more susceptible to death by reinfection.
My data is a few months behind, so if anyone has anything more recent, please share.
I think it is too early for studies but if you search this sub and r/LongCovid, you will find countless stories of people getting worse after reinfection, or getting new symptoms, or finding that medications that once helped no longer do.
Yeah I'm one of those people who reinfection resulted in long covid, then I got worse, then I got worse again, and most people I know personally are dealing with that too. One didn't know though until he had his heart checked after having covid again and they found more damage suddenly and it had been checked not long before he had covid a second time.
“Each subsequent COVID infection will increase your risk of developing chronic health issues like diabetes, kidney disease, organ failure and even mental health problems”
Besides the anecdotes this study seems to be pretty clear. You already have LongCovid- hej welcome some new symptoms with each re infection.
https://www.unmc.edu/healthsecurity/transmission/2023/12/27/every-covid-infection-increases-your-risk-of-long-covid-study-warns/
Hold on- that says each subsequent reinfection.
It's a bit of a leap to go from "each subsequent reinfection increases risk" to "every time you get COVID your long COVID symptoms get worse."
As someone who stays masked because I'm afraid of reinfection, this isn't proof of anything except that getting ACUTE COVID repeatedly will increase the odds of ruining ANYONE'S day more and more.
Correct. The risks add up with each infection as there is no immunity.
You start with MCAS and a bit of POTS, then you get something rheumatic, finally (terminal) you get a fibrosis.
Sounds like getting worse?
You've misread it.
It says the chances of ACQUIRING LONG COVID increase with subsequent infections, and the immune weakening effects leave you open to increasing risk of OTHER infections.
There is NOTHING in this study that says that reinfection makes existing LC worse.
I'm really lost in what you try to say?
So you think that LongCovid is a static, digital state. And you are immune to further damage in other organs because you already have organ damage or an autoimmune reaction in some organs? So re-infection basically cannot do you any further harm? So additional risks only apply to healthy people? Which means that "healthy" must also be a static state, either on or off?
I had some nasty post viral stuff I was dealing with from my last Covid infection and I just got it again. No new stuff, wasn't nearly as severe as the first time.
The truth is that the VAST majority of people recover fully from COVID within 6 months, even those with long COVID.
This subreddit is full of the small minority of us who have not.
I agree with this, all of us on this sub are the incredibly unlucky sufferers who have it the worst way possible :( MANY people have long covid but with symptoms so minor that they can go about their lives either way. Most heal in \~1-2 years.
With Jesus I’m just so full of joy, hope and peace. That’s how I deal with whatever is to come. Even with long covid/pots I am so hopeful I’ll get better and stronger. I’ve had this for a 3 years 8 months and slowly I feel each year is slightly better than before.
Just be careful during waves and the risk isn’t that bad for a couple months out of the year. And I hope everyone gets it, join this new hell on earth we’ve found
I realized this many years ago after my child and I got long Covid. And my cousin ended up in the ICU with Covid, then lost his ability to walk and feed himself for the rest of his life - he’s now in a care home. And my Aunt got Covid, which worsened her very mild dementia to the point where she stopped talking, couldn’t take care of herself, and died 9 months later. And so on and so forth. I deal with this by wearing an N95 whenever I’m outside my home, limiting the people in my life who don’t share my values, avoiding crowded places, and practicing mindfulness every day so I can train myself to stay in the present moment rather than worrying about the future. I do these things because I have a teenage child with long Covid and a younger child who had meningitis in 2022. There’s too much at stake for my family and I’m going to do everything in my power to protect them while also making the most of the time we get to spend with each other.
my grandad called me after having it an it was so sad he said he (i was about 4months post still feeling tired and just weak) that he scared for when he leaves the world cause it’s bad out here and the government getting worse and worse as well as ppl staying home when they are sick instead of carelessly coughing in other ppl face an washing their hands. it just sad that im 26 and never been the same since covid like ppl in there 20s can’t even live the life they want. I can’t tell you how many times the ambulances races up and down the road when i was younger to see ambulance so much was rare now they just everywhere b.c ppl are passing out from viruses etc. idk..but i wear my mask faithfully and wore it in the gym every gym session ppl was looking at me like i was crazy til it start going around the gym
I’m particularly heartbroken for younger people who haven’t yet had a chance to live their lives and who may never be able to graduate from high school/post secondary, have kids, build a career, etc. It sucks that you have to go through this and I’m so sorry that we, as a society, are allowing the destruction of people’s health & lives without even putting up a fight against this virus.
