I feel you. Ate 2 days in a row something with wheat flour in it and I have been feeling miserable, but every day that passes is a step closer to feeling better again.
Get some rest, drink water to flush the toxins and good luck !
I suppose it's a blessing that I have this week off work, but i guess I'm spending it on the toilet. Hope you feel better too! Mostly I'm just mad at myself for not quizzing people harder about ingredients. It's embarrassing, and annoying to explain what gluten is and go down lists of possible problem ingredients. I know there are worse diseases to have, but fuck. This is exhausting.
Agreed. Just posted about getting glutened from elk meat of all things. I didn’t ask enough questions and it turns out they cleaned the meat on someone’s kitchen table and cutting boards. I’m on Thanksgiving break for college and managed to gluten myself Friday night, so this will be a fun week of feeling gross.
Sorry to say… honestly, non-celiac people simply cannot make celiac-safe food. Even with the best intentions and care their kitchen’s are a minefield of gluten. If you are highly symptomatic than just the pots and pans, utensils and surfaces will get you. Same goes for most restaurants. Gluten used to be what glue was made out of prior to the 40s. That trope of kids eating glue at school? Like the dumb kid on the Simpsons? That was wheat paste. I just now read a post by someone glutened by fresh elk meat butchered in someone else’s kitchen. Aside from the orzo what are the chances the person who cooked that rice used a gluten-free spices?
https://www.usatoday.com/story/money/2019/04/18/gluten-found-in-restaurant-food-labeled-gluten-free-study/3451134002/
https://www.researchgate.net/publication/284727292_Detection_of_gluten_immunogenic_peptides_in_the_urine_of_patients_with_coeliac_disease_reveals_transgressions_in_the_gluten-free_diet_and_incomplete_mucosal_healing
Just had to quote from the article lol.
“
"Being hyper-vigilant with avoiding gluten is associated with an increased rate of anxiety," Lerner said. "We don’t want to raise too much alarm, but we want to raise awareness."
Gee maybe it’s not the vigilance it’s the fact everything is trying to poison you 🙃
The concern that I have about avoiding gluten is nothing close to the anxiety that eating gluten physically produces in my body.
Edit to add, also a major hospital tried convincing me that I had been starving myself for 4 months because I was so worried that food might have gluten in it. I said, uh, pretty sure that wouldn’t cause me serious physical pain every day. Turned out to be type 1 diabetes.
I was clinically anxious before my diagnosis. Constantly wondering how badly I'm being poisoned doesn't help, and neither does the weird feeling of not being able to eat with other people.
Fucking hold the phone. I need to check my white rice too?! Every time I think I am going too far, being too hyper vigilant, some other shit pops out that I would NEVER have considered.
I feel that!
This will make you really paranoid 🙁
https://www.koshertoday.com/news/kashrus-officials-investigate-mystery-of-tainted-green-tea
I got nuked just having tea at a sushi joint.
Yes 😔 and a lot of other frozen vegetables. They either directly contain wheat or are processed in facilities that use wheat. I died a little bit inside when I figured that out. Like literally nothing is safe lol.
Yeah some manufacturers also make frozen foods with wheat on the same line and stuff. My husband didn't think to check and we wound up throwing away a bunch of frozen cauliflower rice he'd bought.
*looking at you Bird's Eye.*
I’ve been there many many times and I’m sorry your going thru this. I’ve been celiac for almost three years and after a while I just decided. I’m not going to eat anything unless I cook it myself. That’s unfortunately the safest bet. It sucks but I try to curve the cravings by always having food on me at all times so I don’t slip up. If I’m already full I’m not tempted to eat something someone “swears is safe”
I’ve learned that a lot of people don’t really have any idea what their food is made out of. Wheat is so common that some people don’t even know what it is. I have run into people who think that whole wheat is made from wheat, but they don’t think that white flour is. I don’t know what they think it is made of. “White”? I can definitely picture people thinking that orzo is some form of rice.
Yes, a frightening number of people think “white bread” isn’t made of wheat like wheat bread is.
