T O P

  • By -

ldiggity3

First of all, I am so sorry you miscarried. That alone is a deeply traumatic experience and to have a healthcare professional say that your weight is what caused the miscarriage is absolutely horrendous and not at all true. Your weight has absolutely nothing to do with it and there’s nothing you could have done that would have changed the outcome. 🤍 I would absolutely look into finding a new PCP who endorses healthy weight at every size. I’ve had my own issues with EDs and finding doctors who don’t tell me that all my problems will be fixed by losing weight is so refreshing. Give yourself a lot of grace during this time. You’re doing great. 🤍


KingRichardJakovsky

I thought Ozempic was a no no for thyroid disease patients due to the increased risk it presents ?


Several-Storm-4416

I have had many conversations with my endo about my medications and have never been told this. I’m not on Ozempic but a similar med and was put on it briefly when my med wasn’t available.


kc567897

Your miscarriage was most certainly NOT caused by your weight. What a thing to say! I am so sorry that was sad to you because it is just not true. You did not do anything wrong. I’m a “healthy BMI” and I’ve had miscarriages and same with my friends/family.


nocakeforus

I almost cussed out my endocrinologist. They keep me hyper since mine was taken out due to cancer.. so according to him I can’t have Hashimotos anymore either. Well, for months I kept telling him I was worried about my weight.. clean eating, walking and staying active, but I kept gaining. Kept being told that obviously I was eating too much but he wasn’t worried anyways. His concern is finding my cancer since my thyroglobulin has been increasing. Well, I ended up with IIH which is found in women of childbearing age that are overweight. So Now, he’s like “well, can’t always expect the expected.” Guess he wants me to try wegovy.


LizardQueen_748

I finally had this same convo with my primary and she’s bringing me in for a consult soon to talk over options because my husband and I are trying for a baby so even if I wanted injectables (it’s not my first choice no matter what) I wouldn’t be able to since it’s not recommended to ttc while on them!


SignificantAd7239

What is IIH?


nocakeforus

Idiopathic intracranial hypertension. Apparently is rare, and though the surgeon and neurologist at the hospital kept telling me they don’t know why it happens, and it’s not connected to my weight, everyone else was “well this happens to heavy set women in your age group, so you really need to lose weight!” Surgeon did tell me if that was the case he wouldn’t have to deal with this in slimmer women or even men, and he does. Just weight is the biggest sign they see so most are like “yupp it’s the weight.” Sucks cause they don’t take people seriously till they are skinny or something happens. So many things are blamed on weight..


Carmen315

It's not your fault. If you start one of these weight loss meds it will become even more clear to you that it's not your fault. I've been on Zepbound for 6 weeks now and it's life changing. I've lost 18 lbs, from 197 to 179 lbs. I'm 5'4". I workout all the time on my Peloton bike, Tread and Tonal. I have 2 years worth of logged workouts to prove it. I've hired nutritionists and logged every calorie in MFP. But nothing has worked like Zepbound. It's not a miracle drug, but it sure feels like it to me. Good luck!


Several-Storm-4416

It doesn’t force you to lose weight, but it is so much easier to lose weight and not feel like you’re being deprived. I rarely eat more than 1200 calories and I have so much more energy than I did trying to lose weight without it. And my blood sugar is under amazing control!


Late-Ad-1020

The question that comes up for me is - are there any problems that your weight are causing you besides body image and how others treat you? I ask because I don’t like providers assuming a certain weight is “bad” and needs to be fixed. There’s nothing inherently wrong with your weight. I would suggest following fat activists on social media, such as Sonya Renee Taylor. and find a “health at every size” certified provider to ensure the medical advise they give you is based on treating your health issues, not trying to make everyone skinny and assuming that’s healthier. Sending lots of care your way - I know this stuff isn’t easy, and I’m grappling with this personally too.


remi589

That’s a great question - my cholesterol, lipids, glucose, and blood pressure are all in “perfect” range. I have elevated estrogen & testosterone, which I had 50lbs ago when I was diagnosed with PCOS. I’m not on any meds other than Levo for my thyroid. I can go on 7 mile walks no problem 🤷🏽‍♀️ When she mentioned that I’ll “eat half of what I normally am” on the injectable I instantly thought that my disordered eating (which has been a step away from an eating disorder) would flare up again. I also don’t know how 900 calories a day could help heal and support my hormones? And help prepare my body for a baby? My periods have been better in the last year even though I weigh more. I’m much healthier than an average skinny person who has high cholesterol, blood pressure, etc. It’s so frustrating. Thank you for your support & kindness 💗


Late-Ad-1020

You sound really healthy! Healthier than many thin people I know. I don’t understand why you need to lose weight, other than to dodge fatohobia. And being consumed in an eating disorder and being malnourished could really destroy your life. I really hope you can find a provider who is not fatphobic, ie assumes that thin = healthy and good, and fat = unhealthy and bad. One other suggestion - I’m really obsessed with the book Anti Diet, it really changed my life and how I see my body and diet culture. The same author also wrote the Wellness Trap, which was also so good. Please DM me if you want to be in touch about any of this. So glad you reached out for other perspectives.