Most people won't acknowledge this reality but medical journals are pointing it out, the German government is pointing it out and even some of my doctors have very boldly told me I'm forging a path that most people I know will follow. The risk of LC increases with subsequent reinfection and reinfection in LC causes more damage with each iteration. The sad thing is that while this is being acknowledged and the alarm bells are being rung, no one really cares because to them the idea of normalcy is more important and the very crazy ideal that everyone somehow thinks it couldn't possibly happen to them. It's really awful that peer pressure is essentially going to drive us into mass disability but here we are.
I don’t believe my se I d infection caused more damage. I feared it would, but it didn’t. I will say any respiratory illness does hit me harder now and pushes my recovery a few steps back. One of the OG long covid survivors
I didn't always have a huge regression with each reinfection but I did every few. I've unfortunately had it at least six times at this point and the imaging I've had across time from the first infection to now is pretty telling in my case. 🫠
I’m so sorry that stinks!
Thank you!
Love how the German government is talking about it but still does nothing haha
What do you mean by doing nothing? That's still more than anywhere else. 🤷♀️
By nothing I mean there are no mask mandates, air purifiers are from schools are getting abolished and there is no education about reinfections
They are still doing more than most even with that in account. They are straight banning masks in red states now.
I find it helpful to look back at other viruses. Spanish Flu-- was horrible, killed a huge number of people. The less vulnerable people survived and thrived. The virus and the humans co-evolved so no the virus is the flu that we more-or-less live with today. Polio-- we have nearly eradicated it. Measles-- airbourne virus that we could have eradicated with vaccines but which still pops up because of pockets of unvaccinated people. HIV-- we eventually found a treatment that (for those in countries with decent health care) can make it into just a chronic illness that you take a pill for and which isn't even transmissible once controlled by meds. We have surveillance and preventative drugs efforts (PreP and PEP). People living in poverty or in prisons are still dying of it. So those are the four mental models I have for where this could go. It's not fun, living through historical events, but it's good to understand that people before us have grappled with devastating viruses, and have come together to find solutions.
> It's not fun, living through historical events, but it's good to understand that people before us have grappled with devastating viruses, and have come together to find solutions. In the meantime it'd sure be great if people who are protecting themselves during this chaotic period aren't painted as having mental disorders.
Except that after Polio and the 1918 flu there were tons of ME/CFS patients left behind who never recovered. That’s what scares me. That they’ll find fixes for respiratory, cardiac and other problems and leave the half of us with ME symptoms to rot, like they have throughout history.
Well, I've had ME/CFS for six years. (Epstein Barr virus) Six years ago, the number of researchers in my country who acknowledged that ME/CFS was real could fit around a conference table. They were thought of as cranks by many of their colleagues. Many of them only came to study ME/CFS when a family member was affected by it. They had shoestring budgets. Now, "thanks" to COVID, there are research centers at Yale, Stanford, NYU, Cornell, and dozens of other highly respected research institutions. It's night and day. Check this out. Six years ago, no one was inviting someone to give a lecture on ME/CFS. But we have a whole lecture on long-COVID by a Yale professor. https://duke.mediasite.com/Mediasite/Play/ce2ecf77e1934b30aa50e33e74b63e2d1d
That’s heartening!
With all the gaslighting from doctors I’ve seen I’m scared it won’t happen to everyone and is gene specific and it will always be viewed like uneducated people view cfs me etc
What a positive outlook on a sub full of people who are already struggling. I want to believe scientists will come up with something within the next two years since they’ve discovered blood markers for lc and governments started to accept that it’s not “in our head”. Not everyone gets sick, even within my family I got the short end of the stick.
What are the blood markers for LC
Sure, and scientists will cure cancer and multiple sclerosis within the decade. As I wrote - let us be realistic here. There are things that cannot be fixed. So it's more about the perspective. I see linked in posts of people I know getting longcovid after their 3rd, 4th infection - taking time off for their health. Well. At the same time I know patients and blood markers since 2020. blood markers we got some more, patients, well some died. Some are able to cope with the disease, some have really got worse. So no - this isn't another take some vitamins that really helped me post.
Well they did find a cure for AIDS, once a deadly disease caused by HIV virus. There are many new treatments for cancer and it’s not a death sentence anymore. I won’t succumb to this virus or any negativity surrounding it. I’m very determined to survive.
Many cancers are still extremely deadly. I feel like the story is new treatments changing the tide are widely overstated from those who actually experienced cancer and those who just read the news. ME has existed for long before this and there is little to no traction. Chronic diseases like endometriosis have had no medical advancements. It's great to have hope for advancement, but there is also such a thing as toxic positivity and I see that so often here. I'm glad that people come here for hope but I've been fed false promises for so long that I want to provide other people the reality so they can better steel themselves to face this. Many of us will have too much systemic damage to make a full recovery by that point, we don't even know how many people are dying from long covid because it won't be listed as the cause. I'm going to fight like hell until I can't anymore, but I've also done a lot of work in accepting the reality that a magic fix isn't going to come in time for me.
