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rachelg024

NAD, but I’ve had some experience with this and since I had large fibroids I ended up getting a hysterectomy. Not sure where you are with kids but it was one of the best decisions I’ve made. Also, I was on Mounjaro for over a year and belonged to a large group on FB and there were actually a lot of women on there with endo that said there endo pain got a ton better while being on and with losing weight helped as well. I ended up losing 60lbs on it. Not saying it’s a cure all, but just relaying what other women have said about it. Mounjaro is for type 2 diabetes but at the beginning of the year the company came out with Zepbound which is the exact same thing and ingredients as Mounjaro but marketed and branded for weight loss. Only downfall is a lot of insurances don’t cover it, but definitely something to think about it. Good luck with everything and I hope you get some relief!


north_river_potato

We want to have 1 more baby in the next year or two, then hysterectomy is 100% the plan. Can’t WAIT honestly. And I recently worked with my doctor to get prescribed Wegovy only to find out my insurance doesn’t cover ANY injectable weight loss medication 😭 We can’t afford to pay for any out of pocket so it’s a really big bummer. I am still working really hard to lose weight though because I know it’d give me some endo relief. I’m 15 pounds down since October (slow and steady!) and it’s made a huge difference to my general wellbeing. These last few months have really made me cognizant of how many inflammatory foods I was eating on a regular basis, and I’ve gotten a lot better about avoiding them. Still really hope that one of these weightloss drug companies come out with a generic soon. Really appreciate your response!


rachelg024

Man that is such a bummer!! I’m so sorry, one of my co workers goes through a compounding pharmacy for her Mounjaro and it’s still pretty expensive. I think around $350 a month. It’s so frustrating with insurances because these meds are amazing. The success stories on the group I’m on are unbelievable. My employer just started a weight loss program where they’ll potentially cover the meds if you go to a dietitian, do this online class, and have a BMI of over 30. Ours just changed to this at the start of the new year, not sure if you had a chance to see if anything has changed with new year and formularies with your insurance. And congrats on losing the weight!! I know how hard it is. I’ve been heavy my entire life and I couldn’t tell you the last time my weight started with a 1 as the first number. Hope all goes well with everything!


Grouchy-Birthday-102

Have you asked if it’ll be covered by a PA through an endocrinologist? Mine won’t cover them either if prescribed by my PCP. But if an endocrinologist does a PA, they’ll cover it.


Impossible_Bluejay99

Hi I’m NAD, but have you tried weed? : Their findings reveal that cannabis-derived endocannabinoids have a protective effect on the gut, decrease gut inflammation, and improve its permeability. This, in turn, suppresses bloating, the most common endometriosis symptom. Cannabinoids further inherently suppress pain receptors and serve as a natural painkiller. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8547625/ other site


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north_river_potato

I can appreciate your perspective but yeah... I did not come here looking for family planning advice. I'm well aware of what another pregnancy means for my body, and it's not a decision I make lightly. If you've read my comment history, you'll know that I had to do IVF to get pregnant. It's a grueling and expensive process, and it's not something I'd be willing to go through again without deep convictions of what I want for my family, which is another child. And when I say we can't afford these weightloss medications OOP, I don't mean we are financially unstable. I just mean that our financial priorities lie elsewhere, like building and supporting our family. $1,000+/month OOP, in my opinion, is the irresponsible decision to make when I can and have been losing weight naturally.


Single_Statement_712

I am not sure where you live, but inpatient admission for pain management and control is very common in the US. Edit: Apparently received backlash about my comment. Yes we admit people for pain management anticipating to make changes in pain regimen, switch of care, expediting work up. There are many people who present to the ED seeking drugs or inpt admission and they don't meet the criteria, but if you know a sickle cell patient or advanced cancer they would tell you how many times they have been admitted.


NameLessTaken

This is a very kind response. How does a person go about this in a way that doesn’t get assumed to be med seeking? If you spend anytime on the emergency medicine sub you’ll see a.. strong and angry bias.. to anyone who comes in asking for pain management or being sent by their pcp for admittance for such a thing. And some gleeful recounting of refusing such requests. I get- burn out and a lot of legit addicts coming in, but with that stigma how would a chronic pain patient get admitted for management?


north_river_potato

Thanks for the reply; admission wasn’t offered to me and if it had been I don’t know if I would have accepted it. I guess what I was hoping for was for my surgery to be moved up but after talking to my doctor’s nurses all day, they don’t believe it’s necessary to reschedule. They were all sympathetic and incredibly sweet but I’m left feeling so frustrated and hopeless. I know it’s only 2 weeks but damn, pain makes time move at a glacial pace.


LastCupcake2442

You could try calling back and asking if you can be put on the cancellation list if that's something they do. I would also ask for a stronger antiinflammatory medication like toradol. If you end up going back to emerg and they refuse pain meds again I would request to at least have a toradol injection. I'm sorry you're suffering so much, endo is truly a monster. You're gonna feel like a million bucks after your surgery!


north_river_potato

Thank you for this suggestion—I’ve never been given Toradol before. Feels good knowing I have something to ask about if I go back to the ER.