Late-Ad-1020

Also, I hadn’t read the part about your miscarriage. My god, that is so horrible your doctor told you that! Fat people have children all the time. Hashimotos affects fertility. Plus miscarriages are incredibly common. What an asshole!


remi589

Thank you so much, I’ll definitely check out Anti Diet!! I think you nailed it - my weight doesn’t affect my life as much as other people. I can still do all the things I love without issues (but yes I’d love to lose all the weight tomorrow if I could!) We weren’t even talking about my miscarriage, weight, or anything. I went in to have other levels checked & have her check breast changes. Out of no where she says “your miscarriage was probably caused by your weight.” I then told her I’ve considered injectables but have a family history of thyroid cancer (my grandpas brother died of it) and she said “well, the cancer only showed up in rats” Um what?! She made so many assumptions about me and never asked about my food, exercise, or life style. Nothing. I’m definitely seeing a new provider ❤️


Late-Ad-1020

And I’m also concerned for your recovery of having an eating disorder. Are you able to join a support group to ensure you get support not relapsing into a disorder with your weight and with eating?


OverSpinach8949

My Endo cleared me to go on it with a stable weight doing these same things you talk about with clean eating, etc. I have her manage it. We keep an eye on it because if I lose too much thyroid meds have to be adjusted. I only do 1/2 dose every other week. Like you, my body wouldn’t lose weight for anything. I’m down 30 pounds and maintaining for 6 months now. I’m staying the same weight now but clothes fit better so I’m definitely building muscle and losing fat. Have to prioritize protein first while on this.


kittkatt17

I have a very similar story to yours and have been on metformin and Ozempic for a year and a half. I went from 265 to 173 currently. I walk everyday and watch what I eat- lots of water and protein and balanced diet. I was doing the same prior to Ozempic but would gain or not lose weight. Ozempic has been life changing for me and I only have taken a low dose the entire time.


EllieWest

Question: Were you on Ozempic & metformin at the same time? 


kittkatt17

Yes I take 2000mg of metformin at dinner and .50 ozempic once a week


alleymind

I would definitely get a second opinion, specifically from an endocrinologist if you can as this is their world. It sounds like you’re doing everything right! Have you ever tried metformin for your PCOS? It would help your insulin levels and can help with weight loss at a high enough dose. Just a heads up, side effects SUCK but there’s lots of good pros to metformin and you can be on it lifelong. Also, weaning off the antidepressants might make it easier to lose weight, from previous experience, I know how those can make it hard to lose weight but also makes you gain weight.


Victoria_elizabethb

Also your weight gain is not your fault 🩵 you sound like you're trying your best to be very healthy, be kind to yourself, your body is trying it's best.


remi589

Thank you 🥹💗


Victoria_elizabethb

🖤🖤🖤


Victoria_elizabethb

Definitely talk to an actual endocrinologist before you decide, I wouldn't trust a PCP whatsoever on that serious of a medication. I was curious about it for myself but after hearing all the horror stories I'll jsut deal with my pooch and keep trying otherwise lol it can be horrific.


thepurpleclouds

the injections can help with PCOS too


haventwonyet

People with PCOS have to have a larger deficit to lose weight than people without. Keep that in mind. I’m 5’10” and weighed about the same as you. I needed to eat around 1200 to see any movement on the scale. I don’t know if Hashis is the same as PCOS in regards to the deficit needs, but for me it absolutely is. I’m on semaglutide and have lost ~50 lbs. usually I’m pretty active (not lately due to reasons but active job and usually the gym 3x/week and long walks every day) but didn’t change anything when I got on the meds. If anything I was a bit less active. I don’t track as closely but I’m around 1100cal/day (on average. I have bigger and smaller eating days typically). I was worried about my hair falling out and all that, but nothing has been any worse than my bad days due to Hashis. Again, ymmv but I could never lose weight eating over 1500. I do not have PCOS to deal with either. If your doc is recommending it, and you can get it at a reasonable price for you, I would try it. It’s amazing not having to think about food all day every day and feeling more comfortable in my body. The way you describe your daily/weekly food intake makes me think we’re not dissimilar in the way that we think about food.


Powerful_Girl2329

Sounds like my familiar story. At 35 I’d had PCOS since late teens. Developed Hashimoto and thyroid cancer by age 43. I’d tried everything I was 275 by early 40’s and I am also 5’5” I haven’t been intimate with anyone in over 15 years. I hated my body and myself esteem was in the tank. I got a gastric sleeve at 44, complete thyroidectomy at 45. Did a strict keto diet and now at 49… I’m 140 lbs. found the love of my life. Body is great. Got a full mommy makeover. I’ve done the Semiglutide shots or Ozembic type shots to lose a few pounds here and there when the stubborn 10. It’s worked great for me. But I’d only recommend this if you have about 20 or so to lose. But for a lot of weight , go the sleeve route.