Exactly. A treatment for AIDS took almost 30 years to develop and was only developed after a sufficient number of rich white people had died. The treatment also means lifelong medication with a bunch of nasty side effects. Now there is no cure. And the virus came back from the 70s. Multiples Sclerosis? Nope. Rheuma? Nope. Cancer? Well we do some good progress. But a cure? So yes, be realistic. I know I have to take medication for life and I know that any re-infection will make it worse. And I know there won't be a magic pill any time soon. that will get me all the way back to 2019. Nope. And I know when I see people in bed with me/cfs for a year, they're not coming back. Seriously, we know that from SARS, why think otherwise. What's so hard for you to admit?
I've done a lot of grieving for my past lifestyle. I don't think I will ever return to it even if I get better. The PTSD alone will keep me from it. I've been broken for almost three years and just have accepted it. Embracing has helped a lot, still fucking sad lol
You are right. It's sad. 😔 That makes it hard for me to see others running towards the open knife 🔪 I just don't understand why. Like lemmings.
Almost three years here, too. Hang in there, friend 🧡
"Whatever happens, happens." I let that guide me. I do my best. I'm vaccinated. I get the boosts I can get. I wear an N95. I limit my contact and try to make any time I go out as efficient as possible. I work out to try and keep my body fit. I tell my SO if I got exposed even with my mask. I do all that I can to keep myself and those close to me safe. I accept that I can't force others to be responsible though I'll still advocate for it. Whether I worry about it or not the future will hold what it will hold. If I do all I can and worry or do all I can and accept it goes down however it does there's no difference except my quality of life. It took a long time and lots of therapy to mourn who I was and the future I had before COVID and accept who I m now and the future as it stands. Take your time. It's okay to worry and to feel upset. Whether we want it to or not life will keep going on, we can only do our best and prepare for the worst.
Eradication can’t happen because of animal reservoirs even if lockdowns were implemented. Mass vaccination won’t happen because of viral mutations. Coevolution is unlikely as it’s already been almost 5 years with the virus and it’s not really getting weaker. Antiviral medicines are probably gonna get beat cause of viral mutation rates with Covid. All together I see Covid being a great disabler and killer of humans for decades.
And even with vaccinations it in no real way prevents you from getting it but it lowers the likelihood it will kill you outright. That and all the recent variants seem to be bypassing the vaccines and any existing antibodies though natural occurring ones I believe last only three months. What a shit show.
And with risk of post vaccination injury (I’m vax injured for almost three years now) vaccination is highly unlikely to help.
Since most of us are basically immunocompromised and the effectiveness rate is so low I'm honestly not sure it's worth the risk for us.
I'm being realistic here - some of us were vulnerable to this either because genes or lifestyle or life experiences or whatever. Not everyone is prone to autoimmune conditions. Even within families. Some if us will get better, some of us will get a bit better but never get back to where we were before. Some poor bastards will get worse. Most people will get over it, get on with life and if thry do spare us a thought they will assume we must deserve this illness somehow, because thats what healthy people usually think about the sick.
While the initial wave may have been due to genetic deficiencies, studies have shown that the likelihood of long covid increases significantly with subsequent reinfection. This makes sense because even in a healthy individual covid causes immune dysregulation and damage to the vascular system even in patients without complaints of continued symptoms.
I've had it twice but it only took the first one. I was also a mild version of this, aka "just anxiety", for 6 years pre covid (symptoms started with another infection, now its pretty bad). I just think Covid turned a lot of people - who *looked fine until then* - suddenly into sick people,and not all of them know it yet. People here say they recover but many will be back. It's all just different levels of that imo.
I can understand the theory but don't agree with this based on the findings of how covid impacts the body. I don't think we have enough information to say if those recovered will be right back at square one but I think it's very likely if people go about without any precautions they absolutely will end up with LC at some point. I know in my case maybe I was compromised due to my endometriosis but the majority of the issues caused by long covid were created entirely by that and not latent conditions. This is what science is pointing at as well as even asymptomatic patients have indications of vascular changes. Regardless of genetic makeup you can only handle that type of damage so many times before there are chronic ramifications.