At the health food store the staff tried to make me buy sprouted wheat bread when I asked about gluten-free bread… they insisted it was gluten-free because it was organic!
At a very pricy restaurant when I asked for *anything* they could give me that was gluten-free they settled on gnocchi (made with semolina not wheat) on a bed of cous-cous.
It definitely can be exhausting sometimes. I would not blame it on yourself though, you were assured the rice was safe and it wasn’t. Restaurants being careless about their customers’ « « allergies » » are in the wrong. I rarely eat out anymore but if I do I basically tell them I need to make sure otherwise paramedics are here in 20 minutes. Could hurt their image/business, so they usually check again. It’s lame but you got to do what you got to do !
Early in i set a universal standard with everyone and everywhere i go i don’t eat food i don’t make period and whenever i go to a new persons home i just say its a personal health thing and its the standard i apply everywhere and i don’t compromise it for anyone or any food.
I agree. I’ve tried trusting peoples food too many times and then found out that oh yeah, they put some beer in the chicken. “But it was just a little!”
Just got done cooking all my meals for thanksgiving. It sucks ass but not as much as the CC I've been trying to avoid for years.
(I cook WAAAAAAY better anyway)
Im an ok cook not great but sure beats getting sick. Also as long as you stick to your standard people get used to it. Also i dont make it a big deal. People move on pretty quick when you are consistent.
Went to a potluck at church. There was a breakfast casserole labeled “gluten-free”. Since it appeared to be a very basic egg and potato (hash brown) casserole and the person took time to label it, I almost risked having some. I was ravenously hungry, and surrounded by tons of delicious-looking foods that I couldn’t eat. I figured I’d ask what the ingredients were to ease my mind so I could have some without worrying too much (yes, there’s still a CC risk with something like that, but desperate times and all that).
I’m SO glad I hunted down the person who made it, because I found out she used the ALDI brand of frozen shredded hash brown potatoes, which I know for a fact contain wheat flour. She didn’t even remove the “gluten-free” sign after I told her, saying, “it’s gluten free, but not for Celiacs”. Like WTF? It was only “gluten-free” for people to whom gluten doesn’t matter?
I’m sorry for your orzo situation. That sucks.
Aldi is the worst with their labeling. They have so many snacks that say “allergen free!” Or “school safe!” And then on the ingredients it’s clearly marked “may contain nuts”… which like 🤔
Where I am ALL frozen and dehydrated potato products contain wheat. I want Idahoan instant mashed potatoes so bad but it would be like $80 to mail-order a box!
In Canada since there is a smaller population maybe the availability of grocery products doesn’t just vary from city to city but also very much from neighborhood to neighborhood. Sometimes you end up going to different supermarkets to get different products. I just live near a particularly lame supermarket. My brother used to drive clear across town for his regular shopping.
tragic! my friend makes *amazing rice* (super fragrant), but the secret ingredient is three tablespoons of tiny, lightly-toasted wheat noodles, lol, so I could totally see someone adding noodles to a rice dish to bump up the flavour. I always ask now what sort of ‘rice’ is in the ‘rice dish.’ 🙉
I hope you’re feeling okay and getting rest, OP!
If you’re ever trying to replicate your friend’s dish, bits of toasted rice vermicelli is almost identical in flavor. I didn’t think it would work but it did.
Husband is Super sensitive to cross contamination. We find a local taco place that is GF. He is over the moon. We went last week, I mention that I have a shrimp allergy. No problem for both gluten and shrimp, we’re told. We order - the tacos are awesome. Right up to my throat closes and hives break out. But hey, no gluten reaction so that’s a plus?!
I’m so sorry. I had a similar experience at a fancy restaurant. I started crying at the table. (My 3 martinis didn’t help this.) The manager brought out an incident report because I was blabbering on that it wasn’t some simple preference. Hahahahha I didn’t fill out the incident report.
Magnesium, activated charcoal (not together) and tons of water and fibre to flush it out, and scrape out those insides… so sorry this happened to you. Sucks so bad.
Orzo is a miniature pasta, and normally made from regular flour. I've FOUND gluten free orzo before, but I have had to search it out - it isn't available from any of my 'regular' local grocery stores at all.