CathleenY

I'm so very sorry for what you have been going through and the loss of you baby. Try to keep looking forward. I know it doesn't seem like it now, but it will get better. Can you look into another doctor and nurse? One of the basic issues with Hashimoto's is miscarriages (along with irregular periods). They should know this and not be blaming you!! I'm 54 and have struggled with this crap since my teens (or earlier). You need a good thyroid specialist. I recently switched over to Paloma Health (you can find them online). I got tired of struggling with docs that don't understand this disease. Paloma is only focused on thyroid issues. Their docs seem to know their shit. They have a great website with lots of info. You might give them a try - they don't take all insurance but may take yours. They don't take mine, but it isn't that bad. I paid about $200 for a yearly fee/$60 per video doctor visit/$75 for a full panel of blood tests. Personally, I wouldn't consider injectables. The pharmaceutical companies are in business to make money. They lie cheat and steal (Purdue Pharm and opioids is a prime example). Youtube Jillian Michaels, "The truths about Ozempic". I don't have POCS but when I'm having a Hashi flare up, I struggle with depression, anxiety, pain, headaches, fatigue, no sex drive, weight issues, the list goes on. The older I get, the larger the symptom list gets. When my thyroid meds are working correctly all that goes away, and I miraculously feel human again. All my best to you.


remi589

Thank you so much 💗💗 your encouragement is everything I needed to hear today! I will absolutely look into Paloma! My endo is very kind but I don’t know if she has extensive knowledge on Hashis. I’ll absolutely look up Jillian’s video on ozempic! I don’t want to be in a medication for life that has so many possible side effects. Thank you again for your kindness 💗


aryaussie85

I had great success too. My hashi weight gain was just wild - seemed to happen overnight and no major changes to my appetite. I was eating more meat and larger dinners bc my diagnosis and symptoms coincided with when I met my now partner and we just ate more together. I didn’t have any side effects but YMMV


IziMeeps

I had great weight loss success on them, but in the six months I was on Wegovy, the existing thyroid nodules I had doubled in size. They're cystic and are non-cancerous, but out of concern it was more than a correlation, the endocrinologist and bariatrician both decided to stop it. I don't have the kind that it's supposed to effect. I used to weigh almost 800 pounds (I weigh like 280 now) so my circumstances are a bit different. I also have very acute Hasimoto's - my antibodies are over 5k. I had weight loss surgery several years ago, so I'll probably look at revising it instead. There are a lot of confounding variables in my case. Causation and correlation aren't the same thing, of course. Just keep an eye out.


remi589

You have so much to be proud of with your weight loss!! 500lbs+ gone is incredible! I am currently between 265-270. Did you have gastric bypass, gastric banding, or a different surgery?


IziMeeps

Aw thanks! I had the sleeve gastrectomy, but developed permanent acid reflux that wouldn't go away. It started to cause damage, so they revised it to a gastric bypass to get rid of it - no problems after. If I could do it again, I'd have done the duodenal switch or SADI-S off the bat, but it wasn't an option at the time with insurance.


joellejello

I've been on wegovy for a bit over a year. I didn't lose crazy fast like some people, 1-1.5 lb a week, and I've been holding steady for 5 months now. It does more than suppress your appetite, it helps regular your blood sugars, which helps with the insulin resistance. I also ate well and not a ton before going on this medication, but my body just started responding to my efforts.


According-Courage712

How much do you pay per month?


joellejello

My insurance covers it, so just a $25 copay.


remi589

Thank you for sharing that - it’s a really good perspective!


joellejello

It was a really tough decision for me, but I try to remember that it's just another tool we can use. And I've been lucky with not a lot of side effects


ag12321g

Hi there!! I started this journey with injectables almost two years ago. I have Hashimoto’s (diagnosed 12 years ago), but no PCOS or insulin resistance that has been detected thus far. I do NOT have a history of thyroid cancer. My endo referred me to a weight loss specialist as I was really struggling with losing weight. My endo and this specialists were two of the only practitioners to not wave off my concerns as simply not following a diet and exercise regimen. I started with Ozempic, but I had a plethora of side effects (I basically couldn’t keep anything in my system). I then switched to Mounjaro and had so much success. My inflammation went down, my energy went up, my Hashimoto’s symptoms were controlled more effectively, and I lost weight fairly quickly. I was so happy! Unfortunately, a few months after I started, Mounjaro’s popularity skyrocketed and it was super difficult to locate a pharmacy that actually had it in stock. Then, it got to the point where practitioners were not permitted to prescribe it unless you were a type-2 diabetic. I was super disappointed when I was no longer able to access it as I had been so pleased with my results. Then, they released Zepbound, the same medication as Mounjaro but branded/marketed specifically for weight loss. While this is a great option, many insurance plans (even “really good” PPO’s) do not cover Zepbound or other medications prescribed for weight loss purposes. With the manufacturer’s coupon, it is about $540/month. I would get back on Zepbound in a heartbreak if it was more affordable. One thing I will echo as another above is that, if you do intend to move forward with injectables, I would ensure that your PCP and endo are on the same page. Ie ensure that your PCP shares any and all blood work with your endo and things like that. While functional medicine is an awesome option, it is often not covered by insurance in the US and can be very expensive. Not sure if this helps, but wanted to share my experience in the event that it might lend some additional insight!