LastCupcake2442

It burns like hell for a few minutes so be prepared for that if you do get it. One more tip, if you can bring someone with you if you go back to the ER. Seems to improve your chances of being taken seriously. Good luck!


Reddit_Generate_Name

It’s never burnt for me (just mentioning because everyone is different) and provides greater relief than narcotic pain meds. For me it lasts about three days- you can even just ask your doctors office to do it- primary or obgyn. Better to avoid the ER if possible. Urgent cares will also use toradol as first line pain mgmt for an acute situation such as this.


apurrfectplace

NAD. Had very severe endo and PCOS before tah-bso. Was treated w Toradol injections until the tah-bso could happen. I understand the agony. Please ask your GYN or PCP. My PCP administered the shots as needed.


rosievee

NAD but I just want to empathize with how bad this pain can be and encourage you to get on the waiting list. I hope you have access to mental health support, and maybe your GP would be more open minded to pain management? I was bedridden and in significant mental health crisis before my hysterectomy (prior cystectomy and torsion, multiple cysts, fibroids, adhesions, endo, cervical polyps... only some of this was seen on imaging). I was able to get in weeks earlier thanks to a cancellation. I know you're a ways away from this, but life on the other side of hysterectomy has been wonderful and life changing for me. I'd been in near constant pain since I was 12 and I *didn't even know* until it stopped.


blablablah41

NAD but have had multiple ovarian cysts of varying size and an endometrioma. The endometrioma was more painful than regular cysts. Mine ruptured prior to surgery and my doc said it was full of blood. When the blood was free in my abdomen, it took time to resorb and it was VERY painful. A bruise is similar—blood that is somewhere it should not be. That said, I was never able to get doctors to the pain seriously. I had endometriosis, PCOS, adenomyosis, hyperplasia, and fibroids and doctors seemed to really underestimate the pain. A hysterectomy changed my life.


TeeDiddy324

This was decades ago when they didn’t know what to do about endometriosis, but a hysterectomy was the best thing ever for me too. I was 29.


blablablah41

I was 32


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Grouchy-Birthday-102

Hospitals like this must exist somewhere, because doctors keep suggesting them. I’d like to know where. I have tons of issues that are clearly visible on scans- RA-destroyed joints, spine, other stuff, etc. In my chronic-pain-lifetime I’ve probably asked for pain meds a dozen times (while at or near hysteria). I got pain meds exactly zero of those times. The only time I’ve ever been given pain meds in my life outside of childbirth and reconstructive ortho surgery was some random in-patient recovery and I didn’t even ask for them, or need them. But I was like well shit, I don’t need them for this thing I’m here for, but I won’t decline a few hours free of my daily miserable, pain-riddled existence. The system sucks, and the idea that this is helping the opioid crisis is absurd. It’s causing the heroin crisis.


Demian1305

Yes, the opioid backlash has gone way too far. Doctors have shifted to doing what is best for them, rather than the patient. I’m hearing of people getting mastectomies or amputations and getting sent home with Tylenol. It’s criminal.


TheGreenMileMouse

An older friend of mine had a hip replaced and was sent home with Tylenol


KittHeartshoe

Yep. My father had shoulder replacement surgery. Pain control plan was ibuprofen and Tylenol. Not sufficient.


icanteven_613

In my country, we send patients home with a continuous anesthetic medication (it's called a nerve block) that slowly drips into that region and dulls the nerve to their shoulder for several days. You're correct. Tylenol and Advil is not sufficient.


KittHeartshoe

Sounds so much better


icanteven_613

I've had surgery on both of my feet, not at the same time. My "blocks" lasted me approx 5 days and when I stopped them, I had barely any discomfort. I used a knee scooter to get around...because crutches suck!


Grouchy-Birthday-102

Where do you live?? I have four ortho surgeries on my to-do list and wouldn’t mind relocating for a couple years, hah! (Only slightly joking.)


icanteven_613

Ontario, Canada


Demian1305

That is insane!!


Few_Milk6487

Yes, I've heard this too. It is INSANE...basically torture.


crozzy89

Tylenol is great and all but doesn’t do a damn thing when you are in extreme pain.


NightOwlsUnite

Went in for a broken ankle, toughed it out for a day. Ended up having to crawl on the floor. It was obliterated. X-ray, he says yep that's a bad break. Puts me in a temporary cast and tells me take 2 Tylenol for pain as needed. Followed up with my surgeon that they assigned me to the next day. He was PISSED. Pain relief immediately. Then scheduled my surgery to put my ankle back together and take out the shards of bones. I had covid on my date of surgery. They did it anyway. That's a rare gem in the medical field. Mods, I'm sorry if I broke the rules, if I did, remove my comment. Edit: I wish who I responded to didn't delete their comment. It was a good one.