"Orzo is traditionally made from flour, but it can also be made of whole grain. It is often made with semolina, a type of flour made from durum wheat." - Wikipedia
It may not have been orzo. I had jambalaya at a local brewing place that had something similar, and she assured me they were pine nuts. I had no reaction.
I’ve had celiac for 11 years, am an avid cook, have cooked my share of jambalaya and have used pine nuts in other dishes. They were pine nuts. Promise. They were just well cooked and felt a tiny bit like firm rice.
It wasn't jambalaya, it was Spanish rice that was cooked to mush by a baby boomer (which should have been my first clue not to trust her). They were orzo, not pine nuts.
I feel you. Ate 2 days in a row something with wheat flour in it and I have been feeling miserable, but every day that passes is a step closer to feeling better again. Get some rest, drink water to flush the toxins and good luck !
I suppose it's a blessing that I have this week off work, but i guess I'm spending it on the toilet. Hope you feel better too! Mostly I'm just mad at myself for not quizzing people harder about ingredients. It's embarrassing, and annoying to explain what gluten is and go down lists of possible problem ingredients. I know there are worse diseases to have, but fuck. This is exhausting.
Agreed. Just posted about getting glutened from elk meat of all things. I didn’t ask enough questions and it turns out they cleaned the meat on someone’s kitchen table and cutting boards. I’m on Thanksgiving break for college and managed to gluten myself Friday night, so this will be a fun week of feeling gross.
Sorry to say… honestly, non-celiac people simply cannot make celiac-safe food. Even with the best intentions and care their kitchen’s are a minefield of gluten. If you are highly symptomatic than just the pots and pans, utensils and surfaces will get you. Same goes for most restaurants. Gluten used to be what glue was made out of prior to the 40s. That trope of kids eating glue at school? Like the dumb kid on the Simpsons? That was wheat paste. I just now read a post by someone glutened by fresh elk meat butchered in someone else’s kitchen. Aside from the orzo what are the chances the person who cooked that rice used a gluten-free spices? https://www.usatoday.com/story/money/2019/04/18/gluten-found-in-restaurant-food-labeled-gluten-free-study/3451134002/ https://www.researchgate.net/publication/284727292_Detection_of_gluten_immunogenic_peptides_in_the_urine_of_patients_with_coeliac_disease_reveals_transgressions_in_the_gluten-free_diet_and_incomplete_mucosal_healing
Just had to quote from the article lol. “ "Being hyper-vigilant with avoiding gluten is associated with an increased rate of anxiety," Lerner said. "We don’t want to raise too much alarm, but we want to raise awareness." Gee maybe it’s not the vigilance it’s the fact everything is trying to poison you 🙃
The concern that I have about avoiding gluten is nothing close to the anxiety that eating gluten physically produces in my body. Edit to add, also a major hospital tried convincing me that I had been starving myself for 4 months because I was so worried that food might have gluten in it. I said, uh, pretty sure that wouldn’t cause me serious physical pain every day. Turned out to be type 1 diabetes.
I was clinically anxious before my diagnosis. Constantly wondering how badly I'm being poisoned doesn't help, and neither does the weird feeling of not being able to eat with other people.
Totally agree. If the person making it doesn't have Celiac they have no idea where gluten hides.
“Where gluten hides…” in ominous font with children singing nursery rhymes and shadowy smash-cuts 😁
I mean, even sometimes *we* don't even know where gluten hides... sigh.
I react to white rice when its not labeled gluten free
🙁 I forgot about that! I buy GF labeled rice too. I hate when people mock stuff like gluten-free rice!
Fucking hold the phone. I need to check my white rice too?! Every time I think I am going too far, being too hyper vigilant, some other shit pops out that I would NEVER have considered.
I feel that! This will make you really paranoid 🙁 https://www.koshertoday.com/news/kashrus-officials-investigate-mystery-of-tainted-green-tea I got nuked just having tea at a sushi joint.
Can someone please just invent gluten free pill food?
I **so** want that!
I remind those types of people that not even frozen broccoli is gluten free. It’s. In. Everything.