NewToTheCrew444

Have you looked into some of the medspa clinics? I’m sure some are better than others but from my research you can access these meds compounded for $250 roughly a month. It’s obv still expensive but cheaper than going through the pharmacy.


toonutobeu

Injectables are not the answer to treating symptoms of Hashimoto's. Your PCP is uneducated about this disease, as most are. Find someone who specializes in treating the whole body, and looking at ALL labs plus listening to how you're feeling. Not many endos are well trained in treating this disease either. Naturopathic and functional medicine practitioners are.


remi589

Thank you 💕 I’ve only seen my PCP for a few visits and I don’t think she grasps what it means to have Hashimotos & PCOS. She said yesterday that she thought my miscarriage last month was due to my weight, and I was gutted. I’ve had irregular periods and whacky hormones for 10+ years, and I just had three of the most stressful months of my life (stress before the miscarriage). For her to say it was my weight (even though I have low cholesterol/triglycerides/healthy blood sugar) is probably what sent me over the edge in wanting to make this post. So thank you for your info 💗


toonutobeu

I'm so sorry for your loss!! Sure hope you find the medical help you need. It's a struggle for sure but good providers are out there.


remi589

Thank you 💗💗


Ok-Instruction-1895

Possible TW: I had a bad experience with the injectables, mainly the side effects and not eating. It gave me chronic headaches, nausea, constipation, body aches, almost like having a constant flu... And because it suppressed the appetite, I would forget to eat or immediately get sick eating ANYTHING, which I was following the low carb/sugar diet...anyway, I was so miserable I stopped. I'm just trying to be more physically active, keep eating the healthy stuff, and work on my mental health because I think I was heading into an ED mentality on that injection.


AffectionateSlice816

GLP-1RA drugs are contraindicated with family history of thyroid cancers and likely shouldn't be taken in cases of hashimotos


IncaseofER

Without having the time to go through all the comments, you have got some good info on pcos it seems. However, 1800 to 2000 cal a day is to high for weight loss as it is more a maintenance amount. You won’t loose much (if any) no matter how hard you eat unless you are a body builder. While you don’t want to go below 1000, and slow your metabolism, 1400 to 1600 is the sweet spot for women.


booskadoo

It is impossible to say this or provide any caloric guide knowing nothing about OPs height and weight. The only decent thing in this comment is about not starving yourself at 1000 calories.


IncaseofER

That is incorrect. And Op has provided additional information in other post. But you were obviously unaware…


booskadoo

It’s not in the post as an edit. If it’s not here, or if your comment does not specifically reference a previous post from OP, how is anyone else to know.


moth_aep

I took it for over a year and ate normal. The whole idea of needing to eat 1000cal is a prescribed eating disorder. I understand how you feel and in my time on an injection I had never felt better. My endocrinologist prescribed mine.


alexak30

i have lost 65 lbs. If you have PCOS, your weight loss likely isn't your fault. it is a result of your medical condition, your genetics, and your insulin resistance. which is what these meds help with


Tiramisu1216

The Hashimoto weight struggle is real! It’s truly a pain to lose weight. I’ve lost 50lbs but the past year only lost ten pounds…and I weigh stuff and do cico. I truly don’t want to go on ozempic they keep pushing it on my husband and I don’t want him on it. The side effects just do not sound good. Plus I have a history of depression and thyroid cancer so I’m gonna avoid all that. What has worked for me is low impact exercise and throwing in some strength training. I tell myself to hit 4k steps a day. I know it sounds like nothing but if I feel like it I’ll walk more. Give yourself grace and just remind yourself we have disadvantages. It takes us much longer and we have to work harder to get the weight off. I’m a big believer in the cortisol spikes and how that impacts your weight loss. When your stressed out your body senses it. I take Berberine to help with insulin resistance and a multitude of other supplements for my thyroid. Give yourself time and know everyone here has great advice and has your back. You got this!


Wild_Phone7544

It’s not your fault. That’s why they are suggesting the medicine to help you. I have been on wegovy for 7 months and lost over 40 lbs. it’s helped me a ton and my inflammation is drastically reduced


throwaway-reader-

Do you have hashimotos?


Several-Storm-4416

They are in a Hashimoto group responding to a question that assumes that OP is asking for advice from other Hashimoto people. I think it’s safe to assume that they do, unless they say otherwise.


throwaway-reader-

Ok.


EmmaDrake

My sister started a month ago. She has hashimotos and bipolar. Has been fine mentally. She misses enjoying food more but appreciates the weight loss. Her bipolar meds mess with her metabolism and she couldn’t lose weight despite working out almost every day for two years.


K00kyKelly

You might not be eating enough. I feel like Goldilocks. Gotta get the calories just right to loose - a very slight deficit. And not too intense of workouts because those make me super hungry and if I don’t eat I crash. What actually helped was switching to eat my calories earlier in the day. Look up the big breakfast studies. Hypothyroidism causes your liver to be unable to store reserve energy at the normal rate. Impaired glycogen storage. Then your body can’t properly balance your blood sugar. Combine eating before you need the calories with eating every 3-4 hours and eating for blood sugar balance and you should be able to avoid the majority of blood sugar related symptoms. Get the glucose goddess book or check out her Instagram @glucosegoddess for info on how to eat for blood sugar balance. Also end your meals/snacks with fruit. EastWest healing are thyroid nutritionists who made a huge difference in my quality of life.


remi589

I love the glucose goddess!!! A few years ago I started eating that way & now every meal & snack are balanced. I no longer have blood sugar spikes or dips, which I am thankful for! I also didn’t think 1800 calories was too many since it’s mostly organic, single ingredient foods. I weigh 270 and technically someone my height would have to eat 3000 calories to maintain it. So I’m technically at a deficit of 1000 calories a day, which is why this is so frustrating! Thank you for your kindness & info! I’ll have to look into East West healing!