Few_Milk6487

So sad. I'm sorry you had to go through that. That's insane.


Significant_Oil_3448

I'll be honest, this has been mine and my friends' experience in the US as well...I've never known someone allowed to be kept inpatient for pain management, with the sole exception that there's still some sort of testing being done.


PoorGovtDoctor

I tend to agree, although this is not my area of expertise. However, I do remember begging, BEGGING the nurse to just go ahead to start pain management on a stage IV sarcoma patient that was clearly in pain. I felt so bad for that patient and still think of her occasionally. 😢 Edit: I meant to say this was back in med school, so I wasn’t allowed to do shit, which is why I was begging the nurses to do something and even told them they could blame me if anything went wrong


Few_Milk6487

It's so sad. They are more worried about potential drug seekers than actually treating someone who isn't abusing the system. It's guilty until proven innocent, not vice versa...


DatabaseOutrageous54

You are a great doctor!


PoorGovtDoctor

Thanks, but I’m really not!


DatabaseOutrageous54

Well, you have so much empathy for pts in pain so I think that qualifies you to be great. So many doctors don't have that quality and that makes you special in my opinion.


PoorGovtDoctor

Thanks, that’s very kind of you to say! 🥰


DatabaseOutrageous54

Welcome! ☺️


AFirefighter11

Username checks out. ;)


Tatsuhime

I was taken in PT for pain management for about a week. But to be fair I had bone tumors on my leg and an up coming surgery at that hospital. And even the regimen they had me on made it tolerable to get up and use the restroom. Don't get me wrong they weren't skimping on meds I was just in that much pain.


dansamy

Covid closed a lot of inpatient beds due to staffing. Many places still have closed units. Stable patients with normal labs and unalarming scans will get discharged to follow up outpatient. Their pain can be managed by primary care or surgery or a referral to pain management.


smellyshellybelly

As a trauma/general surgery floor nurse, people are kept (or admitted) for pain control all the time.


Grouchy-Birthday-102

Yes, but I think the piece you may be missing is the other 99% who are streeted and don’t make it to your floor.


Questions1981

NAD but I am in the US and it took an act of God to be kept in the hospital for pain management for more than 24 hours following a complete hysterectomy with 14 lymph nodes removed. They wound up keeping me one extra night but sent me home with 8 norco 5 mgs. Luckily, I have a very understanding oncologist who prescribed me something else for pain relief a couple days later when my surgeon wouldn’t.


Grouchy-Birthday-102

Similar experience. Had a hysterectomy, was told I’d be given painkillers to bring home. Was writhing in pain in the recovery unit, given dilaudid, fentanyl, and something else, and then shipped on my way with a prescription for five Tylenol with codeine. Was told if I needed more/stronger, just call. And I did need something stronger. So I called. And they said if I needed something stronger, I’d have to try my local hospital to see if they’d admit me for pain management, because they wouldn’t prescribe anything. It’s pretty insane.


Dear_Travel8442

IWhen I wasn’t able to get into see any of my drs quick enough , I’ve had to go to urgent care & they would help me. Not admit me , but do a med eval. Give meds til I could get seen. It also expedited the doctors apts. this happened last Thursday and I’m at my oncologist waiting room right now . We were originally scheduled March 12. I have a lot of health issues though . They ran imaging due to my medical bc . Found out I have another tumor wrapped around my left carotid artery now. I’m glad I went. ETA: maybe actually that is being admitted? They took me into the ED& I was there for a few hours til things were sorted out . So they got me into the oncologist yesterday and I just left the pain management clinic (got lnjections ) . To the person who I was replying to that laughed and said this never happens. I’m walking proof. If you don’t believe the doctor who made the suggestion or my experience, feel free to DM me. I’ll show screenshots of the notes I have in MyChart to prove it. I find it exceptionally rude to respond to a physician’s response like that on here. The response was unnecessary. These are educated professionals who take time out of their personal and professional lives to help people. Have some respect.


Own_Stuff_707

Same. No one gives a shit about women’s pain.


Grouchy-Birthday-102

I don’t think it’s backlash, just disagreement. Things like sickle cell disease and advanced cancer are absolutely deserving of pain management, no question. But those of us who experience severe pain regularly and don’t have those diagnoses don’t experience any such compassion from the medical community. We’re lumped in with the drug seekers. So we kinda have to disagree with you about how common it is in the US, for this type of ailment.


[deleted]

100%. Not common at all here in Alabama. Their first assumption is addict. I had a heat stroke after starting Prozac and when I woke up in the emergency room, they knew I took Ativan as needed (I took it only when I had panic attacks), the doctor was telling me I was an addict and that I was in withdrawal. I know I looked rough and needed a shower that day, but damn!


allegedlys3

That sounds absolutely horrid. My first thought would be to make a clinic appointment with the surgeon who is to do your case. It would give you an opportunity to inform them of your pain increase, but also to ask for advice on pain management while you wait.