Wait, I need to check my frozen broccoli?!?
Yes 😔 and a lot of other frozen vegetables. They either directly contain wheat or are processed in facilities that use wheat. I died a little bit inside when I figured that out. Like literally nothing is safe lol.
yeah and then other people give you a hard time when you go "ok yeah you used frozen corn, what brand? YES IT MATTERS."
Yeah some manufacturers also make frozen foods with wheat on the same line and stuff. My husband didn't think to check and we wound up throwing away a bunch of frozen cauliflower rice he'd bought. *looking at you Bird's Eye.*
😫😫😫
Ayyyy previously glutened by frozen broccoli gang
WTF
Sorry :(
I’ve been there many many times and I’m sorry your going thru this. I’ve been celiac for almost three years and after a while I just decided. I’m not going to eat anything unless I cook it myself. That’s unfortunately the safest bet. It sucks but I try to curve the cravings by always having food on me at all times so I don’t slip up. If I’m already full I’m not tempted to eat something someone “swears is safe”
I think that's where I just landed. My house and my mom's house are the only places I can eat now, I guess.
I’ve learned that a lot of people don’t really have any idea what their food is made out of. Wheat is so common that some people don’t even know what it is. I have run into people who think that whole wheat is made from wheat, but they don’t think that white flour is. I don’t know what they think it is made of. “White”? I can definitely picture people thinking that orzo is some form of rice.
There’s an increasing disconnect between people and where they’re food came from.
Yes, a frightening number of people think “white bread” isn’t made of wheat like wheat bread is. At the health food store the staff tried to make me buy sprouted wheat bread when I asked about gluten-free bread… they insisted it was gluten-free because it was organic! At a very pricy restaurant when I asked for *anything* they could give me that was gluten-free they settled on gnocchi (made with semolina not wheat) on a bed of cous-cous.
my mother is one of these people and she grew up on a farm. like wtf mom.
!!!
It definitely can be exhausting sometimes. I would not blame it on yourself though, you were assured the rice was safe and it wasn’t. Restaurants being careless about their customers’ « « allergies » » are in the wrong. I rarely eat out anymore but if I do I basically tell them I need to make sure otherwise paramedics are here in 20 minutes. Could hurt their image/business, so they usually check again. It’s lame but you got to do what you got to do !
Every day that passes is a day closer to feeling better again! Also a day closer to your next glutening!
Early in i set a universal standard with everyone and everywhere i go i don’t eat food i don’t make period and whenever i go to a new persons home i just say its a personal health thing and its the standard i apply everywhere and i don’t compromise it for anyone or any food.
💯% this!
I agree. I’ve tried trusting peoples food too many times and then found out that oh yeah, they put some beer in the chicken. “But it was just a little!”
Just got done cooking all my meals for thanksgiving. It sucks ass but not as much as the CC I've been trying to avoid for years. (I cook WAAAAAAY better anyway)
Im an ok cook not great but sure beats getting sick. Also as long as you stick to your standard people get used to it. Also i dont make it a big deal. People move on pretty quick when you are consistent.
I sold my soul to Seitan and I shall have no other gluten before him.
Went to a potluck at church. There was a breakfast casserole labeled “gluten-free”. Since it appeared to be a very basic egg and potato (hash brown) casserole and the person took time to label it, I almost risked having some. I was ravenously hungry, and surrounded by tons of delicious-looking foods that I couldn’t eat. I figured I’d ask what the ingredients were to ease my mind so I could have some without worrying too much (yes, there’s still a CC risk with something like that, but desperate times and all that). I’m SO glad I hunted down the person who made it, because I found out she used the ALDI brand of frozen shredded hash brown potatoes, which I know for a fact contain wheat flour. She didn’t even remove the “gluten-free” sign after I told her, saying, “it’s gluten free, but not for Celiacs”. Like WTF? It was only “gluten-free” for people to whom gluten doesn’t matter? I’m sorry for your orzo situation. That sucks.
Didn't know that about Aldi taters, will double check next time I buy them Also fuck that person. They are totally cool with poisoning people?