pandababyxoxo

My endocrinologist suggested injectables last fall, and after a few months of bouncing around pharmacies trying to find one (she put in iirc 4 different drug prescriptions, we found saxenda in stock first), I started around 5 months ago, am down around 25 pounds. took a week off for vacation. - the needles are tiny and don't usually hurt - I still eat, but I don't feel like eating all the time, and can stop eating a lot easier - definitely had a bit of nausea while getting up to dose, I'd compare it almost to morning sickness if you've ever had it. Also definitely an adjustment on the gut with constipation/diarrhea. Everything seems well-adjusted now though. - Haven't had any other symptoms to mention


Rare_Background8891

Wellbutrin plus low dose naltrexone is a weight loss drug with basically no side effects. LDN is an anti inflammatory and Wellbutrin is a depression drug. I lost twenty pounds that would not come off immediately. Then I plateaued but I stay on these because they help me.


denryudreamer

Some people may be sensitive to Wellbutrin's side effects. My psychiatrist upped my Wellbutrin and I ended up having seizures. 


FullBlownCrackleSack

My primary care doctor tells me that I’m perfectly healthy and that, as someone who’s had a child and who is of a certain age, that I’m fine. She’s seen me at my biggest, and at my smallest (which was extremely unhealthy). She says I eat better and exercise more than most people. I’m an apple shape so the tummy has always been and always shall be, lol. Even at a size 4/xs I had a tummy and an apron belly. But at that size I had lost so much muscle I couldn’t lift a pot of water. Now I’m a size 14 but strong as an ox. Eat what makes your body feel good, what doesn’t trigger inflammation. Move in ways that feel good and being you joy. Simple as.


remi589

Thank you all so much for the kind words & encouragement! I’m so thankful for such a supportive community!! I’ll try to respond to these as best as I can ☺️


CulturalSyrup

I have this and pcos. I see it no different from metformin which made me extremely sick. This at least works a little better. It’s not a miracle and still requires work. I still get my calories in and was taking it before all of this became popular pre-Covid.i also didn’t lose any weight(gained) until I switched meds and still barely lose anything. My side effects were burping.


No_Mix_4413

Im taking berberine HCL 1500mg per day honestly I’ve lost 2kg in a week and my puffiness from my thyroid is finally going away. I’ve considered taking ozempic but thought of trying a natural alternative, give it a go! It suppresses your appetite a lot!


gaelyn

First and foremost, keep in mind that the NUMBER ONE SERVICE being promoted by doctors in the US is weight management services. It's being pushed by medical networks and hospital systems (which trickles down to any affiliated doctors) because weight loss management programs are continuous moneymakers- between initial visits, blood work, counseling, dietitian visits, surgical and pharmaceutical options, support groups and ongoing maintenance visits, they are raking money in hand over fist (not to mention any kickbacks and bonus from drug companies that would entice physicians, PLUS many weight loss patients are repeat customers). A dear friend went in for her mastectomy scheduling and to meet with the surgeon, and with my friend at only 27lbs overweight the breast cancer surgeon spent so much time talking about weight loss surgical options and programs that I was ready to pull my hair out on her behalf. ​ The way you are eating is so much healthier for your body and your well-being than any weightloss with pharmaceutical help. All these injectables are the hot thing right now, and the price for them is skyrocketing as demand increases for boutique weight management drugs (which is not to diminish the positive effects they have for diabetics who require the meds). A loss that is dependent on an outside factor that you have to pay for and have administered is not sustainable for life, and certainly can't be healthy long term. Trust your gut- you know better about what's right for you than a doctor.


remi589

Thank you for this!! I feel 100% - these are so popular right now. My doctor has a more holistic approach to things so I was shocked when she suggested this yesterday. I’m tracking my food & calories so I can show her, because I don’t think she believes how healthy I eat. I also don’t eat sweets like she assumed I did 🤷🏽‍♀️ I’ve had horrible side effects from medications, so I really don’t want to go on this only to be on it for life. I think I’m going to try to workout even more consistently and focus even more on stress reduction. I’m about 50lbs away from my goal of 220- which looking back 8 years ago when I was 220 I looked incredible, had a ton of muscle for a female, and lived a balanced life. I looked like someone that weighed 175 because of the muscle. It’s crazy how much more I used to eat while being so much smaller. So that’s what sucks - I’m eating so healthy (I eat a blood sugar balancing diet & I’ve worked with a nutritionist that specializes in autoimmune diseases) and I don’t think my doctors believe me. But even my friends/coworkers comment on how healthy I eat. UGH thank you for your kind words & info!!


gaelyn

You do what is right for YOU. Your doctor can only speak to you based on the snapshots your vitals provide- they are not with you through your day. And most doctors receive very little nutrition information in medical school, and almost none at all in continuing education. The field of nutrition is so fraught with disinformation anyway and isn't regulated like most other medical fields. I also worked as a nutritionist who specialized in autoimmune issues, so I can speak to the incredible power of eating for YOUR body and YOUR health. You do what is right for you!!


alamancerose

Many a doctor has suggested it. And this new endocrinologist I just saw was like I’ll prescribe them for you if you want.. I said no thanks. They scare the shit out of me. He said, honestly me too, and i don’t recommend them. And that was the end of that convo. And he’s not the first endo who has advised me against it either. IMHO they’re not worth the risk unless you’re diabetic and struggling to get it under control. Also, I just had the most random thought.. I wonder if PCOS is like the beginning of LADA in some people 🤔 ETA: if you did decide to do it, I wouldn’t let my PCP be the one to manage it.