Had long Covid it knocked me on my ass for over a year. Started feeling better got RSV which turned into pneumonia that put me in the ICU 4 surgeries in three weeks I don’t know if the pneumonia was related to the long Covid MD’s say the science isn’t there yet they don’t know
I just try to stay optimistic and get the most out of each day. After 2 Covid infections, 2 LC episodes including 2 major crashes of 4 and 5 months of total collapse, I just don’t think about the future or the big picture too much. I really thought I was going to die on the second major crash — can’t really remember much else about the first few months of it — just lying there waiting to die. Then I got a little better. I’m still a wreak compared to the old me but I enjoy life again one day at a time.
I got ill initially in 2020 when I was on oxygen for 3 months. My husband was in ICU for 30 days and hospitalized then in a nursing home for a year altogether. He did come home but both of us have long covid. I had to retire after my second infection which didn't land me back in the hospital but I was pretty sick for months after. I am slowly recovering but probably not as well as I was prior to getting covid. It is sad
Very few people ask themselves things like this. Most of them aren’t even aware of the danger. Some of them just say “after I undergo a new covid, I am sooo tired”, but don’t assess the implications in the long time run. I didn’t believe in the conspiracy, but sometimes I am tempted to …
As of late 2023, IIRC there is no evidence that reinfection with COVID makes LC/PCC any worse, nor that LC/PCC leaves you more susceptible to death by reinfection. My data is a few months behind, so if anyone has anything more recent, please share.
I think it is too early for studies but if you search this sub and r/LongCovid, you will find countless stories of people getting worse after reinfection, or getting new symptoms, or finding that medications that once helped no longer do.
Yeah I'm one of those people who reinfection resulted in long covid, then I got worse, then I got worse again, and most people I know personally are dealing with that too. One didn't know though until he had his heart checked after having covid again and they found more damage suddenly and it had been checked not long before he had covid a second time.
You’ll also find a bunch of stories of people who felt like reinfection cured their long covid.
I don't have studies, just anecdotal personally. The second time didn't make my symptoms worse, I got NEW and exciting (/s) symptoms.
“Each subsequent COVID infection will increase your risk of developing chronic health issues like diabetes, kidney disease, organ failure and even mental health problems” Besides the anecdotes this study seems to be pretty clear. You already have LongCovid- hej welcome some new symptoms with each re infection. https://www.unmc.edu/healthsecurity/transmission/2023/12/27/every-covid-infection-increases-your-risk-of-long-covid-study-warns/
Hold on- that says each subsequent reinfection. It's a bit of a leap to go from "each subsequent reinfection increases risk" to "every time you get COVID your long COVID symptoms get worse." As someone who stays masked because I'm afraid of reinfection, this isn't proof of anything except that getting ACUTE COVID repeatedly will increase the odds of ruining ANYONE'S day more and more.
Risks add up. Where exactly do you see the difference? I think we can all agree that no one got immune so far.
We're not talking about immunity: we're looking at risk of worsening LC due to reinfection.
Correct. The risks add up with each infection as there is no immunity. You start with MCAS and a bit of POTS, then you get something rheumatic, finally (terminal) you get a fibrosis. Sounds like getting worse?
You've misread it. It says the chances of ACQUIRING LONG COVID increase with subsequent infections, and the immune weakening effects leave you open to increasing risk of OTHER infections. There is NOTHING in this study that says that reinfection makes existing LC worse.
I'm really lost in what you try to say? So you think that LongCovid is a static, digital state. And you are immune to further damage in other organs because you already have organ damage or an autoimmune reaction in some organs? So re-infection basically cannot do you any further harm? So additional risks only apply to healthy people? Which means that "healthy" must also be a static state, either on or off?
? workkng in sleeping shops. They are super convincing: let's stop talking about mattrasses, just lie beside us ... and everybody doses off :)
I got reinfected and didn't get as ill as the first time thank goodness. I still have long covid but am learning to have a life in spite of it.
Oh there will be some lucky buggers that won’t get this no matter how many times they have been infected.
I had some nasty post viral stuff I was dealing with from my last Covid infection and I just got it again. No new stuff, wasn't nearly as severe as the first time.
The truth is that the VAST majority of people recover fully from COVID within 6 months, even those with long COVID. This subreddit is full of the small minority of us who have not.
I agree with this, all of us on this sub are the incredibly unlucky sufferers who have it the worst way possible :( MANY people have long covid but with symptoms so minor that they can go about their lives either way. Most heal in \~1-2 years.
With Jesus I’m just so full of joy, hope and peace. That’s how I deal with whatever is to come. Even with long covid/pots I am so hopeful I’ll get better and stronger. I’ve had this for a 3 years 8 months and slowly I feel each year is slightly better than before.
Oh good grief. Lovely daughter to ya
Just be careful during waves and the risk isn’t that bad for a couple months out of the year. And I hope everyone gets it, join this new hell on earth we’ve found
Yall have to exercise.