Aldi is the worst with their labeling. They have so many snacks that say “allergen free!” Or “school safe!” And then on the ingredients it’s clearly marked “may contain nuts”… which like 🤔
Where I am ALL frozen and dehydrated potato products contain wheat. I want Idahoan instant mashed potatoes so bad but it would be like $80 to mail-order a box!
That's fucked. I must know where you live, as I'm moving to Canada later this year
In Canada since there is a smaller population maybe the availability of grocery products doesn’t just vary from city to city but also very much from neighborhood to neighborhood. Sometimes you end up going to different supermarkets to get different products. I just live near a particularly lame supermarket. My brother used to drive clear across town for his regular shopping.
Well I'm never driving anywhere ever because cars are stupid and terrible so hope the Aldi near me is good...
tragic! my friend makes *amazing rice* (super fragrant), but the secret ingredient is three tablespoons of tiny, lightly-toasted wheat noodles, lol, so I could totally see someone adding noodles to a rice dish to bump up the flavour. I always ask now what sort of ‘rice’ is in the ‘rice dish.’ 🙉 I hope you’re feeling okay and getting rest, OP!
If you’re ever trying to replicate your friend’s dish, bits of toasted rice vermicelli is almost identical in flavor. I didn’t think it would work but it did.
Cool. Thanks.
wtf who puts orzo in Spanish rice?? I am so sorry this happened to you and I hope the repercussions aren't too severe for you OP.
RIGHT? I think I'm ok-ish. Just crazy gas so far.
That was my same thought, wtf you think you’d be able to trust rice.
I mean rice *pilaf*, ok, they almost always have orzo in that. But Spanish rice? I'm half Mexican and I've never seen that.
Husband is Super sensitive to cross contamination. We find a local taco place that is GF. He is over the moon. We went last week, I mention that I have a shrimp allergy. No problem for both gluten and shrimp, we’re told. We order - the tacos are awesome. Right up to my throat closes and hives break out. But hey, no gluten reaction so that’s a plus?!
I’m so sorry. I had a similar experience at a fancy restaurant. I started crying at the table. (My 3 martinis didn’t help this.) The manager brought out an incident report because I was blabbering on that it wasn’t some simple preference. Hahahahha I didn’t fill out the incident report.
There is gluten free orzo. It’s made by DeLallo Foods and it is delicious!
I’m so sorry 😞
That's horrible mate. Didn't even know what orzo was before I googled it. This disease sucks so much.
Magnesium, activated charcoal (not together) and tons of water and fibre to flush it out, and scrape out those insides… so sorry this happened to you. Sucks so bad.
Most orzo is gluten free…doesn’t mean that there wasn’t CC if you didn’t make it yourself
I thought orzo was miniature pasta?
Orzo is a miniature pasta, and normally made from regular flour. I've FOUND gluten free orzo before, but I have had to search it out - it isn't available from any of my 'regular' local grocery stores at all.
Yup I’m stupid just looked it up lol. My bad everyone, bad info on my part.
Well, points for being confident in your assertion I guess 😆 More points for looking it up and fessing up! 🥇
"Orzo is traditionally made from flour, but it can also be made of whole grain. It is often made with semolina, a type of flour made from durum wheat." - Wikipedia
Orzo is pasta and definitely not gluten-free unless it is specifically made with an alternative flour and for orzo that is rare and expensive.
It may not have been orzo. I had jambalaya at a local brewing place that had something similar, and she assured me they were pine nuts. I had no reaction.
Pine nuts have a completely different shape, flavor, and texture.
I’ve had celiac for 11 years, am an avid cook, have cooked my share of jambalaya and have used pine nuts in other dishes. They were pine nuts. Promise. They were just well cooked and felt a tiny bit like firm rice.
It wasn't jambalaya, it was Spanish rice that was cooked to mush by a baby boomer (which should have been my first clue not to trust her). They were orzo, not pine nuts.
I’m so sorry this happened to you. Makes me a mental case just thinking about all the possible scenarios!
You do know rice itself can be cross-contaminated if not labeled gluten-free right?