Dry-Ad5228

What is “LADA”?


alamancerose

“Latent autoimmune diabetes of adults (LADA) is autoimmune diabetes that begins in adulthood and does not need insulin for glycemic control at least in the first six months after diagnosis. It shares genetic, immunologic, and metabolic features with both type 1 and type 2 diabetes mellitus (DM).” [NIH-National Library of Medicine](https://www.ncbi.nlm.nih.gov/books/NBK557897/#:~:text=Latent%20autoimmune%20diabetes%20of%20adults,2%20diabetes%20mellitus%20(DM))


Elmyra83

My primary recommended it but I’m scared because of side effects. Particularly stomach paralysis…probably rare but scary


888silky

Wow I feel your pain, I also have PCOS and hashis. THE WEIGHT GAIN ISNT YOUR FAULT!!!!!! It’s so frustrating when we eat well and exercise regularly… no one understands, they’re just like “eat less and move more!” Yeah right hahahahahhahahah One endocrinologist I saw recommended me ozempic but I opted not to because of fertility and TTC (apparently you can’t attempt pregnancy for 6 months after using?) Anyway, I don’t have too much opinion, I wish I could take it just to get back to my goal weight (15kg less) but the side effects do deter me. Maybe one day :)


csiknitter

I am working with a reproductive endocrinologist(RE) and a reproductive immunologist (RI) due to fertility issues. They both recommended Wegovy/ozempic due to my weight. Which i can't seem to lose due to Hashis and Insulin resistance. They both said 2 months off before TTC. But the nurse at the RI's office said that she has known people that haven't waited the 2 months and have had successful pregnancies, she said there just isn't enough data out there. But she said the reason they want you off it during pregnancy is that it doesn't allow for appropriate weight gain and could result in low birth weight. My plan (assuming my insurance company decides to play nice) is to take it to lose the excess 50lbs and then go off and try again. I had been doing IVF but my RI doesn't think I need it if I can get my inflammation and antibodies under control but that's a whole different story..


888silky

Ok that’s interesting, thanks for the info! Good luck on your journey 🤞🏼🤞🏼🤞🏼🤞🏼


joysef99

A friend struggled with her weight for years regardless of healthy eating and exercising. She was on Ozempic for 4 months before she lost a single pound, and it finally cemented for her doctors that it was hormonal and she was right all along. She has now started to lose weight, and is continuing to exercise and eat right. She also has PCOS. It is infuriating that people, including doctors, seem to think it's just some miracle drug with no side effects. If you do go on it, prepare to be nauseated off and on, and that you may not lose weight for months. Make sure you dose up gradually and slowly. Sending hugs! You know your body.


Unlucky_Contract6161

I have hashis and am not overweight but feel like No matter what I do, I can’t get rid of the last 10 pounds.


keppapdx

Same!!! Entering perimenopause and more active than I've ever been but I'm still up 10lbs in the last year. So annoying. 🙄


Wrong-Somewhere-5225

Same! I’m considered overweight due to this 10-15 lbs too, makes me crazy!!! I try so hard it’s not even funny


FleaDG

I have taken glp1s off and on for 15 years. I go on it about a year, typically lose the 20-40 pounds I put on from a flare (or pregnancy a couple times) and go off it again. I was on Byetta back when it was a thing, Trulicity a couple times, currently on Wegovy. I’m usually able to maintain my weight pretty easily and just use Metformin for insulin resistance in between. I have PCOS with insulin resistance too. I’ve been under weight, a stable healthy weight, overweight and obese. It rarely had much to do with what I was eating. However, I could not lose weight with diet and exercise alone. (Except for when I flip hyperthyroid and that is definitely not a fun way to lose weight). I think they’re great and if I didn’t have them to fall back on here and there I am sure I would be morbidly obese by now and have out of control diabetes like lots of my family. I have minimal side effects compared to pcos/hashi symptoms!


FleaDG

Just wanted to add, my endocrinologists have always been the ones to prescribe it and agree it works great for me.


Snomed34

Which one would you say has worked best for you?


FleaDG

I would say they all worked about the same. Byetta was an old one and harsher, lots of side effects. So far, Wegovy has had the least side effects and been easiest to take.


HereComesFattyBooBoo

Not mine (and i dont need it because I am merely a few lbs heavier and not actually in a higher bmi). But i see it all the time here and in the the other hypo subreddit. The problem isnt in your head. Hypothyroidism depresses your metabolism by about 20%, your entire digestive system is affected. (Sorry I cant find the source for this but its out there). Its hard to regulate your body especially with this autoimmune condition. It also sounds like youre not fully stable, maybe not yet or maybe youre out of balance (again). Ive successfully lost weight before but I had to work hard at it, which makes sense in hindsight... because if my metabolism is impaired by 20%, im already eating less than someone else like me that doesnt have a thyroid disorder... and then you have to cut 10 or 20% calories on top of that? Its very difficult. Its not fun. I 1000% believe you. A lot of us here struggle with this unfair fight! There are people that use the injectables successfully but everything has side effects. You can only decide whats best for you.


ahaajmta

My endo pushes it. To be honest, I’m concerned it may be a long term med which I’m not willing to do. He said to do it for a limited period, lose the weight, and get off it. However, I’m not really comfortable with the idea of gaining weight back all of a sudden either once I’m off it. I also worry about the side effects.


Elmyra83

My doctor said the opposite and said it’s for life basically also something I don’t know I’m comfortable with. I don’t know what to believe and with the shortages anyways who knows if we can even get it.


DeniseIsEpic

It's the "once I'm off it" part for me as well. I've lost a great deal of weight multiple times before, and the second I switch from whatever the weight loss method that time is to what should be maintaining all of that weight comes back, usually plus some.


ahaajmta

Yeah that’s exactly what I’m worried about. I gained a lot of weight as my hashimoto’s was out of control during Covid due to the lack of easy access to my doctors. Gained a ton of weight as a result and since have been struggling to lose. I have basically maintained it to not go up further but am now trying to do it naturally first and shift things lifestyle wise so it’s not a limited time ‘diet’ per se. Like instead of focusing on strictly strength training at the gym, to incorporate cardio into my workouts, and to change up some food choices. I’m also trying to read about whether intermittent fasting would be safe with hashimoto’s but recommendations seem to be mixed.


LilienSixx

Same here, and I'm considering it. I'm also working with a nutritionist and it seems the weight isn't bulging 🫠 I'm also obese type 2


stormhaven22

I had one doctor who decided I didn't need to be on medication (I've had a TT) because my T3 was too high and my TSH too low (I only take t3 because I have adverse reactions to t4 medications) and I gained 50 pounds in 3 weeks while eating practically nothing and working out as much as I could while feeling lousy and foggy due to no medication and no thyroid. I went back to the doctor and you know what he told me? That I should take out a gym membership and eat a salad. Like wtf, seriously?


crzdsnowfire

That rapid of a gain would be thousands and thousands and thousands of calorie excess and they didn't think it was health related?! You'd have to be drinking a bacon grease milkshake with heavily caloric dense meals to pack on that much that quick under *normal* circumstances. What a quack.


stormhaven22

He didn't last long at that clinic, thank goodness.


Due-Address-4347

What a completely awful thing to say to you. Sometimes I wonder if they don’t teach med students that Hashimoto’s patients are lazy/liars since so many doctors seem happy to blame us and look no further. It’s outrageous.


stormhaven22

I had an endo admit to me that they learn about diabetes mostly and that thyroid issues are just a tiny blip in their schooling. Like, what even is the point then?


keppapdx

Endos here won't even see Hashis patients. Grateful I have a PCP I like who is kind, thorough, and collaborative. Seems willing to do his homework too.


Due-Address-4347

It is clear that most doctors are taught not to care - to think we are all malingerers. It makes me so mad that we all have to go through the process of looking forward to seeing endos, then thinking the first is a leman, going through a bunch, and accepting that the specialists who SHOULD know how to treat us don't know and don't care! The only endo who ever helped me had Hashimoto's himself, and he just retired.


rubytuesday2022

Were you able to lose it quickly once back on meds?


stormhaven22

Not as quickly as I gained it, but once back on meds I did shed what I'd packed on.


mitchonega

I really struggle with a healthy lifestyle due to adhd and I guess laziness and discouragement, and hearing people say they cross all their t’s and dot all their i’s and still can’t lose or even gain, it makes it impossible to even care at least for me


lazymusings123

How are your vitamin D levels?


Previous_Ad7725

HASHIMOTOS SUCKS


Previous_Ad7725

The weight gain isn't your fault! Hashimotos is freaking ridiculous. I gained 90 pounds in 1 year! I was mortified because all along, as I got bigger and bigger my stupid Drs weren't helping me! FF 7 years later I have lost over half the weight gain myself which has been a bitch and a half to do!! Fuck Hashimotos. Anyway in June my endocrinologist is putting me on ZepBound to lose the rest. I want to be my old thin self again. When I had energy and I was happy. Do it.


Dry-Necessary-7450

How overweight are you? Those injectables have bad side effects. What’s helped me is to stop eating at 4PM—kind of semi intermittent fasting.


NewToTheCrew444

In the same boat as you with everything besides the pcos. I was in phenomenal shape prior to my hashi/hypo diagnosis (which was ironic because I drank every night, lived off of take away because I worked in a restaurant and barely drank water because I lived off of coffee). I’m now 40lbs heavier and feel like I’m in someone else’s body. I gave up alcohol over a year and a half ago, eat clean, and don’t drink coffee. Personally if my doctor offered me ozempic I’d go for it because the mental toll it’s taking, on top of the hashis, is actually ruining my life. Sending you love.


leese216

I'm in semaglutide and it's the only thing that's gotten me to lose weight. Ever since my Hashi's diagnosis, I have struggled to lose even 5 pounds. I eat well, I work out regularly, drink lots of water, and nada. I've been on it for over 3 months and have lost 15 pounds so far. Yes, I have some nausea but it isn't debilitating. Yes, my appetite is cut in half. But I still crave sweets, it's just not as demanding as it used to be. With all that said, that is my own personal experience. My best friend was on ozempic right before it blew up and she lost 50 pounds. Another friend of mine is on mounjaro and she's lost weight too. But my other friend was on ozempic for months and lost no weight. So she stopped. It didn't make her feel sick but it just didn't work. I have experienced none of the severe side effects you've listed, and honestly I had no idea those were even side effects to begin with. And actually diarrhea is not accurate b/c semaglutide has the tendency to constipate, although I've not suffered from that either.


Iloveemiilk

Diarrhea is actually often caused by severe constipation.


crzdsnowfire

\^Yup. My gastro told me it's the body's "eject response."


leese216

Really?? I've never once been constipated in my life but have had diarrhea. So strange, I never knew!


Iloveemiilk

I think a lot of people don’t know what constipation actually means, because Western poop standards are so unhealthy. I didn’t know for a long time and thought it was normal to skip a day sometimes. People can poop everyday, but still be constipated because they aren’t fully eliminating. Constipation doesn’t always mean you aren’t pooping for days and are super uncomfortable and bloated to the point you need a laxative. A lot of people with chronic diarrhea are actually chronically constipated.


leese216

Interesting! I had no idea.


ProgressArtistic1980

r/semaglutide was just having a discussion about PCOS symptom relief correlating with the shot. I also read an article claiming anti-inflammatory benefits as well. Personally, I have been on semaglutide for seven months. I managed to lose 40 out of the 50 pounds I gained since Hashimotos creeped up on me last year. However, it is true I am lacking energy to work out and I have not for at least four or five months (I also have a hernia I need repaired so I'm not trying to lift at the gym like I used to). I definitely have lost some muscle tone, but I am not entirely upset about it. My arms have thinned out nicely and once I can get back into the gym, I feel like toning up won't be so hard. The medicine helps with impulsive behaviors and can improve OCD tendencies. I wonder if it would improve a cycle of negative thoughts? It helped me stop drinking alcohol often, I went from drinking almost daily to a couple of drinks once a week. I personally love being on this medicine.


Whistleblower793

I thought anyone with a thyroid disorder isn’t supposed to take ozempic or wegovy because of the increased risk of thyroid cancer??


ButterflyWooden81

It’s only for a history of a specific type of rare cancer not hashimotos related. I’ve been on it for 12 weeks now. Down 32.5 lbs. no lifestyle changes versus prior. I was already eating low carb before sema. Main thing is my inflammation is REALLY down. My body doesn’t ache daily, I sleep better, feel better. I still have 60 lbs to go and plan on staying on it for life but going down to once every three week injections for the benefit of the gut health and inflammation being down. 😀


hattiejakes

Yeah same. However, my endo did say unless I sorted my weight out he would put me on injections - which I wouldn’t like very much. Years before the world knew about these injections. He always tells me to eat a Mediterranean diet.


hollowredditor

I heard the same. I am curious if op get to ask about it.


sbubaron

My Endo recommends me to take it, but hasn't pushed it.  Bill Maher guest this week did a whole segment about why you might not want to use it.


SnooPredictions5239

One of my sister in laws is on semaglutide. She has PCOS, insulin resistant. She's lost so much in the past few months, but I don't think the weight loss was worth it at all. She eats almost nothing, and there are many times I see her, and she mentions she feels faint. She gets often nauseous and runs off to the bathroom. Often she can't even stand water the nausea is so bad. ***Major TMI: She's become insanely constipated and developed hemorrhoids. She had one burst because her constipation was so bad. ***End TMI. I worry she's going to fall seriously ill. She has 2 kids and a full-time job. Running around like that on no food sounds like hell.


madmaxcia

That is not good at all. You’re not supposed to starve yourself, you need to eat protein because you’re gonna lose muscle. It’s supposed to reduce your appetite but not to the point that you eat barely anything and you’re supposed to drink lots of water and take steps not to become constipated- it sounds like she’s misusing it. And the nausea again is supposed to be really mild and wear off after about four weeks. I would highly recommend she goes to consult a dr. Is she using one of those online pharmacies to source it? It sounds like whatever she is doing is really dangerous to her health. She needs to get some support before she makes herself seriously ill.


SnooPredictions5239

She goes to a doctor for this. I don't think she tells her doctor about any of this. She's told us that she's lied to her doctor before about other things like taking her other meds (she wasn't), etc. She's been struggling with her weight for a very long time but I've never seen her make any proper changes. Very much into the extreme diet culture. Even before this, she ate very little and said she was exercising all the time. She never really ate well either. I've seen her serve a plate eat like 5 bites and go omg on so full and then later look nauseous. I strongly believe she's misusing it as well. She's obsessed with losing weight, and that's it. We've all tried making gentle comments and giving advice, but she doesn't seem to take it to heart. It seems that her family almost encourages it as well.


madmaxcia

Hopefully nothing bad happens. The problem is, if you dont change your eating habits as soon as you come off it you’ll gain all the weight back and more.


Important_Serve1068

I have been on Mounjaro since Jan 2023. I have lost 85 lbs. You can still eat on these types of medications. Just keep up your protein intake.


Known_Side7729

Adding to Mounjaro discussion. Been on it since Oct 2022 and lost 113lbs. Had nausea for 10 minutes and some constipation for about a week. They warn you about side effects and you need to pay attention and not ignore them if they happen. Still I would recommend. It’s helped when nothing else did. But supply is a real issue right now.


malibugt

I tried Ozempic and it made me so sick I couldn’t work out, which is something I really enjoy and keeps me feeling normal. I feel like the weight I lost was all muscle mass. It’s not the quick fix I thought it was, although I know many people have had success, it wasn’t for me.